National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1528
From: Sent: Tuesday, 26 May 2026 1:55 PM To: Community Affairs, Committee (SEN) Subject: Review and Submission Regarding Disability Support,
To Whom It May Concern RE: NDIS Review and Submission Regarding Disability Support Participant Outcomes And Scheme Sustainability I am writing to provide formal submission from my perspective as year old parent primary carer Our family currently accesses vital ndis supports including psychology positive behaviour support PBS )and community Access These interventions are luxuries they fundamental framework components that preserve our familys stability safety capacity participate society Below outlined lived experience across key functional areas demonstrate how proposed changes ndis directly impact daily lives Functional Capacity Access Impact Current Supports The current NDIS framework allows access targeted allied healthcommunity supports address significant disability related needs specifically communication emotional regulation independencedaily living skills If functional were assessed without taking into account existing assistive technologies therapy strategies environmental factors would create inaccurate dangerous misrepresentation need Reality of Support Our current psychology behavioural therapy significantly reduce daily impact disability They foster emotion regulation social connection which protects families overall wellbeing Danger Misassessment Without these supports actively in place presentation disability escalate dramatically Assessing individuals baseline while ignoring scaffolding keeping stable risks stripping away very interventions preventing crisis Participant Choice Control Funding Flexibility The flexibility choose retain trusted providers paramount Disablity is not one size fits all any policy shifts reducing funding or restricting choice have severe consequences Impact Reduced Funding Reductions compromise therapy access drastically limiting independent participation Flexibility Times Crisis Human needs dynamic static We experienced times when support escalated unexpectedly due developmental transitions burnout behavioral escalation Having flexible plan allowed pivot resources needed most Stricter reassessment rules trap families rigid administrative processes during acute vulnerability 1
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1528
Continuity of Care and Trust
Building effective therapeutic relationships takes an immense amount of time, patience, and specialized skill.
Timeline of Progress:
The experience has shown us establishing trust with clinicians can take months even years. Progress in emotional regulation behavioral stability develops slowly over time.
Risk Disruption:Disrupting these support relationship means starting new clinician immediately losing progress increased stress acute distress profound reduction confidence Consistency foundation developmental growth.
4 Administrative Complexity Regional Service Challenges The administrative burden navigating already significant source families Systemic Hurdles Introducing additional paperwork frequent reassessments stricter evidence requirements will create further delays unsustainable toll carers Market Realities These challenges compounded regional service barriers including severe workforce shortages limited provider options extensive waitlists travel requirements Expecting families to seamlessly transition mainstream or alternative systems unrealistic local services outside largely unavailable entirely unequipped manage complex disability related needs Conclusion What Government Must Understand I urge decision makers recognize that progresses takes consistency matters Disability cannot managed rigid institutional checklist Trusted relationships built between participants family clinicians primary drivers positive outcomes If flexibility reduced funding cut long term cost government through crisis management breakdown loss independence vastly outweigh short budgetary savings ask protect integrity flexibility participant directed nature scheme Thank you for considering this submission Sincerely, Parent / Carer