Reduction in necessary disability supports will be fatal (Participant experience)

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National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2851

I’m writing to express my extreme disgust and anger at the dishonesty of the government when it comes to the legislation changes that they have proposed.

In no way do these changes “restore the NDIS to it’s original intention” - they instead dismantle the NDIS so that it no longer provides the supports and no longer upholds the human rights of people with disability. It directly violates the UN CRPD, despite the very first statement in the NDIS Act being:

(1) The objects of this Act are to:

(a) in conjunction with other laws, give effect to Australia’s obligations under the Convention on the Rights of Persons with Disabilities done at New York on 13 December 2006 ([2008] ATS 12);

It was originally intended that the NDIS would ensure that families could be sure that their children/siblings/themselves would be funded for those reasonable and necessary disability supports for their lifetime, and that people with disability would have the right to be treated as members of society instead of as “burdens” hidden away to rot and be abused/neglected in group institutions.

This bill destroys that assurance.

Stating that the minister of the day “has to have regard to the safety of participants” when they decide not to permit funding for necessary disability supports is meaningless when it is done on a global level with zero knowledge of or understanding of the situation that the lack of that support will create for the participant.

Refusing to fund disability supports because the minister said (for example) “we’ll only fund 50% of this type of support” means that the vast majority of participants will simply be without the other 50% of supports that were required. There is no way that a participant on a disability pension can afford to replace those supports that the government has accepted as absolutely necessary but withdrawn funding for.

This was why the original legislation stated that reasonable and necessary supports will be funded.

For some participants, that reduction - in fact any reduction in support below what is necessary for them - will be fatal. Multiple participants have already died as a result of the changes that have been made over the last few years that have resulted in situations that left them without essential supports at the time when they were required - e.g. due to ventilator tubing being dislodged or blocked while no support was “on duty” to address the immediate and urgent life-threatening equipment failure as a result of those supports having been withdrawn.

Enforcing a reduction that has ZERO review rights, and takes ZERO account for the actual participant’s needs, is a massive violation of the original intent of the NDIS and a massive human rights failure.

It leads me to ask what percentage of participants dying preventable deaths due to the lack of necessary supports that have been determined as necessary but not funded has the current government budgeted for as “reasonable”/something they can “accept”?

Stating that these changes are required to “protect the social license for the NDIS” after the deliberate 3 year campaign waged by the government to destroy that social license with their

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 2851

constant messaging about “rorts and fraud” following the advice given by the Redbridge report is absolutely disgusting. Medicare fraud and tax fraud are actually higher than NDIS fraud - but we haven’t had the government run a multi-year campaign against those.

Claiming that the courts requiring the NDIA to follow the current law is “obstructing” reform just shows that the current government has zero regard for the law, and has been knowingly and actively breaking it, and has the intent to continue to break it.

These changes do NOT secure the NDIS for future generations - they remove and undermine it instead.

In no way do I support these legislation changes.