National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2246

To whom it may concern,

Background: Repeated rejections despite chronic conditions.

I applied twice unsuccessfully for access under the NDIS due primarily living with ME/CFS Long COVID PTSD which significantly limit ability manage daily independently. Currently receive DSSP granted easily contrast stark confusing discouraging experience applying NDIS.

Each time application rejected technical faults found letters from treating doctor psychologist professionals know best process opaque difficult navigate never clear sense what actually satisfy requirements many people complex fluctuating poorly understood find themselves exactly position sick enough qualify income support unable higher less transparent bar set NDIA.

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2246

In closing

I cannot rely on family and friends to fill the gap left by the absence of formal support. They have t heir o wn j obs , t he ir ow n l i ves, and th eir ov en li mits . T h e inform al suppo rt netw ork that p ol icy somet imes a ssum es w ill c at ch peopl e lik e me is si mpl y no t r eli abl e su bstit ute fo r fu nd ed, c onsistent ca re.

I am asking the committee to consider what these changes mean for people wh o are already ou ts ide ot her N D I S lo ok ing in -people wh o ar e g uin eu ly di sc abl e, who ha ve al redy d one ev eryth ing as ked oi f them an d ho se st il being tu rn aw ay.T hi ten tin gi ng te ne fin it ionof permanence wi ll not redu ce teh nu mb er oh pl ens wh o need supp ort.It wil only reduce thee num berohplenswhocanaccessthi ti.