National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2159

Submission to the Senate Inquiry into the NDIS Future Generations Bill 2026

I am writing as both a parent of a Level 2 autistic teenager and a person living with Multiple Sclerosis (MS). I appreciate the importance of ensuring the long-term sustainability of the NDIS; however, I am concerned about proposals that place too much emphasis on narrow assessments of “functional capacity” when determining disability support needs.

For many people with progressive or variable disabilities, functional capacity is not fixed or consistent. Conditions such as MS can fluctuate significantly from day to day and may deteriorate over time. A person may appear capable during a short assessment period while still experiencing substantial barriers to daily life, employment, parenting, and community participation.

Similarly, autism support needs can vary greatly depending on environment, stress, sensory demands, and life stage. A functional snapshot does not always capture the ongoing support required to maintain stability, wellbeing, and participation.

I respectfully ask the Committee to ensure that the legislation recognises the lived reality of progressive, episodic, and variable disabilities. Assessment processes should consider long-term impacts, unpredictability, cumulative fatigue, and the additional burden placed on families and carers.

The NDIS was designed to support Australians with disability to live with dignity, independence, and inclusion. I hope the final legislation reflects these principles and does not unintentionally exclude people whose disabilities do not fit into narrow functional categories.

Thank you for considering my submission.