National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission on behalf of my two sons, and who are NDIS participants. My wife,, and I are the parents of two adult sons who are participants in the NDIS: who is 27 years old and B
Both of our sons live with significant disability. C lives with spastic quadriplegic cerebral palsy, global developmental delay, epilepsy,incontinence and a mild intellectual disability.He has made great strides in walkingin recentyearsbut exceptfor his hydrotherapyphysiotherapya heis confined to awheelchairinhis day-to-daylife.Heneeds assistancewith all activitiesof daily livingincluding toileting,bathingmealsdressingtransportation.C [1em] C loves being out\ncommunitywherehechats everyonehemeets.EveryoneWarragulknows me!This repeatedseveral other communities that hewevisitsHeNumber supporterGippsland United Soccer Clubattends traininghas dinner players afterwards He tossed coin special matches always middleplayers circle when they sing team song victory Such moments priceless. Also paid reserved seating notNDIS funding wheelchair spacehim seat carer AAMI Park soccer rugby friends community away fromhisparents We had caseAAT about this few year ago because NDIA only funded for6 hours SCCP perday That might sound plenty but family was totally insufficient tribunal determinedsignificant increase warranted appropriately awarded C bothlive home reside regional community I am 75 years old is
The boys have very limited NDISfunding formal support daytoadayactivities. and provide huge amount informal support theboys webothhave various health issues high blood pressure cholesterol struggles vertigo Last week she in hospital knee replacement therefore manage needs of two adult sons alone added responsibility caring while recuperates also have a problem suffer migraines severe diverticular disease extensive osteoarthritishighcholesteroltwo leaking heart valves fitted pacemaker still ectopic hearts variablebloodpressure just over month will be having surgery three significantly blocked coronary arteriesalso has%blockedcarotidarteries which cause head disturbances It should obvious how difficult life parents and

National Disability Insurance Scheme Amendment

Securing the NDIS for Future Generations Bill 2026 Submission 1781

important it is for us to get a break from the boys. The current funding allows for this, as should. The day programs and weekend activities C participates everything he can engage with community gives him satisfying fulfilling life providing crucial respite for **and me – which ultimately results lower cost because he lives informal support. is very sociable gregarious person prefers being out about other people He cant go independently or socially without his disabilities Without current SCCP funding would stuck home ageing parents most His brother B able perform limited work at Coles but C cannot do anything similar extent disability This kind social isolation would incredibly deleterious impact mental health as did during COVID-19 pandemic also has spastic diplegia cerebral palsy psychological issues autistic traits physical difficulties dressing bathing difficulty forming relationships reading body language caused deep distress inconsolable anguish couple years ago psychologist recommended getting female carer roughly age take outings successful great well-being However not considered when plan constructed so much funding allocated since recommendation depleting accumulated funds earlier in plan doesnt provide benefit receives will be diminished level make less effective antithesis aims of NDIS legislation deeply concerned broad-brush approach that reduces hours proper consideration individual circumstances sons deserve having living family home proposed changes likely lead profound social isolation could unsustainable cared within similarly affected In addition if SCPP funding reduced by 50% across board means unless providers costs are also reduced (much needed reform) they more time placing additional demands on and myself ailing aged pensioners whose controlled needs boys have had no retirement In past year only three times impose extra burden us considering particular circumstances unjust; it is humane!