National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 2572
Attn: Legislative Affairs Committee
Re: National Disability Insurance Scheme Amendment (Securing the NDIS for Future
Generations) Bill 2026
I write as a concerned parent regarding the proposed Bill and changes to the NDIS.
My daughter has bravely battled Multiple Sclerosis for 35 years. MS is a progressive condition, and she now has Secondary Progressive MS. This dreadful illness will continue to impact dramatically on her neurological and physical impairment despite her daily struggles to access all treatments available to her.
The uncertainty of her quality of life going forward is a constant fear for her and her family. She has had to rely on support in many facets of her life, and while caring family and friends support her, the assistance with personal care, meal preparation, domestic tasks and safe mobility in, and outside the home is dependent on the continuing support from NDIS.
The proposed changes to this Bill, in their current form, are creating enormous stress and anxiety for many in similar disability positions as my daughter.
I understand there are changes which apparently need to happen. The system may need adjustments, but this must be done in consultation with the lived experience of the disabled community. They are already battling a condition beyond their control.
Please listen to them and be fair!
They deserve a voice as much as any other Australian citizen.
This scheme holds so much hope for all of us and our humanity. It cannot become simply a political football for ongoing elections in this country.
I urge the committee to recommend that this Bill not be passed unless it is substantially amended to restore participant protections, preserve genuine individualisation, and ensure reform is developed transparently and in genuine partnership with disabled people.
Yours sincerely