National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 2289
Submission to the Senate Inquiry into the new NDIS Bill
The NDIS participant I care for and advocate for is my 21 year old son,who lives with a permanent and significant disability and high,complex support needs.
He requires one to one support to do the most basic daily tasks and to participate and engage in meaningful activities. He would not be able to go out into the community and do simple things that most typically functioning people take for granted. He cannot be left at home alone.
Without the level of supports we currently have in place,he would not leave the house and he would become socially isolated and regress even further.
I would also need to give up work completely to care for him,resulting in increased isolation for me. It would also have a negative impact on my quality of life,put further strain on family relationships and take away my ability to contribute financially and retain my identity as someone other than a carer.
My son did not choose to have a disability. Having dignity and quality of life are not luxuries.
If the proposed changes to the NDIS are enacted I am deeply concerned about how the future will look for my son and his quality of life.
I urge you to listen carefully to the real people who will potentially be impacted by these proposed changes.