Submission 318 - Attachment 4 425
Appendix Two: Easy Read Full Survey Report
SWAN Submission to Senate Inquiry into NDIS Bill 2026
Page 425
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 426
Q1 63 responses
About YouWe would like to know more about who you are.Tick all the things that apply to you.
I am a person with a disability
I am a carer
I am a supporter or disability worker
0% 10% 20% 30% 40% 50% 60%
# IS THERE ANYTHING ELSE YOU WOULD LIKE TO TELL US ABOUT THIS? DATE
1 I am a person with ASD caring full time for 2 other people with complex and high needs. 5/27/2026 8:43 AM
2 I am a parent on disability with a child on disability. We both have autism adhd ocd axiety 5/26/2026 1:43 PMmental health issues
3 Progressive disability 5/22/2026 4:46 PM
4 I am an advocate/friend for an adult with a disability 5/22/2026 10:37 AM
5 daughter of a person with a disability but also a provider 5/21/2026 8:05 PM
6 I am a grandparent raising my grandson for 18 years with all his disabilities and I'm not 5/21/2026 7:45 PMgetting any younger. My concerns are what will happen to him and many other people with disabilities who need support in life when all they have is family and support network
7 Life long 5/21/2026 3:54 PM
8 I have a degenerative disease called CMT 5/20/2026 8:42 PM
9 I am a medically retired fellowed GP (medical practitioner) 5/20/2026 5:13 PM
10 Parent of 2 autistic children level 2 5/20/2026 3:48 PM
11 Mother to deaf teenager 5/20/2026 6:38 AM
12 Parent of Autistic 8yo. Already a Thriving Kid thanks 5/20/2026 12:42 AMPage 426 1 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 427
Q2 63 responses
Where do you live?
Western Australia (WA)
New South Wales (NSW)
Victoria (VIC)
Queensland (QLD)
Tasmania (TAS)
Australian Capital Territory
(ACT) I
South Australia (SA)
Northern Territory (NT)
0% 10% 20% 30% 40% 50%Page 427 2 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 428
Q3 Tell us about your disability in the box below.
Answered: 54 Skipped: 9
# RESPONSES DATE
1 I have Autism Spectrum Disorder (ASD), which affects my communication, social 5/27/2026 8:43 AMinteraction, emotional regulation, sensory processing, executive functioning, and ability to manage daily activities independently. I experience sensory sensitivities, anxiety, difficulties with change and unexpected situations, and challenges with planning, organisation, decision-making, and completing tasks. These difficulties impact my ability to participate in education, community activities, relationships, and everyday life without support. My disability is permanent and requires ongoing assistance, accommodations, and supports to help me function safely, regulate emotions, build independence, and participate meaningfully in my community.
2 As above 5/26/2026 1:43 PM
3 Blindness 5/26/2026 11:44 AM
4 Hydrocephalus - a precursor to Autism (level 2) and ADHD, 5/24/2026 11:04 PM
5 Autistic 5/24/2026 1:50 PM
6 I have 4 children all Neurodiverse on ndis. Asd level 2. Asd level 3, moderate intellectual 5/24/2026 5:48 AMdisability.
7 My daughter is autistic and I work in the disability sector 5/23/2026 4:35 PM
8 ASD 2, ADHD, hEDS, POTS 5/22/2026 5:48 PM
9 Rare Disease 5/22/2026 4:46 PM
10 I have physical conditions. -fibromyalgia, poliarthralgia, thermoregulatory dysfunction, carpal 5/22/2026 2:54 PMtunnel syndrome, osteoarthritis, lymphoedema, hypertension, IBS, GOR, dysphagia, asthma, eczema, type 2 diabetes, obstructive sleep apnoea. I also have mental health issues. - autism, ADHD, CPTSD, alexithymia, Major depression, low OCD, panic attacks, anxiety,
11 Autism, CPTSD 5/22/2026 11:19 AM
12 Autism 2 Complex PTSD Depression and anxiety 5/22/2026 10:37 AM
13 I'm a carer. 5/22/2026 6:19 AM
14 I support people with many varied disabilities 5/22/2026 4:39 AM
15 Lower limb issues Asd , torticollis, deaf 5/21/2026 8:46 PM
16 Permanent wheelchair user thanks to botched hip replacement surgery and serious life 5/21/2026 8:02 PMthreatening complications causing life changing, irreversible loss of hip and femur, chronic rheumatoid and osteoarthritis, lupus and all associated autoimmune disorders like raynauds, sjogrens, kidney disease, ulcerative colitis, diabetes, pagets disease
17 Grandson has intellectual disability, autism 2, ARFID, ADHD, reactive disorder disability and 5/21/2026 7:45 PMcognitive age he is about 10 years old instead of 18
18 I have intellectual disability called fragile x and it affects my learning and emotions and I 5/21/2026 7:39 PMstruggle to understand things
19 ASD, PDA, ADHD, Anxiety 5/21/2026 7:16 PM
20 Intellectual disability, autism, global developmental delay 5/21/2026 7:08 PM
21 Autism, learning disability, adhd, anxiety, epilepsy 5/21/2026 6:40 PM
22 Legally blind ptsd chronic reg pain syndrome anxiety depression disnimerology 5/21/2026 3:54 PM
23 EDS , POTS, MCAS , CIPD, long covid , bed bound , chronic pain , occipital neuralgia , 5/21/2026 5:48 AMcervical neuralgia
24 I have a degenerative disease, I’m 51 yrs old and have been on the NDIS since 2022. 5/20/2026 8:42 PMBefore the NDIS supported me, I could hardly walk some days or look after my young Page 428 3 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 429 children.
