National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1056
Senate Inquiry into the new NDIS Bill – 25th May 2026
Submission Re: Proposed changes to the NDIS.
Dear Sir/Madam,
I am writing to express my concerns about the proposed NDIS changes.
Firstly some background on my history. I was diagnosed with a degenerative brain disease some years ago, since then it has degenerated further as seen in scans and also a new disease of the brain has appeared thus compounding this issue. These diseases cause loss of memory, confusion and balance issue.
This disease is one of a few affecting me but it’s the only impairment that qualified me for NDIS, even though these other degenerative diseases further affect my day to day ability to function (one being degenerative spine disease that also affects balance, limb dysfunctions, numbness and loss of co-ordination).
After my brain disease diagnosis, the company I was working for, (as Sites Project Manager) stated they had noticed a decline in my work efficacy in that I was forgetting critical timeline tasks and not recognizing other stakeholders names etc, and soon afterwards the company terminated my contract as it became obvious I would no longer be able to function at a level required in such a complex and fast moving civil construction environment.
Consequently I ended up on Disability Support Pension and have never been able to return to work (following extensive Centrelink instigated functional neurological testing, which determined I would never be able to work again).
To go from such a high paying job to the pension was hard enough to handle but shortly afterwards the other degenerative spinal disease noted above reared its ugly head and both the brain disease and spine disease saw me virtually relegated to either a recliner chair or bed as the medical system began its gas lighting process on me regarding treatment options (in fact this gas-lighting went on for 9 + years, so for many of these years I was confined to home with very little mobility).
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1056
I have no friends left alive, my family live some distance from me and I was restricted from driving medically so could not drive anywhere for shopping or socialization. My carer sometimes takes me to the shops between her work and family commitments.
In short, my life had gone from a very active lifestyle to just existing with no purpose in life. During these darkest periods, suicidal thoughts were a constant companion until my GP suggested I apply for the NDIS, which we did and I was approved for funding.
Whilst my funding is meagre compared to some recipients, I am forever grateful as it allows me to:
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Access the community (instead of being confined to home which in the end became my prison).
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Gives me someone to talk to other than my carer (support worker).
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Allowed me to get to a cancer treatment centre 45 minutes away, for daily treatment over 4 weeks (yes along with my other impairments I developed aggressive prostate cancer). This cancer is now in remission and this would not have been possible without a support worker (who by the way actually did not invoice NDIS for many of these daily treatments because it would have impacted my NDIS budget negatively).
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With NDIS help, I have been able to access community for various reason including shopping, fishing and other personal interests, medical appointments, or just to have a coffee and chat with my support worker away from the home environment. Because I have zero social life these outing have been very beneficial for my mental and physical wellbeing (we all know the documented negative effects of isolation).
I have been a lot happier and actually looking forward to what the future holds since being granted NDIS, until now with the uncertainty of these proposed changes to the NDIS including the 50% reduction in funding across the board for Social and Community Participation. Even worse no-one can tell me who the touted 160000 recipients to be removed from NDIS are, or what category they are from.
Because of the pending proposed changes to NDIS, I am currently very apprehensive and anxious as I don’t want to return to my dark days prior to NDIS. If I am to suffer a 50% reduction to my ability to access community, this would have a very negative effect because at the moment I get about 4 hours a week but if this cut in half then the 2 hours would actually result in only 1 hour per week of actual community access because the closest large town where I buy my supplies etc is 30 minutes away, therefore I would be actually sitting in a car for 1 hour which is half of the proposed time frame as dictated by a 50% reduction of access the community.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1056
As far as I and many other Disabled people, we should be leading this conversation, not having fundamental changes made around us.
Australia has obligations under the UN Convention on the Rights of Persons with Disabilities, including meaningful participation in decisions that affect us which, is why I am writing this because as far as I am aware no participant has ever been consulted about these proposed changes to NDIS.
I hasten to add, we are not ‘guinea pigs’. We are citizens, with rights that are afforded us via the international instrument that Australia is a signatory to (something this Labor government seems determined to abrogate) .
Unfortunately, there is a huge amount of negative chatter on social media about participants ripping off the NDIS and the anger towards disabled people is palpable. I and many others find this abhorrent especially because it’s largely brought about by a deliberate action from government. Look at the facts. They want you to believe false narratives. They commissioned reports on it. It’s genuinely diabolical and evil if what is claimed below is true, then the current proposed NDIS changes are actually nothing short of a planned attack on recipients.
“Who is responsible to trashing the ‘social license’ of the NDIS?
Bill Shorten and his commissioned report from RedBridge Group Australia. Who then fed it to the national media for 18 months. Mark Butler MP and Anthony Albanese have taken this and RUN, giving the Australian public no chance in understanding how their views have been shaped by a MARKETING STRATEGY. So when we question the ‘social license’ of the Scheme and use it to defend mass cuts, kicking 160,000 people off the Scheme and restricting access to the Scheme by 80,000 people per year, we’re really questioning the efficacy of a Marketing Strategy, not the supports and value of providing supports to disabled Australians“.
https://www.linkedin.com/posts/sarah-moran-2a8152167_i-have-been-harping-about-the- redbridge-report-activity-7454382038289158144-w0bI
The NDIS scheme is a vital lifesaver for people with disability, but maybe paying tax for NDIS is beneath most Australians and in their minds, the people with disability all deserve to be eradicated, just as the Nazis tried to do in the 1930s and 1940s“.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1056
Average people cheer thinking the government is cracking down on fraud when they’re actually taking 65% of cuts directly from participant payments, making it harder to join when it’s already exceptionally difficult, and kicking 160,000 people off entirely.
It’s beyond logical belief. This proposed legislation will cause mass harm and suffering, and people WILL lose their lives, if this legislation is allowed to pass.
Please consider the above and ensure no mass harm comes to us as we are some of the most vulnerable Australian citizens, and to deliberately attack us is the most cowardly act a government can take.
Yours faithfully
Compiled: with lots of help from my Carer.