National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 2335
Submission to the Government’s NDIS Inquiry
I am the parent and full-time carer of my adult daughter, who has a formal diagnosis
of permanent and complex disabilities.
My daughter lives in our family home and requires 24-hour one-on-one support to
keep her safe and ensure her quality of life is effectively maintained.
The NDIS funding my daughter receives is both necessary and essential. Without it,
she would be permanently housebound and unable to volunteer and develop her life
skills without her dedicated support workers.
Her NDIS core funding pays for 23 hours/week of daily living support and social and
community inclusion. This funding allows my daughter to gain a level of supported
independence away from me, her mother, and her full-time carer.
The NDIS funding she receives for therapy services is also essential to maintaining
her quality of life.
The proposed changes to the NDIS Act have created considerable fear and anxiety
for my daughter and me.
The proposed changes have not been explained clearly enough. The blunt reasons
given for the proposed changes feel discriminatory, potentially extremely harmful,
rushed through, and short-sighted.
It will be devastating for my daughter and our family if these changes are
implemented. My daughter would be unable to continue volunteering or building her
life skills in the community without the support workers her current NDIS funding
provides.
It would also be difficult for me, as her aging carer, to provide the level of personal
care and support she needs on daily basis, without the small amount of respite her
NDIS funding currently makes possible.
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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026 Submission 2335
Submission to the Government’s NDIS Inquiry, cont’d.
The NDIS funding my daughter receives has provided the essential and necessary
supports she needs to live a safe and inclusive life at home and within her
community.
Without the NDIS funding she currently receives, the potential harms to her lived
experience would be exponential.
It would also put enormous pressure on me, her full-time carer, to provide continuous
24-hour one-on-one care for my daughter if the NDIS reduces her funding. This
situation would be detrimental to us both and unsustainable as I get older.
Thank you for taking the time to read and consider our concerns.
Yours sincerely,
A full-time carer and NDIS Nominee for my adult daughter.
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