25 Multi systemic , difficult, time consuming and expensive to diagnose, and mostly not 5/20/2026 8:03 PMaccepted or recognised by NDIS, and other programs will not help because I am in the NDIS.
26 My son has a bilateral high frequency hearing disability due to cancer treatment. 5/20/2026 7:45 PM
27 Acquired brain injury Anxiety Depression 5/20/2026 6:21 PM
28 Transgender 5/20/2026 6:20 PM
29 Intellectual disability, autism, epilepsy 5/20/2026 5:47 PM
30 MY mobility is significantly impaired. I have Ehlers Danlos syndrome with many unstable 5/20/2026 5:42 PMjoints including my neck, movement is hard. It also affects my vascular system so I have numerous vascular compressions and I had surgery last year. I have severe POTS meaning I can barely stay upright/stay standing/stand in queues etc.
31 Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), Postural 5/20/2026 5:13 PMOrthostatic Tachycardia Syndrome (POTS), Fibromyalgia, and likely Mast Cell Activation
Syndrome (MCAS) all triggered by a presumed viral infection (pre covid)
32 ASD level 2 5/20/2026 3:48 PM
33 I struggle with CPTSD, depression and anxiety and currently with suicidal ideation. My 5/20/2026 1:51 PMhusband has Smart syndrome, Fahrs disease (presents like dimentia , he just turned 60 years old) and had a stroke
34 Hearing loss & eye impairment 5/20/2026 8:55 AM
35 Hearing loss 5/20/2026 7:24 AM
36 Autism, POTS, ADHD and mood disorders, PTSD 5/20/2026 7:23 AM
37 Permanent moderate to severe bilateral hearing loss 5/20/2026 6:38 AM
38 Son Autism Level 2, ADHD 5/20/2026 5:11 AM
39 Hearing loss fir two children that both need hearing aids 5/20/2026 4:32 AM
40 Autism ADHD PDA 5/20/2026 12:42 AM
41 My adolescent child has Autism 5/19/2026 9:59 PM
42 Autism 5/19/2026 9:33 PM
43 Hearing loss 5/19/2026 9:26 PM
44 I have Autism 5/19/2026 8:55 PM
45 Autism, ADHD, OCD, anxiety 5/19/2026 8:07 PM
46 My daughter is intellectually disabled. Unable to read or write 5/19/2026 7:49 PM
47 ASD level 2, Fibromyalgia, ADHD Combined,. Social and Generalised Anxiety Disorder 5/19/2026 7:20 PM
48 Autism Level 2 with intertwined ADHD 5/19/2026 7:18 PM
49 ME/CFS. 5/19/2026 7:11 PM
50 My son has Childhood Apraxia of Speech, a lifelong neurological speech disorder 5/19/2026 6:17 PM
51 AuDHD 5/19/2026 5:19 PM
52 Post Polio 5/19/2026 5:13 PM
53 My daughter has cerebral palsy adhd and asd 2 with pda 5/19/2026 5:06 PM
54 Autism, ADHD, Intellectual Disability, Anxiety 5/19/2026 5:02 PMPage 429 4 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 430
Q4 62 responses
Do you think these are good ideas?
Yes
No
I’m not sure
0% 10% 20% 30% 40% 50% 60% 70% 80%
# WOULD YOU LIKE TO TELL US ANYTHING ELSE ABOUT THIS? DATE
1 You could write: No. In my experience, it is already extremely difficult to access disability 5/27/2026 8:43 AMsupports. Families are often required to spend thousands of dollars on specialist assessments and reports to demonstrate needs that are already well documented by professionals. Despite this, reports can be disregarded, supports can be refused, and families are often told that disability-related needs are a parental responsibility or should be met through community services that do not have the capacity or expertise to provide the required support. Additional assessments, testing and requirements to access other systems will create further barriers for people with disability and their carers. Many families are already overwhelmed, exhausted and navigating complex health, education and disability systems simultaneously. Requiring people to repeatedly prove their disability places an unnecessary burden on individuals and carers who are already under significant strain. I am a full-time carer for both my mother, who has young-onset Alzheimer’s disease, and my son, who has complex disability support needs. Between caring responsibilities, appointments, advocacy, administration and daily support, I have very little time or capacity to attend to my own disability-related needs. Introducing more assessments and processes would make support less accessible, not more accessible, for people who genuinely need it. The focus should be on reducing barriers, respecting professional evidence, and ensuring people can access appropriate supports in a timely and dignified manner.
