National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1322
Submission
Inquiry: The National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
I help to care for a gentleman who is quadriplegic with Duchenne Muscular Dystrophy. He is unable to do anything physical for himself. He needs help with eating, drinking, toileting, transferring him out of bed, showering, cleaning his teeth, shaving, etc. He is an extremely vulnerable person with a high care needs disability. He self manages his NDIS plan and although it takes all the work, it is worth it so he can have choice and control of his supports.
The gentleman I help care for is already quite isolated and is unable to venture out much, due to compromised breathing and compromised heart function. That the government wants to reduce Social and Community funding is beyond me. The government has never explained clearly to the public what Social and Community funding is used for. So many people think that movie tickets, coDee, meals out are paid for by the NDIS. This is simply not true. All the NDIS pays for a support worker to accompany the person with a disability to enable them to have a little bit of freedom, but nothing like the freedom an able-bodied person experiences. Nor has the government tried to sell the NDIS to the public. For instance, every $1 that is invested into the NDIS, $2.25 is returned to the economy. The NDIS has also created close to 1 million jobs. When I’m out in the community, I constantly correct people’s lack of knowledge. Quite often people say to me that they are glad that I corrected the record and that they were unaware. The public has not been educated much at all about the NDIS. Or is this by design, so the government can easily manipulate the public into believing that it is losing its “social license”? Participants are certainly awake to the manipulation that has been taking place and they are exhausted by it.
Over the last three or four months, I have never seen the gentleman I help care for as stressed and as anxious as he is now. He is suDering from severe anxiety, mainly due to the uncertainty of the huge changes proposed to the NDIS bill. He is extremely anxious and uncertain about his future now, since the proposed cuts to the NDIS were announced. It is so cruel to see the amount of suDering he is dealing with, as if his high needs disability isn’t enough stress to deal with! I know of many others a disability and their families who are suDering and feeling the same.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1322
Please do not pass the NDIS Amendment Bill in its current form. It removes rights, reduces choice and control, and will harm people with disability.
Your sincerely,