National Disability Insurance Scheme Amendment
Securing the NDIS for Future Generations Bill 2026 Submission 1832
Dear Committee Secretary, Another submission against the NDIS fund reduction. I am the parent of an autistic child; level I according to system tests which are limited design-wise). I’m exhausted working part-time hours balancing appointments because after-school care is not possible due to my child’s needs with NDIS already requiring significant parental responsibility unless you have experienced it cannot compare what this entails without going through confusing emotionally draining process if there was alternative support available must be up-and-running clear providing equal or greater before any cuts occur watched government works sure think relevant information make decision but questions avoided answers understood where wriggle words being used when justification laboured unclear alternatives sorted Removing support based on ‘level’ using unequal tests inappropriate ensure tests first can remove support need Problem historical baseline: Early autism research focused heavily white males Consequently classic definition tailored male-typical traits such intense overt fixations objects rigid systems masking camouflaging Autistic females and children color often develop sophisticated coping mechanisms hide mimic social difficulties blend in This camouflage frequently leads exhaustion rather immediate diagnosis also means teacher sees very different trusted parent Different Symptom Presentation: Autistic females present differently showing intense interests than withdrawal their special might appear more socially acceptable e.g. animals literature compared typical male fixation.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 1832
- Intersection of Race and Gender: racism, cultural differences in reporting behaviors, and unequal access to healthcare resources frequently delay or prevent thorough diagnostic evaluations for marginalized groups.
Finally, when costs are high, the focus instead needs to be on:
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Compliance: stop overcharging fraud; name shame providers; I looked cannot find clear info about compliance.*
Consider future costs due to unsupported highly functioning autistic individuals’ increased risk self-harm suicide. What these costs mean people/families/health departments/economy long-term? It makes Australia worse place live. Your job represent Aussies tenure generations. Every decision making affects many so can blur but one important Australian children families societies will pay price before decide sincerely consider current form information hold best Australians? It’s hard no from me. Thank taking time read this And if you have been tasked with note summary including your full question.
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