2 I have had this since birth and have done enough tests already. I’ve had 2 brain surgeries 5/24/2026 11:04 PMthis year so far and am in recovery. The last thing I need is more testing
3 Autism is a fluctuating disability and needs more support than the skills of parents. We 5/24/2026 1:50 PMneed a team around us to help us achieve our full potential and the life we want to live.
4 The people doing these tests probably have no idea what a person with disabilities need 5/24/2026 5:48 AM
5 Other healthcare services are not necessarily disability trained. Also one tool cannot 5/23/2026 4:35 PMdetermine disability functioning for everyone. I am also concerned with the background and qualifications of those who will be administering the tools.
6 The current tool is very subjective so potentially a new tool, if created well and rolled out 5/22/2026 5:48 PMcorrectly a new tool could be a good thing. However, knowing the government they’ll spend millions on a mew tool that is a piece of shit and makes the system worse.
7 It's extremely stressful and causes medical issues 5/22/2026 4:46 PM
8 Taking people off a system, where there is a right for them to get help from, and dumping 5/22/2026 2:54 PMthem back into the public system, where there is very little or no help for their disabilities, is wrong. There is no infrastructure out in the community for people taken off NDIS. All that infrastructure has been closed down or taken over by the public who couldn’t get help before.
9 As a person with significant disability I cannot work and livee off a very small pension; Due 5/22/2026 11:19 AMPage 430 5 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 431 to the incredibly small amount I receive I cannot afford any out of pocket costs for healthcare or disability needs. If my funding is cut I will suffer significantly and face potentially ending my life.
10 Who is conducting the test? If a psychologist or psychiatrist has already diagnosed why put 5/22/2026 10:37 AMsomeone through the distress of further testing?
11 Too many people rorting the system. I see clients everyday over funded, abusing the 5/22/2026 6:19 AMfunding. I also see companies charging full fee for unskilled undertrained workers.
12 If the changes provide better support, that’s great. But all the government plans is to reduce 5/22/2026 4:39 AMcosts, not look at the impact on people. People are already being taken off the scheme, will nothing in place to support them.
13 Absolutely you should supply supporting documents, but not every 12 months report are a 5/21/2026 8:46 PMwaste of money
14 Systems are already hard for people with disabilities to manage its just putting more stress 5/21/2026 8:05 PMon families and the person with the disability to manage.
15 The healthcare system is already b pushed to breaking, unaffordable and hard to access 5/21/2026 8:02 PM
16 It needs to be human to human and pass all ot tests etc 5/21/2026 3:54 PM
17 All i know is i needed NDIS three years ago , you have destroyed my family and now you 5/21/2026 5:48 AMwill have to pay more money than before . give lost my partner because you couldn’t provide the support i needed and now my mother is sick trying to look after my kids . Shame on this government, i nursed so hard for you through the pandemic , took your stupid vaccines which did nothing , got sick on the job and now i’m fully disabled from the medical trauma you have put me through .
18 I used to pay for my own physiotherapy, but I could only afford a few sessions a year which 5/20/2026 8:42 PMwas not nearly enough, I could not walk far, needed to rest during the day, sometimes as early as school drop off was done, I couldn’t clean my house, I’d be in bed earlier than my kids. The NDIS has allowed my to look after my kids, continue working, be able to go to the community events (only for short periods) and walk through Westfield without breaking down in front of my kids. If I didn’t have these supports, I’d be back further than I was 4 years ago as I’m now also 4 years older. A degenerative neurological disease is awful. Once upon a time, you could do what your peers can do (to a degree), but as we get older our nerves stop working and this puts us at risk. Therapy and support is key to managing life. I didn’t choose to have a genetic disease, but I’ve had it since birth so I live with it. I don’t ever want to have the chronic pain and inability to move easily again. I worry that I won’t be supported if these changes come in.
19 The health system does not provide the necessary support. Some of the changes are 5/20/2026 8:03 PMtheoretically ok, but I have no confidence the replacement programs will exist. We will be thrown out with no support. I got a robodebt letter, I have zero faith left.
20 The current system works. Why would the government need to test people already on the 5/20/2026 7:45 PMNDIS, this is unfair. As a carer we utilise the services needed for my son, we provide proof of the services used.
21 Already enough people aren’t able to access NDIS support. Let’s not increase the number. 5/20/2026 6:21 PM
22 Government is looking in the wrong places for cost savings. Their own processes and 5/20/2026 5:47 PMwasteful practices should be the 2nd issue addressed behind the enormous level of fraud. You could achieve massive savings just there without huge adverse impacts on the wellbeing of disabled people and their families.
