National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1140
I ask that my name and contact details be withheld please to protect personal privacy and unwanted contact and harassment.
Att: Committee Secretary, Community Affairs Legislation Committee.
I am living with a disability; however, I am not a National Disability Insurance Agency (NDIS) scheme participant. I have direct and lived experience of trying to navigate the NDIA scheme, as I am the sole parent and sole informal support for my adult child who has a significant and permanent disability. This disability developed in-utero and will continue until death - there are no treatments available to cure this disability.
This Bill was not co-designed with people living with disability, from the disability community.
This Bill was not developed through genuine consultation.
This Bill has been put forward about people living with disability and lived disability, without including these actual people - nothing about us without us.
This Bill is the 3rd major NDIA scheme amendment that has not been co-designed with people living with disability and lived disability - the actual people who it affects the most. Is this Government’s performance to show disdain for one of the most vulnerable sectors of our society?
This Bill has an extremely short timeframe for submissions - WHY??
Even the Office of Impact Analysis’ own guidance on best practise consultation sets a very clear standard - however, the process for this Bill does not meet this standard. I ask the committee to formally recommend this extremely short timeframe be extended to at least 60 days for proper consultation on this very important matter.
Please read:
https://oia.pmc.gov.au/resources/guidance-oia-procedures/best-practice-consultation
This Government’s treatment of people living with disability and lived disability is shameful as Australia is a signatory to the United Nation’s Convention on the Rights of Persons with Disabilities (UNCRPD). This is an international convention that sets out the fundamental human rights of people with disability. People living with disability and lived disability have been
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1140
excluded from co-design of this Bill: it is not a courtesy but a right of people living with disability be meaningfully included in decisions leading to, and arising from this Bill, that affect their lives.
The original vision of the NDIAS scheme was built on an understanding that disability is shaped by impairment, inaccessible systems, poverty, discrimination and exclusion. This Bill moves away form that original vision,
Thankyou for reading this submission.
Kind Regards
This email and any attached file/s may contain privileged information that is strictly private & confidential. This email should be read by the intended addressee only. If you are not the intended addressee you are strictly prohibited from using, reproducing, disclosing or distributing the information contained in this email and any attached file/s. This email and any attached file/s should be scanned for viruses. No liability is accepted for loss or damage (whether caused by negligence or not) resulting from the use of any attached file/s.