National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission - NDIS Future Generations Bill 2026

I am a disabled pensioner and have been on the NDIS for approximately 7.5 years. I am also a single mother with two children currently studying. To date, the NDIS has been of great benefit to me, and has helped me manage my symptoms and supported me to live with my disability. I believe most of us agree that changes to the NDIS/NDIA are needed. However, I OPPOSE the proposed Bill on many levels. The items that concern me the most are: 1.“ALL APPROPRIATE TREATMENTS?MEDICATION” THIS IS A BREACH OF HUMAN RIGHTS. IT IS MORALLY WRONG.The government is FORCING PwD to trial all possible forms of treatment/medication before they are considered to have a permanent disability.There is no choice or control for the PwD with that.Everyone has the right to choose whether or not to take medication.It is their body.Many people suffer from the side effects from medication.And who decides how many medication/treatments are enough?Do we get suspended from the scheme when a new medication pops up? Lack of funds and living remotely ARE barriers to possible treatment/medication.This condition to access and stay in the scheme is unfair and unrealistic.IT IS DISCRIMINATION.

In my case,I have Multiple Sclerosis.It is an unpredictable degenerative neurological disease.There is NO cure.I have a permanent disability.No amount of medication or medical treatment will change the fact that I have MS.I have a list of 26 symptoms with my major permanent symptoms as follows:debilitating fatigue neuropathic pain heat intolerance,incontinence/toileting issues,dysphasia,spasticity,mobility/balance issues-I am wheelchair user.I struggle to walk;I can’t run.Iam high falls risk – Ive hadmany significantfalls todated.Ido not takeprescription mediciation.Does this meanthat Imwill be kicked offthe NDIS?

CUTS TO CORE FUNDING

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1547

Funding in a plan for community access is to pay a support worker to take the participant to medical/therapy appointments, meetings, social and community events, family activities, and other engagements. Sometimes it’s the o accessing community or engaging with others humans If proposed cuts of 50% to community access passed this will detrimental effect on participants mentally physically socially It result decline PwD increase deaths suicides See attached copy post Facebook re suicide VAD Any cuts Core funding also place pressure informal supports members For myself specificallycuts Core would mean not being able go hydrotherapy helps manage symptoms maintains health Would unable attend medical appointment activity I could hobbies involved local disability matters give up advocacy due lack funds If don’t need supports am personal care prepare cook meals pick grocery shopping clean house maintain garden wash dishes dry laundry cut nails more These are all basic everyday human tasks cannot complete without my workers have little way formal supports My consists two children study Cuts these pressures them possible hindering pursue careers hopes dreams become burden them Am stressed scared feel unsafe fear future Cuts NDIA scheme needed but areas NOT PARTICIPANTS PLANS! The itself wrought overadministration systems allowed rorting charging providers organization needs overhaul Punishing unfair wrong Facebook Post re suicide/VAD:

Submission 1547