23 1. The I-CAN tool is not validated for those <16yrs old. 2. A single tool for all disabilities is 5/20/2026 5:13 PMludicrous as one size does not fit all when it comes to disability. It does not capture disability (esp cognitive) related to energy limiting illnesses very well NOR dynamic disabilities (esp something like ME/CFS that involves post-exertional malaise where a specific exertion/task may be possible but the disproportionate & prolonged resultant functional decline afterwards then means that same task is impossible for hrs/days/wks/mos + repeated over-exertion often leads to longterm increased disability so is not medically recommended) NOR sensory disabilities…all meaning that people with these kinds of disabilities will be provided with inadequate supports = decreased QoL, wellbeing, potentially decreased physical & mental health, increased informal carer burnout, reduced participant AND carer participation in the workplace/society/economy, increased suicide risk, increased risk of preventable deaths, increased risk of exploitation & abuse etc. 3. A tool is only as useful as the quality of the implementation is. NDIS staff are NOT qualified to administer such a tool properly, interpret answers properly, and therefore cannot accurately draw conclusions and create plans from it. This makes its use unethical and Page 431 6 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 432 clinically inappropriate. 4. Disabilities are individual and nuanced, so reducing assessment to a single basic scoring tool is completely inadequate and WILL lead to harms.
24 I have already spent a significant amount of personal funds to have my children diagnosed. 5/20/2026 3:48 PMI accessed this funding through my superannuation fund under financial hardship rules. Functional Capacity Assessments provided by appropriately qualified and experienced Allied Health Professionals should be determining eligibility for the NDIS based on functional needs. The medicare rebates available for psychology, OT, and speech pathology are severely inadequate. Most average families cannot afford the gap payments for these services and for those who can afford these payments 5 sessions per year under the chronic condition management program or 20 per lifetime under the other relevant Medicare programs is also extremely inadequate to make any lasting changes in capacity of the children, young people and families who are in desperate need of these supports.
25 I find communication with people I do not know very difficult. I could not sit through a 3 hour 5/20/2026 1:51 PMassessment. Nor could my husband. My husband’s condition presents like dimentia. Despite his considerable physical and cognitive challenges, if someone asked him how he was going…he would reply “good”. Although it is clear watching his difficulty with mobility, unless someone stayed with him for a day (like OT) it would be impossible to understand the full extent of his challenges. He still surprise me with the things he does. Like blocking our toilet with paper. Trying to pick out chunks of meat from a month old mouldy casserole and insisting it was fine to eat. How are these things going to show up in an assessment? If he was asked if he could cook, he would reply that he could. But he would not tell them that after stirring a bowl of fresh mince meat, he used the same wooden spoon to mix the salad….yes…there was raw mince meat in the salad. I could write pages of the things he does, many of them are unsafe…like getting out on our roof, when he has trouble staying upright on solid ground.
26 Long term needs can’t be serviced and shouldn’t be serviced by the health services, 5/20/2026 4:16 AMoutpatient services are capped, long wait lists, basic education and home programs and it’s not helpful. Many friends can’t leave the house to even attend mainstream services. I’ve been knocked back by public health groups - falls risk so I’m Left without services
27 My daughter is not a government lab rat. 5/20/2026 12:42 AM
28 I dont think this will work well, I am scared of these changes. My disabilty i had since birth 5/19/2026 9:33 PMand I will have all my life. Why do they need to re test when I have been tested all my life
29 I believe the cuts already made and the changes to come are going to cause significant 5/19/2026 7:20 PMharm to people with disabilities and their families.
30 It was a huge undertaking to get onto the ndis in the first place. We have spent thousands 5/19/2026 7:18 PMin assessments to get the right supports in place. To reassess with a measure that has not been designed for use with this population is cruel and unjust
31 There is nothing in the medical system to support the disability that my illness causes. 5/19/2026 7:11 PMThere are no lower level, ongoing supports available through local government. Ppl already on the NDIS should not be subjected to life altering, stressful changes. They should be “grandfathered” and left alone.
32 This is already being done by clinicians. 5/19/2026 6:55 PM
33 I have worked fot the Health department and they do not have the capacity. The efficiency 5/19/2026 6:17 PMand effectiveness of private practice is tenfold
34 Accessing health care like Medicare means very long wait lists or if I pay out of pocket it 5/19/2026 5:19 PMtakes too much of our budget.
35 This is not the way to reduce costs. This tool needs to be individualised and used by trained 5/19/2026 5:06 PMprofessionals. Not pencil pushers ticking boxes
36 I need NDIS. It makes me frustrated if it might be taken away. 5/19/2026 5:02 PMPage 432 7 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 433
Q5 What do you think will happen if people cannot change their plans?
Answered: 52 Skipped: 11
# RESPONSES DATE
1 You could say: It is already extremely difficult to have an NDIS plan reviewed or increased 5/27/2026 8:43 AMwhen supports are inadequate. If people can only change their plans when a major crisis occurs, many participants will be left without the supports they need for extended periods of time. My experience is that plans can already be significantly underfunded despite clear evidence of need. Both my sons and my mother’s plans have not reflected their actual support requirements. In my mother’s case, even the planning assessor expressed concern about how little funding had been provided given her diagnosis of young-onset Alzheimer’s disease and her high daily support needs. Disabilities and support needs do not only change because of catastrophic events such as a house fire or the loss of a carer. People’s needs can gradually increase, therapies may become necessary, equipment may need replacing, behaviours can escalate, health conditions can deteriorate, or existing supports may prove insufficient. If participants cannot seek timely plan changes in these situations, their wellbeing, safety and independence may be negatively affected. Restricting plan changes risks leaving people without adequate support until they reach crisis point. The NDIS should be flexible enough to respond to genuine changes in circumstances before families and participants become overwhelmed.
