National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 1967

To the Community Affairs Legislation Committee, Thank you for the opportunity to submit about the National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026.

I am an autistic adult not on the NDIS who is also a carer of three autistic teenagers with significant support needs who are NDIS participants.

I do not support the changes proposed in this bill. I am concerned about the loss of supports, increased administration burdens and loss of community participation.

My children’s father died several years ago meaning I was left a widow supporting three grieving autistic children alone. Children who are grieving and traumatised who are also disabled have different support needs than children who are grieving who are not disabled. Neurotypical children re-process grief and trauma at every developmental stage as their understanding changes. This re-processing is complicated for neurodiverse children as their development is not typical, so my children have needed immense, coordinated and intertwined supports to build their capacity to function. NDIS supports have been life changing for my children, and the choice and control of finding appropriate therapies for them has been essential. Just as not all children are the same, not all autistic children are the same, nor do they all have the same life experiences. It is essential that supports are appropriate for the individual and their circumstances and the people directly affected by his –the participants themselves, and their carers–are the best placed to inform this.Iam deeply concernedaboutthelossofchoiceandacontrol.

I canalso tell you exactly what wouldhave happened without thesesupports orwhat will happen if theircapacity building supports arereducedor removed becauseofofthesechanges in the bill.Thisisbecauseit alreadyhappenedoncetoonemychildrenWhenmysonwasin year 6 I knew hewould struggle with transition high school.He doesnot cope wellwith changesto his routineandsupports.Hiscapacitybuilding supportswere insufficient first plan He was diagnosed granted accessNDIS few months after other two childrenfor no reasonthat could understand provided less than half eachother twowasprovided My childraneall havethesame disabilities very similar levels needsthe only differencecould see timing After severalmonths tiny amount funding hadbeengranted close exhausted requested review However internalreview capacitybuildingsupportsfurther reduced processhad topay many additional reports outlining extent of whathissupport needs were am not even convinced NDIA read them took NDIAt AAT exhausting precious month remaining year wasted while burnt out fighting needed And time my son inappropriate supported prepare himtransition Son grant Legal Aid lawyerafterthis happened offered settle settlement agreed provide everything initially request reported necessary dont know how much time money spent salaries barristersfighting this confidently say more settledamount.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission: Submission No.

But by then it was too late and so much additional damage had been done; it was already too month after he started year7 Because those wasted months fighting with NDIA, had already started high school but were still coping precisely because he wasn’t adequately prepared for transition The consequences are daily phone calls from his school for six months as he absconded self harmed threatened harm others All signs that he’s not coping transitioning into highschool exactly what said would happen if he isn’t appropriately supported capacity building supports School not equipped cope him insist come collect him This huge detrimental impact on my employment ability work family Widow three autistic children nearby Would loved informal or other supports simply don’t exist Now has appropriate capacity-building supports doing better each new set teachers routine requires substantial supports manage change If cut will be back inadequate support Not bad kid disability makes these transitions difficult Getting much better support afraid of happening again Social community supports kids have access incredibly helpful With them able to specialist disability program learn social skills build friendships like them Have existed place where they aren’t weird everyone else just like them all supported best version themselves Isn this want people society Aspire participate part our community Has inherent value lives whole without such a support in place If cuts individual lives changed entire society Don’t live world disabled deemed less worthy need supported Participating should right every one I do NDIS lost its social licence When hear stories individuals who need support believe the supports provided Kind we should look more money pay options Can balance budget backs disabled people Can good society by cutting essential supports most vulnerable people Society why oppose changes bill Thank you opportunity make submission.