National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1853

What does the NDIS mean for you right now?

Right now, the NDIS is a lifeline for our family. I am a full-time carer to three children, including one child with severe needs and another with additional needs. The support we receive helps my children access therapies, build skills, participate in t heir community, and do things that many other families take for granted. Without the NDIS, we simply couldn’t afford the support they need.

How do you feel about the proposed changes to the NDIS Act?

I’m worried. There seems to be so much uncertainty, and as a parent and carer, that\nis scary.My children’s needs don’t disappear because rules change.The thought of
elosing supports or having to fight even harder to access them adds a lot of stress to an already challenging situation.

Do you feel these changes have been explained clearly enough?\No.I still don’t fully understand what the changes will mean for families like mine.There

is \a lot o f information but not al ot clear answers ab out how everyday people w ill b e affected.That un certainty makes it difficult t o plan fo r th e future.

What would these changes mean for you,your fam ily,friends ,carers,o rc om munity ?Any reduction i n suppo rt wo uld affect every partof our lives.M y ch il dren rely onthese su pportsto learn skil ls,r egulate emotions,p articipatein activities,and worktowards independence.As their primary caret er,I amalready stretched thinandexperiencing carer burnout.Ifsupports are reduced,the extra responsibility fallsback ontofamilieslike ours,a nd there is onlyso mu c h we can carry .

######Whatwould happen if your social anda communitysupp ortsw ere reduc edor removed? Mychildrenalread yfacechallengesconnectingwith others andpartici pating inthecomm unity.Thes esuppor ts helpthembuildconfidence,makeconnections, a ndfe l included.W ithou them theyw ou ldbecome more isolated,m issoutonimportant experiences a ndhavefeweropportunities to developsocial skills an dindependence.\n

Wh atwo uldh appenifyourcapacitybuilding supportswere reduce do ra orremoved,orfyouneverhadaccesstothe min the first place?Capacity building support sare some of th e most importantsupport my childrenreceive.Theyhelpthemdevelopskillstheyneedforeverydaylifeanda give thenbest chanceat becomingmore independentinthefuture.Withouth these suppo rts ,my child ren wouldlikely become morere li able on family su pport long-term.It wo uld increase t he pressure o n me astheir careran dlimit their opportunities tore acht heir potential.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1853 For our family, the NDIS isn’t about extras. It’s about giving my children the support they need to participate in everyday life and have opportunities that other children\nare often able to access without thinking about it. The supports we receive don’t just
help my children, they help our entire family function.