National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2344

I am a 34-year-old resident of Whittlesea within the McEwen and Northern Victoria Electorates.

I am writing to express that I oppose any and all cuts to the NDIS.

About Me

I live with multiple chronic illnesses and disabilities, including Idiopathic Intracranial Hypertension, a rare and debilitating neurological condition that causes severe headaches, fatigue, neck and shoulder pain, and significant functional impairment. I also live with Endometriosis and Severe Adenomyosis, which have caused chronic pelvic pain and pelvic myalgia, alongside ADHD and Autism. These conditions affect every aspect of my daily life. I experience ongoing debilitating pain, exhaustion, fatigued, post exertion malaise, reduced mobility, and difficulty completing basic household and self-care tasks. During severe flare-ups, even simple activities such as bending down to do laundry, hanging clothes, brushing my hair, maintaining my garden, or preparing meals can become overwhelming or physically impossible.

As it stands. I would greatly benefit from the NDIS. However for many reasons I am currently unable to access this incredible support service. I know that getting on the NDIS is already challenging and I know that I would not be approved.

My Deterioration of capacity

Recently, as my condition has deteriorated further and knowing it was very unlikely for me to be approved as a participant of the NDIS. I attempted to access Home and Community Care (HACC) support through Whittlesea council because I have no access to any formal assistance at all. However, I was informed there was no current availability. This was deeply distressing because HACC is one of the only realistic support pathways available to me. Despite the severity of my chronic illness, disabilities and the impact they have on my functioning. I was unable to access the low cost support through HACC-PYP. This loss was absolutely devastating for me. I was struggling with hygiene, unable to maintain and clean my property and often had to resort to the kindness of friends or paying exhorbidant amounts for help from Airtasker or my cleaner.

Disabled people and also those living with severe chronic illness are already falling through the cracks. Many of us are too disabled to cope without assistance, but not considered “disabled or sick enough” to qualify for the NDIS. At the same time, community-based services such as HACC are under-resourced and unavailable to many people who desperately need them. I was told by the social worker I had sent out to my house through HACC-PYP that I would essentially need to be on palliative care. I should not need to be actively dying to have access to help so I can keep my dignity. For the last 4 years my quality of life has severely deteriorated and I often find myself begging for help more often than I care to admit.

National Disability Insurance Scheme Amendment (Securing the NDS for Future Generations) Bill 2026

Submission 2344

The consequences of no supports

These changes will have devastating consequences for people like me who are already struggling to survive without adequate support, by making it harder for us to access support. but it will also materially impact freedisabled people who are currently on the NDIS. In fact I have grave fears for the well-being of anyone who had their NDIS funding cut or drastically reduced. I believe that their will be deaths and suicides as a result of the cuts. The blood will be on the Australian Governments hands.

On social media, people often talk about bedrotting as a joke. But for disabled and chronically ill people. It isn’t a joke. When i experience a flare. Laundry and rubbish build up around me. Often accumulating smells, mould and unwashed dishes all around me. Walking a few steps is total agony. I also know that this is my life now. So i have learnt to accept that my flares will turn me into an unwashed, unhygenic freak that doesn’t leave my bed other than to go to the toilet. There is a special place in hell for people who think we are undeserving of support. Nobody should ever have to live in those conditions and thats why supports like the NDIS and HACC-PYP are so important. Without these supports. People like myself will bedrot, live in squalor or struggle with daily self care tasks. All because the government thinks its too expensive and that we should just suffer in silence instead.

I know that I don’t have it the hardest. But I can see how someone who is doing it harder may decide to end their life as a result of having to live like that if their NDIS funding was cut or they were denied access to funding. This is the very real threat that the cuts have. People may choose to end their life as a result of it, just like what happened with the robodebt scandal.

Why everyone should say no to NDS cuts

Reducing disability supports will not reduce need. It will simply force more disabled people, like myself into crisis, isolation, worsening health and severe poverty. Without practical assistance, people are left unable to maintain their homes, care for themselves properly, participate in their communities, or preserve their dignity and independence. As a result of these cuts. Many of us will rot. Alone, in pain, no access to support and help. It will definitely lead to mass deaths of participants who have had their plans cut. The Australian Government needs to do better

My asks for the Australian Government

• Absolutely no cuts to the NDIS
• Additional funding to programs like HACC-PYP for people who need less or low cost support
• Improve access for people living with permanent and lifelong chronic illnesses who desperately need access to the NDIS

•     WITH YOUR NDIS CUTS