2 Suicide, breakdown, sickness social and economic impact, more pressure on hospitals, job 5/26/2026 1:43 PMloss, loss of future
3 Won’t get the help that is deserved 5/26/2026 11:44 AM
4 The thought of this stresses me out so much. It’s not healthy to treat people with disabilities 5/24/2026 11:04 PMthis way.
5 Disabilities are often fluctuating and needs change at different times. It is in appropriate to 5/24/2026 1:50 PMmake someone want for a plan to expire before they are able to request additional. Imagine if an amputee needs a new AFO earlier than expected - are you going to make them wait 2 years just because that’s when the plan expires??
6 Small changes can really affect those with disabilities 5/24/2026 5:48 AM
7 They will not have access to the appropriate support relevant for their current life 5/23/2026 4:35 PMcircumstances. Families are likely to experience burnout and engage in unsafe and risky behaviours as a result.
8 Disabled people will stop getting the care & support they need, which over time will see 5/22/2026 5:48 PMdisabled people going to ED as they are not able to live at home. This will overload an already overloaded public hospital system and cost the government more money and worsen public health care staff burnout and medical trauma to disabled people.
9 Progressive degenerative will surpass plan and need 5/22/2026 4:46 PM
10 Life does not follow a plan, written a year ago by a support co-ordinator, OT, etc. Within a 5/22/2026 2:54 PMmonth, your health can completely change. Saying that you cannot add to or change a plan because you need, for example, a new piece of machinery is ridiculous.
11 People change, so plans need to stay up to date. There are reasons why money may not be 5/22/2026 10:37 AMspent - change of circumstances, unable to find a support worker who matches needs etc
12 They can change, check your facts. 5/22/2026 6:19 AM
13 Many many issues and people with support or equipment that is vital for the health and 5/22/2026 4:39 AMsafety.
14 They won’t be supported 5/21/2026 8:46 PM
15 Its already difficult to change a plan as it is and more hoops to just through to get basic 5/21/2026 8:05 PMneeds.
16 They will face undud hardship and risk of being hospitalised if conditions deteriorate, if 5/21/2026 8:02 PMequipment breaks, becomes unusable or not fit for purpose and cannot be replaced or changed it will likely result in severe hardship, isolation and loss of adequate supports
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Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 434
17 a lot of families and individuals on the ndis who need it will struggle so much and not be 5/21/2026 7:39 PMable to access the support they need
18 Less care if more support is needed, strain on families, increased hospital admissions on an 5/21/2026 7:16 PMalready stretched system
19 They wil lose funding and families wont be able to cope 5/21/2026 7:08 PM
20 People will fall through the cracks, the health system is already under so much pressure 5/21/2026 6:40 PMnow, without people who are unable to access supports that are currently covered via NDIS. Suicide/mental health problems with increase and so will DV murders-a bit like the 3x murder in Syd last weekend
21 Taking choice and control away unalienable themselves feel useless 5/21/2026 3:54 PM
22 More strain on the hospitals more money spent at by the hospital because you can’t keep 5/21/2026 5:48 AMpeople at home and safe .
23 I have a degenerative disease, my needs change when I’m not stable. It worries me that I 5/20/2026 8:42 PMmay not be able to ask for more supports if I need them.
24 My plan is terrible, because the planner was really harsh and rejected almost everything my 5/20/2026 8:03 PMOT doctor and psychologist recommended, sometimes on crazy grounds, but I had no energy to appeal.
25 If people cannot change their plans, this can be a detriment to the disabled person. Things 5/20/2026 7:45 PMchange especially with children’s needs. Over time they may need different services, the change may be small but warranted.
26 Unless an advocate is available then it will be harder to use or change. 5/20/2026 6:21 PM
27 Who cares 5/20/2026 6:20 PM
28 Disabled people will not get the supports they need to live and carers will burn out. Parents 5/20/2026 5:47 PMare desperate, sadly some are taking drastic steps to end their families struggle . Governments will have blood on their hands. I am 31 years in and still caring for my adult child. I’m exhausted and see no respite in the near future.
29 People get stuck!! 5/20/2026 5:42 PM
30 Inadequate support = decreased QoL, wellbeing, potentially decreased physical & mental 5/20/2026 5:13 PMhealth, increased informal carer burnout, reduced participant AND carer participation in the workplace/society/economy, increased suicide risk, increased risk of preventable deaths, increased risk of exploitation & abuse etc. Even allowing it for big unexpected events is ridiculous given how poor the responsiveness & communication from the NDIS is. The delayed responsiveness to serious changes will be incredibly dangerous.
