Impact of NDIS changes on grandchildren with disabilities

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1192

Submission to the Senate Community Affairs Legislation Committee

Inquiry into Securing the NDIS for Future Generations Amendment Bill 2026

Date: 26th May 2026

State: South Australia

I am writing this submission as an NDIS participant nominee, family member and fulltime carer of my two grandchildren.

Both grandchildren who reside with me fulltime have disabilities and are current NDIS participants. I have been the children’s informal caregiver since September 2009 after State Child Protection placed the siblings into my care.

Once deemed safe and reunification not viable, their case was closed.

As a result, over the past seventeen years our family has not received any financial reimbursement from State Child Protection for the children’s out of home ongoing care, education, needs and disability support requirements. We have shouldered all their needs and financial costs on our own.

The only formal support we have received from the Australian Government to assist my grandchildren to reduce their disability limitations, improve behavioural self regulation function, increase functional capacity and support to reaching their achievable life goals, despite disability challenges, has been through their NDIS plans.

Consequently, while very grateful for the NDIS support we have been allocated, I am now extremely concerned the changes proposed in the NDIS Securing the NDIS for Future Generations Amendment Bill 2026 will directly affect all participants’,our grandchildren’s lives, our families’ life and the ongoing security of the essential services all participants rely on to increase capacity so they can participate in society to their full potential.

As a whole, I oppose the National Disability Insurance Scheme Securing the NDIS for Future Generations Amendment Bill 2026. The changes via the new NDIS amendment from the current 2013 NDIS legislation removes the core promise made by the Australian Government to all disabled people of Australia of an individualised scheme of individualised support. To replace the current legislation with an unfair, non-individualised scheme, converted by this NDIS amendment Bill that enshrines one size fits all blanketed cuts, demonstrates a lack of empathy and is punitive to those most vulnerable requesting only what is reasonable and necessary person centered support.

Yours Sincerely,

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1192

34A Determination reducing funding for groups of supports

Minister’s Power to Cut Plans (Section 34A) Section 34A Securing the NDIS for Future Generations gives the Minister the power to cut plans without giving a reason.This creates distress,fear and worry as section 34A Securing the NDIS for Future Generations Bill 2026 in its proposed format removes any certainty of ongoing support for participants. Participants will not be able to plan their lives or enter into service agreements for their support if their funding can be taken away suddenly without justification or review. I ask the Committee to remove Section 34A. from the Bill Securing the NDIS for Future Generations 2026.The Minister must not have the power to alter plans without a clear, written reason and a fair process to review the decision.

Minister’s Power to Cut Plans (Section 34A) Broad 50% Cuts to Community Participation

The NDIS Securing the NDIS for Future Generations Amendment Bill 2026 introduces a flat 50% cut to community participation support for all participants, rather than looking at individual needs.This broad cut will put people’s safety at risk due to lack of support, preventing many people with disabilities from being enabled to function as part of the greater community. Conclusively, removal of community participation support funding will cause severe social isolation and harm to their mental health due to that increased isolation. The ripple effect of this cut will place further strain on family informal supports to fill gaps. The NDIS Securing the NDIS for Future Generations amendment Bill 2026 totally ignores the fact that all participants, even those with the same diagnosed disability function differently, and each participant requires different levels of support to assist function in their daily lives.I ask the Committee to reject flat-rate cuts. All decisions about community participation support should and must remain fully individualised.

Minister’s Power to Cut Plans (Section 34A) Broad % Cuts to Any Supports

Securing the NDIS for Future Generations Bill 2026 applies a flat 10% cut to all supports across the board, instead of assessing individually what each person actually needs for assistance with daily living support,therapy, Assistive Technology and consumables. A blanket cut ignores personal safety, health, and basic daily needs. It treats participants like numbers instead of real individual people with distinct, essential support needs.

My Request:

I ask the Committee to ensure that any changes to support funding are based strictly on individualised assessments, not blanket percentage cuts to all plans. The NDIS was built to provide choice, control, and individualised care. Automated and unchecked cuts go against everything the current NDIS scheme stands for.

Thank you for considering my submission and I hope the Committee listens to my voice for my Grandchildren, the voices of the disability community and rejects these harmful amendments. Thankyou,