National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 170
From: Sent: Thursday, 21 May 2026 11:51 AM To: Subject: Proposed cuts
To whom it may concern,
I have had MS since 2008 and after accruing a significant level of permanent disability I realized I had no choice but to apply for the NDIS. I am very self-reliant, but after 15 years, it had come to a point where our family could no longer survive on our own.
Before accruing disability I was very confident and active in the community. But as my disabilities accrued my confidence went down and I became increasingly home-bound. I live rurally, so it is easy to become isolated.
Since accessing the NDIS I have been working with a psychologist to rebuild my confidence and sense of identity as a person with disability, with the hope I can rebuild some sort of social life.
Accessing the NDIS gave me hope; for the first time since getting MS the future looked a little less bleak. I felt like there was a chance I could navigate my future with a degenerative disease with a little more dignity and maybe even a touch of joy.
So hearing about the proposed cuts is absolutely terrifying. Cuts to capacity building would send me backward. I already don’t have enough in my CB budget to see a psychologist and physio fortnightly, so I have had to choose between the two. I do not want to decline and become a bigger burden. I feel like with these proposed cuts I could lose the only things that are giving me a chance to slow down progression.
As well, funding cuts to social and community participation will mean that when I reach the point where I feel confident enough to reestablish social networks, I will no longer have the means to make that happen.
What felt like a relatively safe and stable path forward now feels like it is completely at risk. I am terrified I will end up in some sort of facility, with an intolerable quality of life.
In relevant groups online I am hearing more and more talking about assisted death, and thinking about potential futures and the direction these changes are taking, I absolutely get it. This is absolutely tragic and a disgrace, and as a society I think we really need to ask ourselves if threatening the most vulnerable in our society is really the best way forward.
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