31 I think that this is fair 5/20/2026 3:48 PM
32 My husband's condition is degenerative. He ran out of funding before it was due for renewal 5/20/2026 1:51 PMbecause I had to arrange extra support workers while I was in hospital. The NDIA planner did not appear to have read/did not acknowledge his comprehensive OT FCA. She made a mistake and based his ‘new’ plan on his stroke. (Which caused the least of his difficulties) Not his Smart syndrome or Fahrs disease. This is before removing oversight/ability to review decisions or tightening of the scheme. The NDIS is already getting it wrong. They force participants to constantly prove a permanent condition is still permanent. They force people to go to ART to fight for basic care needs. They plan to remove the ability to review incompetent decisions that have been made. They are proposing to make it even worse. If they actually took ANY notice of the professional documents that they FORCE participants to constantly waste plan money providing, and made ACCURATE, informed, correct decisions in the first place they would save time, money and resources. The government does not appear to want to save money. They just want disabled people (as well as elderly people) to DIE…then they could waste more taxpayers money of billions more $$$ on submarines!
33 less flexibility, and may be very inconvenienct for people who are already suffering from 5/20/2026 8:55 AMdisability.
34 They’ll lose supports. They’ll lose their ability to live life. Many will either die or be one 5/20/2026 7:23 AMmuch, much worse. Social isolation, depression and suicides will start occurring and I suspect the stats around them will be suppressed.
35 I think flexibility for life transition and circumstance changes should be built into plans 5/20/2026 6:38 AM
36 Sometimes my son needs more than other times but we won't have the flexibility 5/20/2026 5:11 AMPage 434 9 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 435
37 Don’t mind if funds don’t roll over - use it or loose it 5/20/2026 4:16 AM
38 Needs will be unmet. The cost will go elsewhere. It may economic. It may be social. But the 5/20/2026 12:42 AMneeds won’t disappear because a politician turned people’s lives into a numbers game
39 They won’t be able to use them as they won’t be suitable to address our goals and needs. 5/19/2026 9:59 PMSometimes we get the first plan and it is wrong and not even aligned to what we advocated and had evidence for around our needs
40 More people will die 5/19/2026 9:33 PM
41 Inadequate care for disabled persons 5/19/2026 9:26 PM
42 We will suffer and will unable to be functional and contributing members of society, leading 5/19/2026 8:55 PMto more strain on the government systems.
43 They will not adapt and meet needs. 5/19/2026 8:07 PM
44 They maybe severely disadvantage through no fault of their own what has happened to the 5/19/2026 7:49 PMwholistic approach. We have many things going on that make us unique
45 People will not receive support fit for their needs and this will cause harm. 5/19/2026 7:20 PM
46 People with genuine needs and fluctuation in their capacity, circumstance or supports will be 5/19/2026 7:18 PMleft without crucial care
47 Im not sure but it doesn't sound like the idea of the NDIS - choice and control 5/19/2026 7:11 PM
48 People will be restricted and may not be able to access vital supports at times of need. 5/19/2026 6:55 PMChanges in life happens all the time and people need flexibility.
49 Unmet needs 5/19/2026 6:17 PM
50 Autism is a dynamic disability. There will be no room to be flexible to changing needs or 5/19/2026 5:19 PMsituations
51 They will not get the help they need, they won’t be able to replace or repair equipment, if 5/19/2026 5:06 PMtheir needs increase their budget won’t allow for additional support
52 Don't get supported. Miss out. I'm scared. 5/19/2026 5:02 PMPage 435 10 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 436
Q6 What do you think about this?
Answered: 55 Skipped: 8
# RESPONSES DATE
1 You could write: I do not agree with this approach. Disability does not exist in isolation and 5/27/2026 8:43 AMcannot be properly understood by looking at a single diagnosis alone. A person’s ability to function and participate in daily life is influenced by many factors, including their health, living situation, available supports, assistive technology, family circumstances and other conditions they may have. Ignoring these factors risks creating assessments that do not reflect a person’s real-life needs. Two people with the same diagnosis can have vastly different levels of support available to them and therefore very different support requirements. I am particularly concerned about the assumption that family support can simply fill any gaps. Family members are not an unlimited resource. Many carers are already providing extensive unpaid care while managing their own health, work, financial and family responsibilities. In my situation, I am the primary carer for my mother with young onset Alzheimer’s disease and my son with significant disability support needs. The level of care I provide every day directly affects my own wellbeing and ability to meet my own disability-related needs. Effective disability support requires looking at the whole person and their actual circumstances. If assessments fail to consider the broader context of a person’s life, there is a significant risk that support needs will be underestimated and participants will be left without the assistance they require to live safely and participate in their communities.
2 This is ridiculous and offensive 5/26/2026 1:43 PM
3 This would discouraging for people with disabilities to get any assistance 5/26/2026 11:44 AM
4 It is shocking and shows no insight into disabled people. Have they even heard the term 5/24/2026 11:04 PMspectrum? It is because there are so many individual situations that we experience. I have ASD and ADHD as a result of my Hydrocephalus and they all contribute significantly to my condition. The idea is shortsighted and lacks forethought.
