National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1268
I am writing as a user of the NDIS, I can not stipulate how vital it is to me to have these services. As a sufferer of MS it is extremely vital that I have access to care and services like physiotherapy chosen by me. I suffer extreme pain and by cutting my improved daily living I will be left in terrible pain.
For many years, I have managed a consistent team of independent support workers chosen by me. I rely fully on this team to ensure I am never without support for basic self-care—essential needs that many people take for granted. Mandatory registration for all providers would remove my ability to choose who I allow into my home to provide this vital care.
I believe it is important to maintain the autonomy of participants to decide who supports them.
Due to my disability, so many things have already been stripped away from me. Now, the changes to the NDIS threaten to strip away even further choice and control, leaving me with the heartbreaking reality of losing what little independence I have left.