Autism Spectrum Disorder Level 2 and ADHD supports at risk (Family or carer experience)

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National Disability Insurance Scheme Amendment

Securing the NDIS for Future Generations - Bill 2026

Submission: 1587 As both mother and disability support worker, as well as having seen firsthand how essential disability insurance scheme funding truly matters. My son has Autism Spectrum Disorder Level II & ADHD; having access through his NDIS plan: speech therapy occupational psychology supports—without which I could afford these therapies privately; many services cost over $200 per session critical interventions that help him communicate regulate emotions build independence participate meaningfully in everyday life progress made consistent allied health supports significant but depends ongoing reliable funding families should choose between financial hardship ensuring child receives needed develop learn thrive Early continued intervention improves quality of life participants reduces long-term pressure education community systems work sector seeing increasing fear uncertainty among participants family Many redacted

National Disability Insurance Scheme Amendment

people I support are deeply worried that they will lose access to the NDIS entirely or have their plans reduced significantly such that they can no longer access supports essential services rely when essential supports funded need disappears simply shifted elsewhere Families left carry responsibilities may equipped manage financial pressures increase vulnerable people face greater risks wellbeing safety independence cost ultimately absorbed families carers hospitals schools emergency services broader community While understand importance improving protecting sustainability scheme reforms must participants genuinely depend these The provides dignity opportunity stability family mine participant well-being centre decision-making