5 This is terrible. Looking at the whole person Is imperative 5/24/2026 1:50 PM
6 Very disturbing. Some have advantages already. Some have disadvantages. Looking at the 5/24/2026 5:48 AMwhole picture helps level out inclusiveness.
7 Not everyone has access to the same level of informal and formal support. 5/23/2026 4:35 PM
8 It's stupid. The best care happens when the whole person is considered. No one disabled 5/22/2026 5:48 PMperson is the same, so why should they recieve the same level of supports? Another money waster. If the government looks at the person as a whole they can allocate funds appropriately and stop wasting money.
9 Not acceptable 5/22/2026 4:46 PM
10 I have multiple major things wrong with me. They are mostly connected, with similar 5/22/2026 2:54 PMsymptoms. Treating only part of the problem won’t help me in the long run and will instead cost the government and me more.
11 Terrible. 5/22/2026 11:19 AM
12 This is not how a fair system works. No one is just their disability. Where they live, who 5/22/2026 10:37 AMthey live with affects every person.
13 Great work, too many overfunded participants. 5/22/2026 6:19 AM
14 It’s never going to work! People will be in crisis with these changes. 5/22/2026 4:39 AM
15 No good at all 5/21/2026 8:46 PM
16 Absolutely ridiculous 5/21/2026 8:05 PM
17 As someone with multiple, complex disabilities this will be a life-changing concern for me 5/21/2026 8:02 PM
18 People will go without service 5/21/2026 7:45 PM
19 It’s not right at all they are making our lives worse 5/21/2026 7:39 PMPage 436 11 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 437
20 Its crap 5/21/2026 7:08 PM
21 It’s ridiculous. My son’s main disability is autism. Austin’s is one aspect. His learning 5/21/2026 6:40 PMdisability means he sits in the bottom 1% of children his age. He is in yr 5 and is unable to read and write. He’s case is complicated as he has anaphylaxis to many foods, but as he is unable to read and write and communicate effectively, how will he ever be able to go to the shops, read a menu, explain his allergies like a normal tween would. His food allergies will kill him within minutes!!! The school system is unable to catch him up. But the new changes mean he would severely be cut from the system
22 Not a great idea is live on my own no family supports or friends 5/21/2026 3:54 PM
23 This is disgusting , healing and helping people needs to have a multi disciplinary approach 5/21/2026 5:48 AMfor people to have some quality of life . Australians are sicker than ever .
24 CMT is the whole person. I understood that the getting back on track legislation was meant 5/20/2026 8:42 PMto look at the person as a whole person and not just the main disability. Many people have more than one main disability and everyone should be treated as a whole person.
25 The NDIS *already* ignores anything that is not the so-called 'main disability'. They even 5/20/2026 8:03 PMwant to only cover impairments caused by the main disability but not by other disabilities. This is a total fiction, because life doesn’t work like that. Nobody can isolate the impairment from Rheumatoid arthritis versus that from Osteo Arthritis, and it is alien to reason for them to demand this.
26 Disabilities affect the whole person and their family. Its ridiculous to purely focus on the 5/20/2026 7:45 PMdisability and not the person. The disability affects the person and this needs to be considered and allowed for.
27 Functionally the whole person can be affected and such support is unlikely to be available 5/20/2026 6:21 PMto all except those in the know or those with money.
28 Great 5/20/2026 6:20 PM
29 Very overwhelming and worrying. 5/20/2026 5:47 PM
30 They absolutely need to look at the whole person and the entire scenario 5/20/2026 5:42 PM
31 Assessing based on the ability level without any external supports is good, because that is 5/20/2026 5:13 PMthe true lebel of disability that person has. But, if by only assessing the main disability you mean any accepted secondary disabilities will no longer be supported, that is hugely problematic. Some conditions/disabilities are interlinked/have overlapping symptoms so cannot be separated (e.g. my severe orthostatic intolerance stems from BOTH my severe ME/CFS and my severe POTS). It also means by definition supports will be reduced and for the most part supports are already inadequate for many people. People and their disabilities stem from multiple factors oftentimes, so if the NDIA wants to ignore that and instead try to fit people into a narrrowed ignorant simple box that is convenient to them and/or allows their unqualified staff to do the required work (who otherwise lack the expertise to deal with complexity & nuance) and/or saves them money, that is at odds with reality. Completely illogical unless you don’t actually care about adequately supporting sig disabled people. They are telling on themselves in my opinion.
32 I think that the whole person needs to be treated as other conditions can exacerbate the 5/20/2026 3:48 PMsymptoms of the main disability.
33 I am my husbands carer. But I struggle with my own disability. We do not have anyone to 5/20/2026 1:51 PMhelp us. No family we can rely on. My eldest daughter died by suicide. My middle daughter has autism and ADHD. My youngest daughter lives in another state. We are already isolated. The NDIS has been life changing. If they continue with the planned changes to the scheme it will significantly negatively impact both our lives. Do I think the government cares? No!
34 It's quite unfair. Disabled people may be affected by their disablities in various ways, which 5/20/2026 8:55 AMmay result in other needs related with it.
