National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission Date: May 27th, 2026

Inquiry into the National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill

Privacy preference:

My submission should remain private.

About my adult son The parent describes their child as an autistic individual with intellectual disabilities diagnosed at age two; these conditions persist throughout adulthood; housing situation described where they live together within family home, specific challenges such as managing sensory input, emotional regulation & stress responses highlighted; also noted non-verbal communication difficulties leading significant distress due lack understanding which results concerning behaviors; affect on flexibility mentioned wherein changes routine or unexpected events can trigger major anxiety episodes; necessary support areas outlined including cooking/budgeting/medical appointments/transport/personal care; anxiety and depression levels high; current employment status detailed working supported hours per week volunteering three days weekly across four organizations monthly short-term respite arranged to prepare independently possible via Social Community Participation Supports; desired community integration emphasized requiring travel assistance task comprehension handling overload daily activities.

What this bill will mean for my 31 yo son?

The new functional capacity test (“Schedule Part Section”)

- Conflict of interest: As nominee under NDIS process may feel assessments designed limit his supports rather than accurately capture needs undermining trust in the process.

- Loss independence choice reduces participant control conflicts core principle “hoice and control’.
- Risk standardized one-size-fits-all approach.

The parent warns loss funding would result isolation increased concerns regression skills lifelong disability requires ongoing supports maintain current functioning, routine essential without it escalates anxiety dysregulation;community connection no other way safely participate self-esteem identity purpose beyond disability stop becoming housebound cutting quality life.