National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2344
I am a 34-year-old resident of Whittlesea within the McEwen and Northern Victoria Electorates.
About Me
I live with multiple chronic illnesses and disabilities, including Idiopathic Intracranial Hypertension, which is an extremely debilitating neurological condition causing severe headaches, fatigue, neck pain, shoulder pain, significant functional impairment; Endometriosis; difficult pelvic conditions like Adenomyosis alongside ADHD & Autism affecting every aspect everyday living experience ongoing debilitative pain exhaustion fatigue post exertion malaise reduced mobility difficulty completing basic household self-care tasks During severe flare-ups even simple activities such as bending down do laundry hanging clothes brushing hair maintaining garden preparing meals can become overwhelming or physically impossible As it stands would greatly benefit from NDIs However many reasons currently unable access incredible support service know getting on NDI already challenging not approved My Deterioration capacity Recently my condition has deteriorated further knowing unlikely be participant in NDS attempted to Home Community Care HACC support through Whitlease council because have no formal assistance at all informed there was current availability deeply distressing because HACCS only realistic pathway available me severity chronic illness disability impact functioning Unable low cost support through HACC-PYP loss absolutely devastating for struggling hygiene maintain clean property often had resort kindness friends paying exhorbidant amounts help Airtasker cleaner Disabled people also those suffering severe chronic illness falling cracks Many disabled cope without assistance considered sick enough qualify NDIS At same time community-based services such under-resourced unavailable desperately need them Told social worker sent house through HACC-PYP essentially palliative care should actively dying having access keep dignity last 4 years quality life severely deteriorated find myself begging more than admit
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2344
The consequences of no supports
These changes will have devastating consequences for people like me who are already struggling to survive without adequate support, by making it harder for us to access support. but it will also materially impact freedisabled people who are currently on the NDIS. In fact I have grave fears for the well-being of anyone who had their NDIS funding cut or drastically reduced. I believe that there will be deaths and suicides as a result of these cuts.The blood will be \nontheAustralianGovernment’s hands. On social media,persons often talk about bedrotting as joke.Butfor disabledand chronically ill persons.It isn’ta joke.When i experience afare.Laundryandrubbish build up aroundme.Often accumulating smells,mould unwashed dishes allaroundme.Walkingafew steps istotal agony.Ialso knowthat this is my life now.Soi havlearntto acceptthemy flareswill turn mein anunwashed unhygienic freak thendoesn’t leavemybedother thangoto toilet.There\nisaspecial place in hellforsomeone whothink wearedeservingofsupport.Nobody should everhave tobiliveinthose conditionsands that whysupportslike thenNDIS andaHACC-PYP areso important.Withoutthesupports.Personslke myselfwillobdrot,liveninsqualororstugglewithdaily self care tasks.All because government thinks its too expensive and that weshould just suffer insilence instead. Iknowtha don’t have it hardest.But can see how someone doing harder may decide to endtheirlifeasaresult having live like if their NDIS funding was cut or they were denied access fundings.This the very real threat cuts. People maybe choose t o end liferesult ofit,just likewhat happened with robodebt scandal