National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1927

I am writing as a friend of a family whose teenage child lives with significant motor and communication

disability that affects her mobility, communication independence every aspect life.

Up until recently NDIS provided this family stability quality while still see immense strain involved caring complex needs also seen positive funded supports had community accessing therapy planning sustainable after school plan future child.

The current proposed changes caused huge stress My anxious exhausted overwhelmed She has taken personal leave work simply manage an review process deeply worried about futures entire family.

These would devastating consequences reduction funds likely mean reduced essential care training upskilling new workers constantly need guidance support young person due nature disability staff turnover frequent constant guidance needed safely support young person without appropriate how expected get time toilet dressing feeding transporting morning Not mention happens when finishes school?

Proposed removal social or community supports would devastate impact young persons quality she currently attends youth groups birthday parties events peers own age These experiences incredibly important wellbeing identity inclusion in communities like teenagers deserve opportunities spend independently parents always present At same mother deserves maintain friendships relationships well being Without funding families pushed exhaustion isolation.

I extremely concerned proposals relating to way defines permanence Disability under these participants may be required try all available treatments before considered eligible for even those unaffordable unavailable regional Queensland.

Families already financial emotional pressure pay expensive treatments prove eligibility And can treatment consider “available” when cannot realistically access it regions areas not able practically do so?

These propose changes reflect realities faced people with disabilities and their create fear instability uncertainty navigate enormous daily challenges. I urge Senate Committee carefully consideration real human impacts of change will have on individuals carers particularly living regionally communitie