National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1964

To whom it may concern,

I am writing regarding the proposed changes to the NDIS as someone who relies on it both for myself and for my child.

I am a mother of two boys living with both mental illness and chronic pain that, in the words of my doctors, is “too complex to help me live a normal life.” The NDIS is confusing, difficult to navigate, and at times incredibly frustrating. Like most systems, it has flaws. But despite those flaws, it has also been life-changing.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1964

These supports do not make me “less disabled.” They make it possible for me to remain a mother. My child also receives therapies that help him live his best life and give him the tools to navigate a world not built for him. These therapists and support workers are invaluable, and even now they already seem overwhelmed by the growing number of children needing help. I cannot imagine what would happen to families like mine if these supports were suddenly removed. Over the last six years I have also been navigating the public healthcare system. While I am incredibly grateful for Australia’s public health system, it is already struggling under the weight demand. lwaited two and half years to see a gynaecologist, then another two years for endometriosis surgery.I waitedtwoyearsseepain specialist.Thesdelaysarenotrare-theyarerality. If people with mental illnessandneurodivergencearemovedinto council-runor alternative community systems, hown canthe government guaranteethey will nofall throughthelcracksthesamewaypeople alreadyst inpublic dental carementalhealthcare,and other overstretched services? Manycouncil-runservicesalreadyhaveemergency waitlistslasting monthsgeneralwailstilastin yearssystemstrugglingbeforemorepressureisadded.NDIS participants not peopledetting prices.Wenot choose be disabled.The only thing we truly get choosewho allow into our homesupport us.Manyparticipantsmyselfincludedhavedout-of-pocketservicesclaimed reimbursement laterbecause moment providers hear “NDIS”prices increase.Cleaninggardening physiotherapyhydrotherapycosts rise becausesystemallowedit happen.Please do ntpunish participant failures of sys around them.Pleasetake away my independence or ability spend limited energy where belongs-with children.And please take supports helping son learn live world survive it.Sincerely