Loss of autonomy and dignity due to stretched support (Participant experience)

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2767

Dear Member of Parliament,

I’m writing because I’m genuinely concerned about the proposed NDIS reforms and what they will mean for people with disabilities, especially people with high support needs.

A lot of the language around these changes sounds harmless on paper, “sustainability”, “streamlining”, and “frameworks”, but the reality that people with disabilities are describing is much darker than that.

One of the proposed changes would allow support workers to be shared across multiple high needs participants at once. People have already lived under systems like this before the NDIS and it was awful, some have described it as “torturous”. With less support, less autonomy, less safety, less ability to leave the house or participate in life at all.

When support that gets stretched that thin, people lose control over their own lives. Over who comes into their home, who touches their body, when they eat, when they shower, whether they can work or study or see friends or make art or even just exist with dignity.

And people often die in these conditions. Maybe not in ways that make headlines, but through neglect, exhaustion, isolation and preventable decline. There is nothing humane about that.

What frustrates me is the constant narrative that disabled people are somehow the financial burden here. The waste in the NDIS is not disabled people having support. It’s excessive bureaucracy, with constant reassessments forcing people to repeatedly prove permanent disabilities.

Without the NDIS, many people with disabilities would disappear from public life completely. I’m currently working on an independent film project that genuinely would not exist without disability support making participation possible.

People with disabilities are telling the government clearly that these reforms will hurt people. I really hope you listen.

Please oppose these reforms and advocate for an NDIS that allows people with disabilities to live full lives with dignity and autonomy.

Sincerely,