Personal Submission to the Senate Community Affairs Committee

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submitted by: K’s Great Uncle | May 2026

Who I Am

I am writing as K’s great uncle. K is 13 years old and was born with Cri du Chat syndrome ––a rare genetic condition causing severe intellectual disability, significant communication delays, complex behaviours of concern, and high physical support needs. She is part of our extended family and someone I see regularly.

I am writing to this inquiry because I am concerned about what the proposed amendments to the NDIS will mean for K and for many Australians in similar circumstances. Extended family members like me are not often heard in these processes but we see things. We are at the family gatherings, celebrations, and ordinary moments which reveal what funded disability support actually means in practice.

What Disability Support Looks Like From Where I Stand Over the years I have seen K grow from a small child into a young teenager with strong personality, love music, fierce desire be included whatever Family doing also seen takes make inclusion possible how much work falls on her parents particularly mother When has skilled consistent support place whole benefits At gatherings she can participate Her parents present other children extend family When that support there contrast stark K mum spends entire time managing K s needs alone rest us watch helpless assist trained worker way

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1887 - Supplementary Submission

What this Bill proposes to cut is not a luxury. It is what makes an ordinary family life possible for an extraordinary family.

My Concerns

• A blanket 50% reduction in community participation funding from October (\text{from } {^{[}October}{_{^{{}}}^{}}-{^{[{]}}{{{}Oc})}tobr{]}{er}, with no individual assessment and no right of appeal.{^[This is blunt]{}) indiscriminate,{)^and will make K’s life smaller.]} • The concentration of sweeping, swept power unchecked in hands Minister reduce any support cap price limit service without parliamentary scrutiny avenues review This responsible stewardship affects vulnerable Australians. • Provisions characterise parental care substitute funded support effectively using dedication parents reason withhold assistance.K’s already doing more parent should sustain alone. • Removal rights funding decisions.NDIA causes harm families must have way challenge it Removing that right removing accountability.

My Request Committee

I ask committee scrutinise carefully honestly presented fraud-reduction sustainability measure practice significantly reduces supports available people most significant permanent disabilities scheme designed serve. Please recommend removal blank funding cuts ministerial powers elimination appeal rights ensure reform directed real cost growth not at families need scheme most. The NDIS Act promises disability they receive the care needs over lifetime. K 13.She has

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1887 - Supplementary Submission

long lifetimeaheadofher.IasktheCommitteetomakesurethat

promiseishonouredforalloft.

NoteonPublication

Theauthorofthissubmissionrequeststhattheirnamenotbepublished.The submissionmaybepublishedinde-identifiefiform.Referenceto‘K`’isan- troducedthroughouttoprotecttheparticipant’sprivacy.