National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3176
Committee Secretary
Senate Standing Committees on Community Affairs
PO Box 6100
Parliament House
Canberra ACT 2600
My child is 38 years of age. She has multiple disabilities, which include severe intellectual disability , severe autism , non verbal & self harm.
My child requires 24hrs/7 days per week constant supervision. My child cannot be left at home on her own nor is she capable to cross the road on her own. She would die should she attempt to do so. In the previous year plan review , I was advised to send my daughter on the bus to reach her day placement. I spend a lot of additional time on the wound care due to self harm. Again , last year I was told that this should be managed by her GP. I was told to take her to GP twice a day / daily for the wound care as Medicare will cover the cost of care. It is not physically possible due to behaviours & time consumed in the waiting rooms to be seen by GP & the nurse.
My child receives $64000 in the package for the day placement but her current placement costs $89000 for 52 weeks 4 days per week attendance. Previously , she attended another three placements however do to large ratio of 1:9 – 1:12 she was coming home with burns & cuts to her fingers. It was a daily problem , it escalated so much so that my child had an anxiety induced explosive diarrhea at the mention of that day placement. I submitted the complaint to NDIS & enrolled my child to this new place where the ratio is 1:3. The smaller ratio has been amazing in preventing the cuts & burns to my child’s hands.
My child attended physiotherapy for over 5 years however last year ,with the new plan cuts , physio has been removed from her plan.She is banned from using it via NDIS. She is high risk of falls due to her poor balance.
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3176
As an aging parent , I am worried for my child’s future. I am worried what will happen to her when I am no longer here. All the reports that are needed every year & have been submitted as per the rules of NDIS, state that she is high needs & needs help with everything : cutting finger nails , setting up the temp of the shower water , organising & administration of her daily meds , preparing her food , clothes , cooking her meals , doing washing,, changing her bed , putting socks on & lacing up the shoes, organising the taxi travel , locking doors nightly with a key due to her absconding , removing her extra layers when the weather changes due to luck of understanding the temperature changes & how it impacts her body. She gets regularly the boils due to overheating . Self harm is a massive behaviour problem & the wound care that is required to keep the infections to minimum is draining on me as her carer.
My day starts 7am daily. I get to sleep in ( sort of ) 3 days every 60 days when my child is in short term accommodation care, because that is what her current plan allows her participate in. I care for her during the days & nights as she is reckless night sleeper. She wonders the house almost every night. Flushing the toilet is her favourite night past time…. I turn the water off every single night in order to get some rest.
I am burnt out , tired & in desperate need of an increase funding . $100000 core funding is nowhere near the support my child needs. She leaks the knives if unsupervised. I caught her putting knifes into a toaster. Several years ago, she burnt few microwaves because she wanted popcorn.
I don’t understand why NDIA pays for all those reports so much money instead of providing hands on help & support for my child.
It is my wish & hope that an actual living breathing human being should actually read the reports not a computer generated program , that is heartless & has no understanding of human physical limitations & how it effects the lives of people who have no voice of their own.