National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1853

What does the NDIS mean for you right now?

Right now, the NDIS is a lifeline for our family. I am a full-time carer to three children, including one child with severe needs and another with additional needs. The support we receive helps my children access therapies, build skills, participate in their community, and do things that many other families take for granted. Without the NDIS, we simply couldn’t afford the support they need.

How do you feel about the proposed changes to the NDIS Act?

I’m worried. There seems to be so much uncertainty, and as a parent and carer, that is scary. My children’s needs don’t disappear because rules change. The thought of losing supports or having to fight even harder to access them adds a lot of stress to an already challenging situation.

Do you feel these changes have been explained clearly enough?

No. I still don’t fully understand what the changes will mean for families like mine. There is a lot of information, but not a lot of clear answers about how everyday people will be affected. That uncertainty makes it difficult to plan for the future.

What would these changes mean for you, your family, friends, carers, or

community?

Any reduction in support would affect every part of our lives. My children rely on these supports to learn skills, regulate emotions, participate in activities, and work towards independence. As their primary carer, I am already stretched thin and experiencing carer burnout. If supports are reduced, the extra responsibility falls back onto families like ours, and there is only so much we can carry.

What would happen if your social and community supports were reduced or

removed?

My children already face challenges connecting with others and participating in the community. These supports help them build confidence, make connections, and feel included. Without them, they would become more isolated, miss out on important experiences, and have fewer opportunities to develop social skills and independence.

What would happen if your capacity building supports were reduced or

removed, or if you never had access to them in the first place?

Capacity building supports are some of the most important supports my children receive. They help them develop skills they need for everyday life and give them the best chance at becoming more independent in the future. Without these supports, my children would likely become more reliant on family support long-term. It would increase the pressure on me as their carer and limit their opportunities to reach their potential.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1853

For our family, the NDIS isn’t about extras. It’s about giving my children the support they need to participate in everyday life and have opportunities that other children are often able to access without thinking about it. The supports we receive don’t just help my children, they help our entire family function.