National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1582
To Mark Butler and the Albanese Government.
This week you released a budget that will remove 160,000 participants from the NDIS, and cut funding for community and social access budget.
I am a 30 something NDIS participant with multiple physical and psychosocial disabilities. I am absolutely terrified I will be cut. The NDIS are only funding me for autism, and every time we try to add my other disabilities, you come back with rejection and funding cuts. We ask for a 50% increase, and you come back with a 50% cut. You will not even fund the aids I need to brush my teeth anymore.
Before the NDIS, my life was unbearable, my relationships and friendships were destroyed by my desperate attempts at getting support needs met in the absence of family and government supports. I had to rely on much older men who abused and groomed me, exchanging sexual abuse for the care work I needed to survive. I was in and out of hospital, often weekly, and chronically suicidal due to the extreme overwhelm and distress of trying to survive unsupported.
The NDIS helped me build a quality of life that is worth sticking around for and while some might say I should be grateful for that, they do not comprehend the time, energy, cost, administrative acrobatics and emotional cost of having to fight so extensively for every scrap of access and support. It’s hard to be grateful when I can’t brush my teeth because of funding cuts, even after months of fighting.
Currently I am getting below my bare minimum support needs met. I can see myself declining. Thriving certainly isn’t an option. It is infuriating and devastating to know that you have the capacity to be and do so much more, and instead have to sit around waiting as your body decays and your life expectancy counts down, because the government decided its ok for disabled people to be barely surviving on less than the minimum support needed.
So this week I decided, it’s time to start getting my affairs in order. Not because I’m suicidal, but because if this government refuses me dignity and quality of
To Mark Butler and the Albanese Government. 1
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1582
life, I refuse to go through the torturous decline of returning to completely unsupported life. If there is no quality, there is no value to staying alive.
If the government determines I don’t deserve the supports I need for a minimum quality of life, then I’m not sticking around to be tortured, put through useless and traumatic hospitalisations, systemic abuse, and harm at the hands of a government that treats disabled people as disposable.
To be very clear, I am not suicidal. I simply refuse to put myself through the agony of declining and returning to my pre-NDIS life.
When I pass, I want you to remember. This is not suicide, but murder, gift wrapped as a responsible budget.
When you hear about the others who will die I want you to remember, these aren’t accidents, or inescapable tragedies. This is genocide. The blood is on your hands.
Disabled people on the NDIS are waiting for the guillotine to drop, hoping that it won’t, but knowing the people who could save our lives, stop the execution, probably won’t even blink when the blade comes down.
To Mark Butler and the Albanese Government. 2