National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3028
My recent lived experience:
On or around the 3 March 2026 the NDIS changed my child’s plan from self-managed to agency-managed due to an “unreasonable risk without notice.
On the 30 March 2026 the NDIA initiated an internal review without myself receiving a copy of this document submitted over the phone, despite asking for a copy.
On the 26 May - 8 June 2026 I was uncontactable a Delegate of the CEO on the 4 June whilst on holiday sent me an outcome of my internal review request to change from agency managed to plan management, the decision was made without reviewing and or considering the substantial evidence/ documents uploaded to my child’s file by the NDIA throughout April and May 2026.
I didn’t agree with the NDIA Delegate of the CEO decision as mistakes and errors have been made and I have no choice now and applying to the Administrative Review Tribunal for an external review of the decision within 28 days.
The NDIA have denied my child procedural fairness given they are governed by the National Disability Insurance Scheme Act 2013 and the Management of Funding Rules.
By legislation, the NDIA must when they Conduct a CEO-initiated review or variation: They cannot secretly change my child’s management type; they must formally vary the plan and did not inform me nor provide me with written reasons for the decision on the 3 March 2026 why they changed the plan to agency managed, I found out when I went to pay an invoice on my Gov and the “ pay now “ button was removed..
The NDIA have not Upheld the dignity of risk: The legislation requires the NDIA to take a proportionate approach to risk, My child has had no contact from any LAC or her NDIA contact since December 2021 to allow me to learn from any genuine mistakes made before removing funding control of self management.
The NDIA failed to inform me of my Grant review rights: It took until mid April to be informed as I disagreed with the assessment and was only then told that I posed an unreasonable risk and this was after the internal review was made by the NDIA over the phone on the 30 March 2026.
The NDIA did not Offer alternative management: and instead an internal review was made on the 30 March 2026 over the phone given I was restricted to agency management and as such my child has been unable to use the therapy funding to see the un registered therapist whom my
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3028
child has been attending upon since 2018 and fortnightly since upon until the 3 March 2026 using NDIS funding which was in the plan as reasonable and necessary supports.
The internal review requested to change to plan management and seek Level 2 support coordination funding to be added and to use a registered Plan Manager instead of self management to mitigate any “ unreasonable risk “ which still would have allowed me to choose unregistered providers without the administrative burden of self-managing, yet change of plan management type to plan managed was not approved on the 4 June 2026 by the internal review and by the NDIA unfairly and unreasonably.
It is not safe and would cause my child significant psychological harm if the agency as suggested by the NDIA over the phone to me recently to force my child to attend upon another NDIA registered psychologist other her current psychologist.
If these current unfair laws pass, my child will not have any procedural fairness or rights to appeal externally at the ART.
My child will be limited to only 10 mental health sessions instead of her 26 stated supports psychological sessions in the current plan when it was self managed.
I have significant concerns that my child will be one of those “ kicked off” the NDIS or transitioned to the state system where there is minimal to no equivalent disability supports available like currently available in the Federal NDIS.
It appears the Government wish to cost shift from their Federal responsibilities into the States and participants like my child are simply pawns and viewed as cost savings line item on the Federal Governments budget as opposed to a human being with human rights that must be upheld.
If this bill is past giving the Government the proposed powers sort NDIS participants will be harmed and is disability discrimination.
Please do not pass this unfair bill as it contravenes the Governments responsibilities as signatures to the United Nations Convention on the Rights of the Child and people with disabilities and denies my child its fundamental human rights. This is not the Australia that we can be proud of!