NDIA Accountability Project

This project is in DRAFT

Neurodivergent child's access to capacity building supports and impact on family (Family or carer experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1801

NDIS submission

What does the NDIS mean to me right now?

  • Access for my neurodivergent child to capacity building supports, to help them grow up to be the best version of themselves they can be.
  • Having trained professionals that my child has developed a rapport with over an extended period of time provide structure, care and support outside the home.
  • These same professionals liaise with my child’s school so ensure they get assistance needed to stay engaged and interested in learning.
  • Seeing changes due to professional supports funded through NDLS; family unable to afford such levels otherwise given current wages/costs.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1801

having to travel away from home to attend treatment, which also impacts schooling, ability to make money to work in order to help their person or themselves.

  • Not overlapping funding across different disabilities: Really? Do they think people can just switch off parts that don’t meet thresholds? What happened with holistic care—seeing whole persons instead of specific conditions?

Automating eligibility will cause big issues: When someone has needs fitting into neat boxes, do they forget about other aspects entirely when applying services day-to-day? How fair is this process where you need evidence costing thousands repeatedly over time again without support needed daily at home? Do neurotypical folks understand what application processes look like defending your own needs? I doubt them!

Am I satisfied changes explained enough: The government tries sneak through key points leaving out much affecting current and future participants: disability providers choice lost; right appeal gone carte blanche cut funds oversight ignored more.

Changes mean me family friends community?: Possibly watching child not access supports desperately needing grow function world job change income career life; family changing how do things depending on support provided child; other child missing opportunities due lack adult availability reliance informal supports lacking many; potentially loss freedom independence both inside outside the home relying others informally for NDIS supported reasons.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 1801

be able to do basic tasks that most take for granted, like going to the supermarket and doing dthe grocery shop, which they can currently do with the assistance of a support worker, thatfunding is currently provided for, but could be taken away.

◦ For our community, it is going to be a much bigger burden on an already overburdened health system.Ifpeople cannot besupported within their own homes.wheredo you thinktheywill end up? In thelhealth caresystem.Once there.iftheyare deemed unsafe togohome.theymust then waitfor assessments foreplacement.andthenwait somemore forsomewhere tobearailable.whichis very restricted.especially forgyounger person.Allthese changeswilloppentially removea participants abilityto functionasan individual.as aperson.Who has therighttosaytha tpersoncan’t goouttothe shops.toashow.onaholiday?Wouldyouthella non disabled personthattheycana’tdoanyofthesethings?

Iknowmoneyisonetobig reasonsforall thesechanges.butwhy cangovernment saytoa wheelchairuser(whoworksajobandearnswage) thenthey cantgoonatrip.because theyneed asupportworker towitthem,butsaynothingtononadisabled person (who hasthesamejobandearnsthem wage).Bothhavepaidforthetravel andtheir accommodationsfromtheir-wage.the wheelchairs userhasneeded tousprovided fundingto haveasa support workerwith themtofunction independently.NDISfundingispaying for thesupport worker.not teh holiday. Whyistegovernmentwantingtotreaddisabled peoplelike secondclass citizens.They’ll says they’re not, but it’s how ithfeels. You need extra help to be independent.sorry.costs too much.nocando.Areweheadingbackwards towardsthedayswhere theyinstitutionalisedpeople withdisabilities.tohide them away.Dontheseeandan don’tbeheard? That’snot right,anditisnotfair.Disabledpeopleshavejustasmuchrighttolivea“normal” lifeasanynoneelse.andthesescuts willmeanthatmanyarenotinabletodoso.