Record information - Expanded Disability Status Scale

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Record information - Expanded Disability Status Scale

SGP KP Publishing

Exported on 2025-01-09 01:30:19

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Table of Contents

1 Recent updates …………………………………………………………………………………………………….. 4 2 Before you start …………………………………………………………………………………………………….. 5 3 Understand and record an Expanded Disability Status Scale assessment ………………. 6 4 Record EDSS information ……………………………………………………………………………………… 7 5 Next steps …………………………………………………………………………………………………………….. 8

SGP KP Publishing – Record information - Expanded Disability Status Scale

This article provides guidance for a local area coordinator, early childhood coordinator and all NDIA staff (planner, payment officer, internal review officer, complaints officer, participant service officer, access officer, quality officer, technical advisor, SDA officer, NCC officer, provider support) to:

  • understand the Expanded Disability Status Scale
  • record information about Expanded Disability Status Scale.

Recent updates – 3 Page 50 of 438

SGP KP Publishing – Record information - Expanded Disability Status Scale

Recent updates

July 2023

Update to system steps and language to align with PACE and knowledge consistency.

Recent updates – 4 Page 51 of 438

2 Before you start

You have:

  • read Our Guidelines – applying to the NDIS
  • read article Understand functional capacity assessments
  • read article Create a new functional capacity assessment case.

3 Understand and record an Expanded Disability

Status Scale assessment

Understand the expanded disability status scale

The expanded disability status scale (EDSS) is a scale from 0 to 10:

  • 0 = no impairment
  • 10 = the greatest severity.

It measures disability in multiple sclerosis and monitors the change in the level of disability over time.

It has a wide use in clinical trials and in assessing people with multiple sclerosis. It is based on published research developed by John Kurtzke in 1983. [1]

To complete a multiple sclerosis assessment, use one of these sources in preference order:

  • Disease steps: for all ages – provided by a medical professional or equivalent. To learn more, go to article Record information – disease steps assessment.
  • Multiple sclerosis severity tool: for all ages – patient determined disease steps (PDDS), available on the NDIS intranet. Provided by a medical professional or equivalent or completed internally.
  • Expanded Disability Status Scale (EDSS): for all ages – provided by a medical professional or equivalent.

Note: Evidence from a treating health professional should be from a neurologist or a disease steps trained nurse examiner.

4 Record EDSS information

To record results of an EDSS assessment, complete the following steps in PACE:

At the Select Tools step in the Functional Capacity Assessment:

  • Select No to Carry out a new assessment.
  • Select Yes to Manually enter scores.
  • Select Expanded Disability Status Scale.
  • Select Next.
  • Record Assessment completion date.
  • Select Score or rating.
  • Select Next.
  • Check the Confirmation details.
  • Select Done.

FOI 24/25-0756

SGP KP Publishing – Record information - Expanded Disability Status Scale

Next steps

There are no further steps.

[1] Kurtzke JF. Rating neurological impairment in multiple sclerosis: an expanded disability status scale (EDSS). Neurology. 1983;33(11):1444-1452

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