National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1796

To whom it may concern.

I am a 36 year old late diagnosed AuDHD person. I am what the NDIS considers ‘low support needs’. I would like to offer some insight into my conditions from my perspective for your consideration in this inquiry.

• A married homeowner,
• With a full-time job in corporate environment;
• Some pets & small group friends;
• Pay taxes; try contribute society when capacity allows. The NDIS was path looked down initially after diagnosis - smart but works quagmire can figure out! But process felt insurmountable – obvious? Document states explicit detail of deficiencies not low support means no need assistance yet culminated doom spiral asking for help. nDis saying you must be very specific about request and reason. saying difficult being specific as don’t know available options whole life scraped by, unsure possible load off could assist. told again needed specificity on ask why. frustrating never followed up often wondered if system bug or feature seen that work maintain relationships survived. Set ways accommodate myself advocate adjust learn improve quality helped personal cost realisation thrive considerable limitations goals abilities. as mentioned working big Australian corporation agreed mostly remote situation took significant self advocating admin struggle because corporations care neurodivergence disabilities anyone understands them constant dealing leaders management subtly coerce office ‘can we provide tools noise cancelling headphones’? already purchased tinted glasses headsets sensory devices regulate while at the office. Want people understand even with these tools

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1796

they do not get me to ‘normal’ –I still come home after an office day and am functionally useless for several hours;office days must be takeout nightbecause In cannot cook–In cant walkmy dogs,Icant maintain exerciseon those evenings ,ICant make plansorhave hobbies where they might fall ont hese nights. Withoutthe tools is even worse.I wouldgethomeand shut downentirely,notsleepingnot really awayjust blankin m ybedforan hourbecausemy body was so overwhelmed.Somedays ICouldnt grocery shopeventhedayafterano ffice day . Withourwithout th etools simplybeinginth eofficef orone d ay willmeanIdont sleep untilam thatnight-even though Ihavetowakeupah our anda halfearliertogettothead ficeandi’m exhausted.The ringing inme earsthespiralling anxietythestheer physicalityof havingtoprocessall ofthesesounds,lightsandin teractions mybrain witnessedthatday andreedsfilter.DuehavingEDS ittakesdaysformybodytorecover-my muscles tensearoundshaky foundationswhen I ams outsideo fhomy houseandan t makesm esoreleavesmel feelinglike ranamarathonthen on thewayh oomegotinafenderbend er when allI didtheday beforewas have same day everyone elsehad. Im terrified to advance my careerby looking foranother job role,becausewhile Ichave begrudging supportfrommy current work ,can Iguarantee Ill getitinanewrole?The ideaoeventryingtos starttha tprocessagain- while haveto learn anewjoband talktoo andgettoknownew peoplewithmysocial deficienciesis itselfexhausting. PriortobeendiagnosedamedicatedforthatwhichICanbeusedtoselfmedicate with alcohol -very frequently.Thankfullysince being medicatedandlearning tore gulatealcoholhasalmostno appeal tome,making me healthier.Also sincebeing medica tedworking from home Ihav beenabletolose40kgbecauseIchave hadthe time room energy anda capacityto focuson m yhealth . The government is seekingstrip funding f romth eNDIS-and wh ile understanditis amassive undertaking that therea lotof nuanceando pportunitiesfwasteIfear th atpeoplewho will beaffectedthemostarepeop lewhoneedhelp.Ihave reckonedwit hfact Iwill notgeemeaningful assistanceinthis life, thisisa level of personal grief Imwouldnt wish on anyone.And yetI still feelprivilegedanda luckyt hat IAMas capable asIAmwithout it. ThatdoesnotmeanthatIDont need assistanc.e IBelieve giving peopl ea ccess to helpw iththeir health a nd their disabilitiesactually thecheaperoption for them overnment.Theother copingmechanism savailable ton eu rodivergent individuals w illcause morestrain public healt ho rg anisations,w il causemore addictionandcrime related t otha ,wil ca use straino n resources because peoplecant affordtoprioritise theirhe alth- either monetarilyor justwithamountenergythey have. IBelievethatthenDISneedsbeexpanded,n otreduced.Evenifnotin me.For everyone like me.Andfor personICouldhav beenhadmental health assis tant in this country nothequag mireithavebeenforme ntirelife.