National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1477

I am a single mum to 4 beautiful boys with Autism Level 3. My boys all rely on the NDIS for supports. One of my children is an adult and lives independently in the community with NDIS supports. The other 3 are 11, 9 and 6 and rely solely on me for their fulltime care.

I am a highly experienced and qualified special needs teacher, and I have had to give up my career to support my boys so they have the opportunity to become successful and functioning members of society. I home school my boys and moved to the country, downsizing so we can afford to live. I am 100% responsible for all of my children’s care and needs. Two of my young boys are incontinent, one being if fulltime nappies.

We rely on the NDIS to assist us with therapy, Incontinence support, independent living skills support and community access.

With the current proposed changes I’m significantly concerned with the immediate cut to all plans for community access, the way the bill is written that one person can make changes as and when they see fit without any discussion from the wider government and the change in parental responsibility. I am of course also concerned with the capacity for entire groups of children to be removed based on their Autsim diagnosis irrelevant of their care needs.

I rely on the boys community access funding to assist me in taking them into the community. I am one person and I can’t safely navigate most community places without support due to their individual needs. A sudden reduction in this funding will mean we will all become more isolated and they will have to withdraw from their

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1477

community activities that we have spent years building up skills in participating and being included.

I rely on the NDIS to assist me to be able to continue to meet their needs now and into the future. I have given up my career, moved our house, homeschool them, manage their therapy, include them in the local community and meet all their continuing individual disability related needs. Autism is a lifelong neurodevelopmental condition, and early, consistent support is dramatically improving their communication, behaviour, learning and long-term independence IF NDIS support is removed, my children will likely loose all these skills, be unable to make positive gains, also become isolated, excluded and I will become so burnt out I will struggle to care for them.

I am also significantly concerned on the impact for my adult son if he loses his supports I have no more capacity to assist him. What will happen to him? I’m already at burnout managing my 3 young autistic boys I have no more to give.

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