Autism diagnosis and OT support costs impacting family finances (Family or carer experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1966

Dear Senate Committee,

I am writing regarding the Bill to change the NDIS.

We are not currently on the NDIS. Whilst my autistic level 2 + ADHD son would be potentially eligible, I was unable to cope with the paperwork: bureaucratic maze (also suspected AuDHD).. I made one call about it after he was diagnosed, and could not progress. I also consciously chose not to ‘medicalise’ his conditions at this time.

What is important, though, is for us to know that the safety net is there. He’s a young teen. At some point, like me, we will need more support due to mental health shifts in him as well; additionally worrying over whether he can meet self-care needs down track which exercise physiologist support might help but financially out of reach yet because comorbid connective tissue/dyspraxia issue.

Several years ago our family nearly bankrupting paying OT Support before autism diagnosis just basic adjustments school cost alone $5k+.

Taking pay cut from postgrad qualified professional role supporting him. And always mothers who pay price additional support needed.

What bill does:

  • unequally impacts women carers;
  • unequally impact women disability pushing thru needs harder diagnose almost,
  • undermines separation powers parking substantive operative detail participant welfare outside legislation affecting,
  • removes humans decision making process degree echoing robodebt immoral community wide life altering impact little control or transparency via black box AI model’.
  • removes personalisation, treating disabled people like widgets of production, by not adjusting care.

  • does not allow for or capture the fluctuating nature of many disabilities with a ‘one session’ assessment

  • does not respect or prioritise the voices of qualified professionals in the care picture, instead overriding medical opinion with administrative process with opaque rules.

*how can the onus be on disabled people to try other treatments, when these have not been defined? Is this undermining choice around medical care or a subtle eugenics?

I think though what is even worse with this bill is the way government has gone about it,taking PR advice to slam disabledand particularly autisticpeople as bludgersas sponging offthe public purse.Weare justa hard working middle class familywithakidwitdisabilitiestryingtogetby.Weden’tneedthestigmaastwellWe’re tired.I’vebeenhospitalisedtwiceewithmental health issuesfromcarerburnout.Isusppect there willbeanotherofthesetimesometimeinmyfuture.The impacts are real.Please,in consideringthisbill.ask;

  • IsitappropriateinanmodernsocietytocentoreducingnumbersNDIS support? Why? Isthatreallytheproblem? *Morally howcanndissupportbeingactivelyremovednow.withtheadulternative foundational supportsnotexisting anddefinitelynotinplace? dosesthebillaallowasilencicreepsintheseparationofof powers,votingonsomethingw ithinsufficientoperative detail *dosedethebilereproduceany ofissuesrobodebt? Isterobustproofaboutthe guardrailsthatacouldprotectagainstarobodebtlikeoutcomeforapplicantsWhatis thisthere whereisin beingcommunicated * why isthelgovernmentspendingmore onlegalfees FIGHTING ndisp plansoveractual realsupporthan genuine reform - anda why is this a valid choice ? Therearemang families thatwillmake orbreakbasedonthisis billl. Whenyouaretaking about society’smostvulnerable peoplearel yingonyourself,onthiscommittee,tobe

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1966

their voice. Please question, honour the voices,andpleaseapproachthiswiththe gavityitdeserves.