National Disability Insurance Scheme Amendment

Securing the NDIS for Future Generations Bill 2026 Submission 2160

OFFICIAL: Sensitive - Health Information My name is Stella Di Laudo, I live in North Bondi NSW, and my sister Georgia Di Laudo has Cri du Chat syndrome. Georgia is a NDIS participant. Her NDIS plan helps her maintain social connectedness, gain living skills, enable meaningful life through various activities such as attending therapy appointments when needed. Georgia stays on top of household chores each day thanks to help provided by support worker who also assists: in weekly exercise programs; doing home exercises;and participating regularlyincommunity walkingprogramsas well other enjoyableactivities she enjoys.Geoagia’slifehasbecomeenrichedthroughtheNDIS.Shehassblossomedintoanengagingyoungwomanwithmoreconfidencebecauseofit.The transition from schooltoadultlifewasanotableperiodfor young people witheCriduChatsyndromefamilies.Theproposed amendments tonoise would undermine supports that makeameaningful adult lifepossible.I am very concerned about proposed5% cuttosocial community participation funding.For young adults with Cri du Chat syndromesocial and community participationfundingisnotdiscretionary.It funds structureddayactivitiessupportiveemploymentprogramsthatfillhourspreviouslyoccupiedbyschool-andthat are critical for preventing regression isolation crisis supporting good lives valued members our communities GeorgiacurrentlyautomaticaccessNDSIperson diagnosed genetic condition.Proposalfunctional capacity reassessmentallparticipantsfrom 208onwardscreatesrealuncertainty.Cri du Chatsyndromepermanentwill not improve Requiringreassessmentwithoutclearprotectionspeople established lifelong conditionsunnecessary disruptive potentially harmful Iamworriedthecuts will directly impact Georgia’s physical mental wellbeing negative way know need stayhome more worried lose valuable social connections throughsocialgroupslikeStellaexperiences asGeorgiastrugglesto meet maintain friendships independently. Worried increased strain stepmother Robyn Di Laudo sister Jaime Di Laudo already under pressure have responsibility Georgia fact they lost essential respite currently asking please remove or amend section34A prevent blanket socialandcommunityparticipationcuts without individual assessment Asking ensureyoungadults post school transition protected from funding cuts leave them day activities access reallyconcerned these funding cuts family stressstrain living adult disability OFFICIAL: Sensitive - Health Information

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2160 OFFICIAL: Sensitive - Health Information

Yours sincerely, Stella Di Laudo North Bondi NSW I am happy for my name to be published with this submission