National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 222
Senate inquiry: National Disability Insurance Scheme Amendments (
Securing the NDIS for Future Generations) Bill 2026 Submission Friday 22nd May 2026 I have three sons, two have Down syndromeand intellectual delay,the third hasa permanent brain injury. TheNationalDisabilityInsurance schemehas providedthemwithregular therapy anda ssistance [tab]dailyliving support[tab][tab]community access,splints ,orthoticsandothers . So let’s addressthe Proposed changesto thenNDIS “The governmentwill introduce significantchanges tot socialanda nd community participationfundingtoreduce spending inthis areaan d change how supportsare delivered.”I thinkthekey messagehereis not about “howsupports willbedelivered”but“ reducespending ” Wehave had to fight every step oftheway toe nsure our boys receive what isthe fundamentally their human right.Including: Accessibility : People withdisabilit y areentitled tequal accessto publicspaces,transportationeducationtechnology andinformation. RighttoparticipationPeople w ith disability havethe righ t top articipate incivilpoliticalcultural an dsocial life onane qual basis wit h others.Reduce Spending by:taking awayhuman rights Where a plannersees fitallocate3 hoursawe ek communitya ccesstoa1 year oldknowing at least one hour wil be taking upwit travel.
- Require tighter assessmentof reasonable ana necessary suppor tsfor both newand existing participants(tobeprogressively implementedfrom 1 February207). “Tighter Assessment as if it isn’t hard enoughtot getnecessary funding,this Billw ill makeit more difficult.Planners who ar etrained understand the needs o f person livingwith Down syndromeby comparing them wi th childwi th Autism? (lived experience)Assessorswhoar erudea nd intimidatingwhorelishbullyingtacticsisthistrainingthey
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 222
undergo? It’s seems unbelievable that apart from one assessor, they’re all trained this way. I have personally experienced this and been chastised by planners, saying “ I won’t fund that“ and having three children with disabilities was“your choice,“And checking in? Simply more reason to harass,bully and intimidatethe parent/carer.As early as last week Ireceived another unexpectedNDIS phone call,the tonewas harshwith long intimidating pausesasifIm on trial.Mythree sons,needsupportto engageinthecommunity safely.Yes thistwill be drastically reduced if thisBill succeeds.They wilbe stripped of their righttolead inclusive livesthat mirror same age peers.What kindof society chooses who gets toliveanormallife? And wholiable when this newBil fails meet existing needs oftollivingwedisabilities.More casesfront Tribunal,more tax payerspayingthen DIS private litigation lawyers?
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 222 As a primary Carer I really don’t need the additional stress from the “trained assessor”.
- Support coordination: A similar approach is expected to apply for support coordination, where participants will choose support coordinators from a government-vetted panel from July 2028. I will no longer be permitted to engage with a support co ordinator who understands the dynamics of living with three people who have significant disabilities. Who understands the family dynamics, their individual characteristics, their life threatening health risks. The type of.services that work best for them and where to find them and overall reliable support when.engaging with service providers.Because“a simple approach”isexpectedAgainwhoisliablewhenthiswatered downapproachharmsmychildren?What happenedtoaclient’srighttochoose?”TheDisabilityJudgementmovementarguethattrueinclusionrequiresatransformationofhow.society distributes resourcesanddefinesvalue.”Not what society takes away.Perhaps iftheBilltookintoconsideration.Disability human rights and nodoubteincreasethen Tribunal hearings it may “reduce spending”.whichwillbeupwards ofthel million dollarsit hasallegedlyspent inone year goingtotribunal , nottomention possibliliabiltcostsdueto death/ injuryfrotnegligence.