National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1343

Dear Committee Members,

I am writing to you to today to oppose the NDIS Future Generations Bill 2026 as announced as part of the federal budget and tabled in parliament.

My name is and my adult granddaughter is an NDIS participant. She was born with a range of disabilities and has acquired others in her 26 years. Her disability includes a severe intellectual disability, legal blindness, a physical disability and epilepsy. She has severe self harming behaviours, is fully incontinent and requires someone to give her medication and provide physical support while she eats so that she does not choke.

She requires 24/7 1:1 care at all times.

At the moment mum provides most of her care while her dad works to support the family financially. We are not able to provide any support as we live over 12 hours away.

Without the funding for social and community support is at risk of harm as she has no sense of danger and a falls risk, will no longer be able to attend therapy which keeps her mobile, will lose her connection to her local community, won’t be able to visit friends or family, won’t be able to leave the home to do essential things (such as shopping for food or picking up her life saving medication) and will have an increase to her self-harming behaviours.

The emotional and physical strain on her mum and dad is already present and cutting her funding will only make this worse.

I am asking you to reconsider/vote against the blanket proposal to cut funding across all participants to get out into the community and look at participants as individuals which was the intent of the NDIS.

I also oppose the following;

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1343

• The criteria around permanence and “appropriate treatments”. has been under the care of her medical and therapy teams for her whole life. Given the complexity of her disability I find it deplorable that the government believe they have the right to override medical specialists. care/treatment is based on her individual needs, not some predetermined criteria that may not be appropriate and cause her harm.

• The new functional capacity test and reassessment of all participants. The new functional capacity test is not individualised and the questions will not give a true understanding of Rachel and her disability. will be disadvantaged based on the questions being asked. An eligibility reassessment will put into financial hardship if she is required to gain more up to date reports/letters. It will also clog up the health system for necessary appointments when doctors and specialists have to spend time writing reports for something that hasn’t changed.

The bill is not designed to punish those who rort the system and will punish people like my granddaughter who have a lifelong permanent disability and will always need the care and support the NDIS provide.