National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1677 To whom it may concern, I am writing to you regarding the proposed changes to the NDIS and the very real impact these changes will have on families like mine. Firstly, I would like to state: ‘the minister in charge announcing’ had absolutely no idea what he was talking about; clapping and cheering were dehumanising! It’s scary that this affects over 130 people who are vulnerable individuals living with disabilities or conditions such as Autism, epilepsy, severe anxiety requiring medication due to autism spectrum disorder, Crohn’s disease affecting a three-year-old daughter also dealing multiple disabilities including spina bifida among others! The government response is inadequate despite our best efforts being exhausted yet we cannot give more support anymore. We truly can’t afford any further cuts without compromising care quality which has been provided through pure love alone. We all vote too - every single person within households of those affected either votes themselves directly OR supports someone else voting behind them; as carers managing appointments therapies specialists schools services independently while my husband works long hours financially supporting family needs leaving me solely responsible for coordinating healthcare plans ensuring children receive necessary treatment even though not considered an expert myself but knowing their condition better than anyone else does.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1677
I am 43 years old, and while that may seem young to some, the physical and emotional toll of long-term caring has left me exhausted. I live with chronic pain and chronic illness, and I am currently undergoing assessment for Autism myself.Iamnotincapable,andImnotinstable— I am simply exhausted after decades of carrying responsibilitiesthatneverstop. TheNDISis nota luxuryfor myfamily; it isourlifeline.Despitethepublic narrative,mostfamiliesaccessingtheNDSAre notlivingcomfortablyortakingadvantageofthesystem.Wearerelivingdayby day,doyingeverythingwecantohold our familiestogether. Ihavehadlittletonobilitytomaintainemploymentbecauseoftheflevelcaremy childrenhaverquiredthroughouttheir lives.Evenduringschoolyears,Iwas frequentlycalledtocollectthemormanagecrisesmakingregular employmentimpossible.Currently,mychildrenarestillnot fundedappropriately ,andoewardueattendthen DISTRIBUTIONON THE 4TH OF JUNE. IAMterrified.The NDISTWILLARRIVEWITHlegal representationwhilemysonhasonlyhisexhaustedoverwhelmed mother advocating forthem.YetIHavenochoicebuttofight,becausewithout appropriate support, IGenuinelydo no know how we willsurvive.InOctober,wewilloseFamilyTaxBenefitsupport,AmandIAM facing thereality thatIMay need to workdespitealreadybeing stretchedbeyondcapacity.I honestlydonotknowhowwewillcontinuetomanagem financialemotionallyor physically.People livingwithdisability deservebetter.Theyareamong themost vulnerable members ofourcommunity,and the familiescaringfor them arecarryingenormous burdensbehindcloseddoors every single day.Myfamilyis onlyone story among thousands.Weanotthe“dregs ofsociety — aspublicdiscourse sometimes suggests.Wearedinary peopleworking tirelesslytokeep ourlovedones safe,supportedand cared for. Ithinkyouhaveallforgottenthatwearerpeopletoo,wbreath,whethesameasyou!Stop making decisions about us withoutus! I askthate youplease consider then human impact theseproposed changes wille have onfamilieslike mine.Sincerely,–redacted—