National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 240
From: Sent: Thursday, 21 May 2026 8:10 AM
To: Community Affairs, Committee (SEN)
Subject: Submission to the NDIS Amendment Bill 2026 Inquiry
To whom it may concern,
I am a 34yr old mother of two, I was once an RN, with a bright future. Now I am a chronically ill and disabled woman, who has been ill for the last 12 years, and I’ve been bedbound for the last 6. My husband has had to bear the cost; financial, physical, emotional and mental of my complex chronic health situation. I got on the NDIS last year for a recent diagnosis of Autism. I am actively putting together a case with my husband and my support coordinator to try and get more support, as I clearly need it, but as of this moment I have no where near even the bare minimum of my needs met. One of the main reasons my health has degraded so severely, is the lack of support and services available to me.
My children are 10 and 7 years old, both of them have Autism and ADHD diagnoses and are on the NDIS. Our experiences have been night and day.
My children are not perfectly supported, (mainly due to the “parental burden” expectation the NDIS has, that my husband and I cant meet due to my disability and his burnout as a carer of 3) but they have an OT work with them at school once a fortnight which helps them regulate, notice how they feel and grounds them in their body, helping them get through the week. We have been able to purchase support materials like ready magnets, timers, reward charts to support them getting ready for school and supporting their wind down time and evening chores too. This has helped immensely and while we still have school refusal at times, regular, difficult, overwhelming and exhausting meltdowns, we still get to school, which is a huge win.
In comparison, I, being bedbound and unsupported, regularly go without food. My OT recently assessed me as requiring a minimum of 7 hours a day of support. I get a maximum of 3 hours a week. I am unable to shower, or even clean myself. I can’t get dressed and I spend my life in a bed that is inappropriate for my needs, in a body that is in an unreasonable amount of pain and in a darkened room, waiting for the day to end.
I am one of the lucky ones. The NDIS is, by no reasonable metric, perfect, but it does help people. If you remove supports from vulnerable people, they will die. You are choosing to kill people, to deny them their humanity and right to a life of dignity, to save money?
It is not disabled folks fault that your many investigators (during the NDIS designing process) grossly underestimated the number of desperate, suffering Australians who were disabled.
Why must disabled Australians wear YOUR failures? We should be taxing the gas giants who have gotten away with robbing our country BLIND for decades. We don’t need (and i doubt we’ll ever see) those 385 billion dollar subs that could’ve completely funded the NDIS for multiple years. You’re willing to increase defence spending, AGAIN, but there’s nothing in the budget for disabled folks.
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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 240
I have been under no illusion, I know that our lives do not matter to able bodied people, but the NDIS itself supports our ecomony! If you cannot care for HUMAN reasons, can you care for fiscal reasons?
I am obviously and completely against the cuts to the NDIS. Rest assured, if it goes through, this will be a bigger scandal than robodebt and people will die. Their blood, will be on government’s hands and I, and my community, will not stop until all of you responsible are held accountable. Make the right choice, while you still can.
Sincerely,
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