National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
Submission NDIS Amendment (Securing the NDIS for Future Generations) Bill 2026
To Senate Community Affairs Legislation Committee
From
Date 26/05/2026
Contact
Important message
This submission talks about concerns about the Bill.
It does not say we agree with the Bill.
Why we wrote this in Easy English:
These submissions are written in Easy English because they are for self
advocates and people with disability.
Many people find government information hard to read. Some people need short
sentences, clear words and simple layouts to understand what changes may
mean for them.
Easy English helps more people take part, have their say and speak up about the
NDIS Bill.
The NDIS is about our lives, our rights and our support.
We should be able to understand the information and be part of decisions that
affect us.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
About me I am . I am 41 years old. I am a person with intellectual disability. I am grateful for the NDIS funding that makes my life better. The NDIS helps me go out, live my life, and stay safe. I rely on support to leave the house because I need assistance with many things. I may have a seizure or a dangerous allergic reaction. I need help to use my EpiPen. I use a walking stick and sometimes a wheelchair. We live a long way from public transport, so my parents or support workers have to drive me where I need to go. I like to catch the bus or train with my support worker, but first we have to drive to the station or bus stop. My NDIS funding gives me support to attend a journalism course and film news stories, borrow books and DVDs from the library, see my friends, go out with my girlfriend, attend medical and other appointments, do my shopping, meet new people, and contribute to the community. I have a lot of appointments because my disability is complex. I like going with my dad to watch our NRL team, the Dolphins, play. Please do not cut my NDIS support or stop me from employing the workers that I choose. I am looking forward to moving out of home one day, but it is difficult to plan when the NDIS keeps changing. This is what I wanted to say, and my mum helped me to write it down.
I know what good support looks like. I know what happens when support is not there.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
My main message I am worried the changes the government wants to make to NDIS laws will:
• Put people with disability in danger
• Hurt people’s physical health and mental health
• Put people’s safety and human rights at risk
• Stop people getting what they need to live their lives
I am worried the new Bill will mean people:
• lose support they need • get less support to go out in the community • have less choice and control • are not listened to in assessments • cannot get help when their life changes
People with disability must be part of all decisions about the NDIS.
Nothing about us without us.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
Key facts about the Bill • The Bill was introduced to Parliament in May 2026. • The Senate Committee is looking at the Bill now. • Submissions close on 29 May 2026.
This bill is rushed:
• This bill is rushed, and I do not have time to properly understand how this will affect me and to speak up about this
• I NEED accessible information, like things in easy read and time to think and say how these changes will affect me.
• Because this bill is rushed, SARU helped me write lots of this submission.
But self-advocates should be given time and support to lead this work instead.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
Social and Community support must not be cut Social and Community support is very important. It helps people: • do things outside of the home they need to do to • make and see friends • go to appointments and go shopping • go to self advocacy groups • learn skills • use transport • join the community • speak up
This support is not extra. It helps people have a real life.
Without it, people may be stuck at home. They may become lonely or unsafe.
I ask: Please do not cut community support for everyone. Look at what each person needs.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
Assessments must be fair The Bill talks about new assessments.
Assessments must understand real life.
Some people:
• need help to explain their needs • have good days and bad days • use different ways to communicate • feel scared in meetings • say they are okay when they are not okay • need someone they trust with them
Assessments must listen to the person.
Assessments must also listen to people the person trusts.
I ask: No one should lose NDIS support because of an unfair assessment.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
Choice and control must stay The NDIS should let people choose.
People should be able to choose:
• their workers • their providers • their support coordinator • their plan manager • how they use their support.
Trust is very important.
Some people have worked hard to find workers they trust.
New rules must not take this away.
I ask: Keep real choice and control in the NDIS.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
PLAN ~ People need help when life changes ~ PLANB Life can change quickly.
A person may need more support if:
• their carer gets sick • they leave hospital • they move house • they are unsafe at home • their mental health gets worse • their provider stops helping them
People should not have to wait too long for help.
I ask: Make sure people can get urgent plan changes when they need them.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
People 1st Advocacy must be funded Many people need support to speak up.
Self advocacy groups help people:
• understand changes • know their rights • speak up at meetings • make complaints • ask for reviews • stay connected to other people
If the NDIS changes, people will need more advocacy support, not less.
I ask: Fund independent advocacy and self advocacy groups properly.
What I want the Senate Committee to do I ask the Senate Committee to make sure the Bill: 1 • protects choice and control 2 • protects social and community support • makes assessments fair 3 • Allows people to get plan changes when life changes • funds advocacy and self advocacy • listens to people with disability before changes happen
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1194
Final message The NDIS helps me to live my life.
The NDIS helps me to do ordinary things just like everyone else.
It helps me be part of the community.
It helps me to contribute and speak up.
It helps people with disability be safe.
Do not change the NDIS without us.
Listen to self advocates.
Protect our rights.
NDIS Participant