National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1744

From: Sent: Tuesday, 19 May 2026 11:12 PM To: Community Affairs Committee (SEN) Subject: NDIS proposed cuts. Good evening, My name is [redacted]. My son,[ redacted],is an NDIS participant.HisN DISparticipant reference ist[redacted]He was born on[redacted] This email iss to inform you that[redacted]not justa number.Bornwith complex heart defect,hewas diagnosedDevelopmental Delay and HyperactivityinFebruary-1993 Ihad insisted staff Royal children’s Hospital Melbourne Septemberthat[redacted]suffered Acquired Brain Injury(ABI)during open or post-open Heart surgery.Myconcernswere dismissed.Diagnosed with Autism November all my concerns regarding right sided weakness lowmuscle tone abnormal gait blank episodes swept under carpet this diagnosis.We embarked intensive behavioural therapy program[redacted]July until FebruaryIn spite suspicion mild intellectual disability high school performed well bothacademically socially received WACE DecemberPostschool struggle In spite TAFE certificates tried ten years obtain mainstream position cafe restaurant hotel function centre catering company without success.He now loves job Alinea ascafe attendant However they loath extend his capabilitiesaccommodate ambition whichopen a cafe disadvantaged people believeAlineadoes not wish allow him moveAfter turned thirtyyears age comprehensive neurological workup showed ABI MRI old blood products frontal lobes cerebellum agreed occurred during after cardiac surgery toddlerHis respiratory specialist neurologist confirmedsleep apnoea direct consequence ofhis ABII hadreceived no early intervention stroke process also shown significant delays executivefunction includes social interaction problem solvingsequencing predicting extremely vulnerable due inability run would never be able flee assaultI have been engaged battle NDIS add secondarydiagnosis toAutism last two years case before Administrative ReviewTribunal do hold out much hope primarily because proposed cutsN DISHowever least issues.1

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1744 What would lose if he had his funding cut or removed-

• speech pathology for language growth, retention and social interaction • occupational therapy for fine motor skills assistance exercise physiology for his specialist gym programme physiotherapy for fitness support, his low muscle tone and right sided weakness carotid artery disease for ongoing orthotics due to his abnormal gait and past foot fractures support for keeping his unit clean and social outings such as visiting museums galleries, concerts markets relevant groups loss of Support Coordination Local Area Coordination continuing employment until he has further skills employment support give him abilities launch own cafe. I am too exhausted rage scream carry on nearly sixty five years old thirty-five years old All I want have a full independent happy Safe Life Can’t live this life if he’s removed NDIS. Thank you. Yours sincerely, parent and advocate.