National Disability Insurance Scheme Amendment Submission

Introduction and Context

Thank you for the opportunity to provide a submission to this inquiry.

The Power of Early Intervention: What the NDIS Makes Possible

Because of access to the NDIS, your child has been able to receive consistent physiotherapy from their earliest months. The practical impact cannot be overstated: as they reach developmental milestones every month improves muscle tone learning head soon speech pathology will assist communication feeding adaptive equipment needed ensure safe engagement environment. NDIS equitably starts life foundational scaffolding growth learning eventual thriving member society best gives your child.

Key Concerns Regarding the Proposed Bill

Risk in “reasonably necessary” supports eligibility concern deepened because daughter’s condition permanently needs therapy.

National Disability Insurance Scheme Amendment Bill Submission

placing stricter functional capacity hurdles on early intervention will jeopardise therapy she relies upon. For infants like my daughter who have Down Syndrome therapeutic interventions aren’t luxuries; they’re critical medical necessities for development during her most crucial brain growth period any changes which create bureaucratic delays excessive reassessments or narrow what NDIS funds risks interrupting her care at this pivotal stage in her life.

Shifting Burden Unpaid Carers Families Raising a child significantly delayed requires immense emotional physical financial energy I’m concerned aspects place greater expectations families unpaid carers absorb support roles.

Families already doing everything possible without NDLS funding our family simply could not afford private costs ongoing physiotherapy occupational therapy speech pathology specialized equipment If scheme reduces funding assuming families can pick up slack it’ll price out essential care deserving children like mine.

What Committee Must Understand: Impact Village Policymakers those disability lived experience miss paper is never just affects single person It impacts entire village when supported by NDIS parents siblings remain stable cutting funding reducing access to equipment making system harder navigate doesn’t save money long term instead sets child fail infancy causing family village crumble under weight of financial stress exhaustion legislative framework should make lives easier, not harder.

Protect Early Intervention Guarantee that children age 9 diagnosed permanent genetic conditions (such as Down syndrome) completely exempted restrictive definitions reasonable necessary might limit core pediatric therapies Physio OT Speech.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2241

Acknowledge Family Capacity: Ensure that any assessment of “informal supports” explicitly recognisesthephysical,emotional,andfinanciallimitsofparents,enablingtheBillnottoforceunpaidcarertosoabsorbspecializedtherapeuticroles.
Simplify,Don’tComplicate: EnsuresthattheadministrationofthisBilffocusesoncuttingredtapeforfamiliesmanaginglifelongdiagnoses,ratherthancreatingcomplexreassessmentcyclesthatacauseunnecessaryanxiety.

ThankyoufortakingthetimetoreadmysubmissionandforlisteningtolfamiliesthorelyonthenNDISEverysingleday.

Sincerely,

AngleVale,SouthAustralia