NDIA Accountability Project

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Independent Advisory Council

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Independent Advisory Council

ndis

Dr s22(1)(a)(ii) - irrelevant expressed concern regarding the self-management issues, noting no changes have been made to the guidelines that delegates are receiving. Dr s22(1)(a)(ii) - irrelevant asked Ms Paior to share examples of this issue and would follow up.

Action 3: Ms Paior to share examples of the self-management issues with Dr s22(1)(a)(ii) - irrelevant for investigation.

3. Council Advice

3.1. Operationalising intersectionality

Ms s22(1)(a)(ii) - irrelevant provided a brief overview of the ‘Operationalising intersectionality’ statement.

Members commended Ms s22(1)(a)(ii) - irrelevant for her work, noting the following points:

  • the importance of the impact of trauma and intergenerational trauma.
  • the need to use case studies and real-life stories to help people understand what this statement is about.
  • the importance of including a plain English version, as this makes content more accessible to a wider range of people, including people with disability and those whose first language is not English.

3.2. Voice of children and young people

Ms s22(1)(a)(ii) - irrelevant briefed Members on the development of the draft advice ‘Improving the NDIS for children and young people: the importance of being guided by their voice,’ noting the Children, Young People and Families Reference Group endorsed the advice to progress to Council.

Ms s22(1)(a)(ii) - irrelevant also acknowledged Mr Blackwood’s work and support in drafting the advice.

Members provided the following feedback:

  • this is an exciting piece of work that hasn’t been done before in Australia.
  • all children need the opportunity to be a child.
  • the need to represent a young person’s NDIS journey from infancy to adulthood, including ways to support their employment.
  • ways to support parents to support their child’s voice, including supported decision making, should be added.
  • concerns around language used around parent capability. Members suggesting improvement in this area is required.
  • the need to reinforce the original intent and role of a local area coordinator in a young participant’s life.
  • make connections to children’s rights as part of the Convention on the Rights of Persons with Disabilities and Australia’s Disability Strategy.

National Disability Insurance Agency

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Independent Advisory Council to the ndis

  • the need to connect this advice with Council’s other advice and co-designed policies.
  • stressed the importance for a whole of government approach to supports, whereby the NDIS is not seen as the only way to support children and young people.
  • the need to reinforce that over prescription of developmental therapies for children and associated funding does not always lead to good outcomes or community connection.
  • it needs to be clear what Council is recommending with regard to raising the Voice of children and young people.

Members thanked Ms redacted: s22(1)(a)(ii) - irrelevant material and Mr Blackwood for their work and noted further consideration of the Advice was required.

Action 4: Members to provide feedback to Ms redacted: s22(1)(a)(ii) - irrelevant material on the Advice ‘Voice of children and young people’ by 22 January 2023.

4. Co-design Update

4.1. Update on Co-Design Advisory Group activities

Ms Mahmic provided an update on the work of the Supported Decision Making co-design project. Ms Mahmic said the Agency’s engagement felt authentic and meaningful. Their willingness to work in partnership with the disability community, including involving the right people and/or organisations in co-design was great.

Members said the Home and Living Framework is tracking well, although raised concerns that there may be push back from large providers when released publicly.

Council raised concerns with the Participant Safeguarding Policy, noting the Policy doesn’t include recommendations from Council’s original advice. Members were keen to discuss their concerns and provide further feedback to the Agency out of session.

Action 5: Interested Council Members to meet with the Agency to provide additional feedback on the Participant Safeguarding Policy.

5. Complex Needs

5.1. YPIRAC and Hospital Discharge

Ms redacted: s22(1)(a)(ii) - irrelevant material and Mr redacted: s22(1)(a)(ii) - irrelevant material gave an update on the extensive work undertaken by the Agency around hospital discharge.

Members commended the Agency for their work, noting the notable improvements in hospital discharge for participants.

Members raised the following points:

  • a need for greater understanding of data on young people with early onset dementia who transition from hospital and those forensic patients awaiting hospital discharge.

National Disability Insurance Agency 7

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Independent Advisory Council to the ndis

  • queried the 30-day Agency target to approve a hospital discharge plan, noting the disability community was calling on shorter timeframes. Ms redacted: s22(1)(a)(ii) - irrelevant material noted the Disability Reform Ministers made the decision.
  • concerns about where participants go when they leave the hospital. Noting, sometimes participants are placed in accommodation that is not appropriate.
  • reference the Victorian Disability Hospital Liaison Officer model, which has delivered better outcomes and support for people with disability in accessing health services. Members suggesting that employing people with disability in Health Liaison Officer positions would be beneficial and result in better outcomes for participants.
  • importance of accessible communication, stressing the need for information about complex supports to be in plain English and Easy Read.

6. Meeting close

6.1. Other Business

The Principal Member thanked Members for their open, transparent, and honest feedback and discussion throughout the year.

6.2. Next Meeting

The next meeting will be in February 2023.

The Principal Member invited Members to a voluntary ‘in camera’ session to those who could join following the meeting and closed the meeting at 5.00pm.

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Independent Advisory Council to the ndis

Themes from meeting chat

Delivered by the National Disability Insurance Agency 9

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