National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1715

From: A participant from Brisbane (anonymous)

Introduction

I am an NDIS participant living with myalgic encephalomyelitis (ME). I have been a participant for three years. I am primarily bedridden; when I can get out of bed, it is wheelchair-bound.I require continuous support for personal care,mobility,and accessing therapies and assistive technology. I live in a Brisbane area where services are limited.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1715

• NDIS funding is not discretionary “extras.” It’s often what keeps many from being hospitalized. • We don’t have backup families; suggesting this ignores those without local resources who need care at home due to work commitments, single status, etc., • Treatments aren’t one-size-fits-all: Some historically recommended ones can now be dangerous if forced on people; it risks severe harm.