National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1255
I am writing this submission on behalf of my son Scott who has lived with spastic quadriplegia for all of his 39 years of life. His NDIS funding has been used responsibly and economically, not to provide luxuries, but to provide him with a life in the most ordinary sense of that word. To be able to live in his own home (not grouped together with others whose only commonality is that they all have a disability) To access his community and become a valued and respected member of that community. To be seen and heard, to feel valued, worthwhile, and respected. To develop a small business, helping him to feel valued and a contributing member of society. To access the therapies, he requires to maintain his health and wellbeing.
We now live in fear that everything we have worked so hard to achieve will be jeopardized by these proposed cuts to the NDIS. That those who have used their funding responsibly, in the way it was intended, and achieved the outcomes that the NDIS was set up to achieve, are now being penalized along with those who have abused the system instead of being acknowledged and rewarded.
Certainly the abuse of the system needs to be addressed and should have been monitored more closely from the beginning, but please rethink cutting funding to those, like my son, who rely on it just to have the basis life that you and I enjoy and take for granted.
Diane Exelby