35 They need to consider the whole situation 5/20/2026 7:24 AM
36 I think this is an egregious wrong. This denies that a person is embedded in an environment 5/20/2026 7:23 AMand inal yes but their social cues. It denies what we know to be true of humans, that their living space and ecology impacts them in so many ways. That disability impacts so many things. And that there are incredibly difficult commorbidities that come with disability which actually increase disability symptoms; and that the healthcare system is so thoroughly ill equipped to deal with these concerns. It tells me the people running this are either naive or don’t truly care.
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Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 438
37 Holistic approach needed as comorbid conditions often accompany disability 5/20/2026 6:38 AM
38 Coexisting conditions are very common and impact each other. My son is a whole person, 5/20/2026 5:11 AMnot part
39 Silly. If this were the best outcome it would have been done already. The proposed changes 5/20/2026 4:32 AMare simply to save money without actually looking at the full picture and what the children of our future need. The more we pump into them now the less support they’ll need later
40 Unsure, probably help with others that over rely on the service 5/20/2026 4:16 AM
41 This ignores the interplay between disability and environment, and the whole social model of 5/20/2026 12:42 AMdisability endorsed by the UN. This is regressive policy which will disproportionately affect neurodivergent people. And children. You are basically telling people they don’t have a right to live a life outside of a very narrow functional existence.
42 Would they like to be tested on how well they can cut food when they can’t use their arms 5/19/2026 9:59 PMwithout considering they are also blind. Family or others need to earn an income and hospital systems are not equipped to support people with a disability, not neuroaffirming, not inclusive of all forms of communication
43 I think we are whole people not pieces of people. 5/19/2026 9:33 PM
44 I don’t feel the level of personalised care is adequate, particularly given the complexities of 5/19/2026 9:26 PMthe disabilities involved. I’m also not comfortable with what’s being proposed.
45 This is unfair and I am stressed about not being able to get the help that I need 5/19/2026 8:55 PM
46 Disability is much more complex and nuanced than this. If paediatricians and psychiatrists 5/19/2026 8:07 PMrequire multidisciplinary allied health teams to accurately diagnose Autism and determine whether characteristics are consistent with one of multiple diagnoses, how is a tool supposed to determine what needs align with which diagnostic term. This feels very specialised and beyond the scope of a government funded scheme.
47 So many people will have to stay home and not be seen in public 5/19/2026 7:49 PM
48 A person's whole self impacts on their quality of life and disability. 5/19/2026 7:20 PM
49 A person is not just one element, we are complex individuals with intersecting needs and 5/19/2026 7:18 PMexperiencing, separating things out into neat little boxes is way too over simplified and dangerous.
50 My informal support currently helps me have some quality of life. Without that support I 5/19/2026 7:11 PMwould be housebound. If this means the evaluation means my informal support can have a break, good. Im a bit unclear what this still implies.
51 I feel that this is going against everything we have learnt and what evidence and research is 5/19/2026 6:55 PMsuggesting to do.
52 A person is not their disability. They are a whole person and their disability may impact 5/19/2026 6:17 PMthem in different ways
53 How can we tell where one disability stops and another one starts?? 5/19/2026 5:19 PM
54 You can’t test one disability. The person is a whole being. My daughter’s CP is not her only 5/19/2026 5:06 PMproblem. The problems coexist and make each other worse. She requires support for all her diagnoses
55 I am a whole person, not just my disability. I need supports that work. 5/19/2026 5:02 PMPage 438 13 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 439
Q7 63 responses
Are you worried about these cuts?
Yes
No I
I’m not sure I I didn’t know about them until now I
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 10…
# IS THERE ANYTHING ELSE YOU'D LIKE TO TELL US ABOUT THIS? DATE
1 You could write: I strongly oppose these cuts. Social participation, community access, skill 5/27/2026 8:43 AMdevelopment and support to engage in everyday activities are not optional extras. They are essential supports that help people with disability maintain independence, wellbeing, confidence and connection to their communities. Social isolation is already a significant issue for households like ours. Community participation for the people I care for relies almost entirely on me, yet I am already beyond capacity providing full-time care for family members with highly complex support needs. I cannot personally provide all of the social and community access they require because there are simply not enough hours in the day and my own capacity is limited. Currently, the NDIS-funded community access available is only around 90 minutes per week. Most service providers require a minimum booking of two hours, meaning we are already forced to skip some weeks to accumulate enough funding for a support session. Reducing funding further would result in even greater isolation and fewer opportunities to participate in the community. Independent mentors who have reviewed the current NDIS plan have advised that a minimum of six hours of support per week would be appropriate based on the evidence provided. The current funding is already insufficient to meet identified needs. Further cuts would move people further away from meaningful participation, skill development and community inclusion, increasing reliance on unpaid carers and reducing quality of life for people with disability.
2 I’m worried for Australia’s future. This not only affects the participants, families loved ones 5/26/2026 1:43 PMfriends people providing support it will effect most people in some way in their lifetime and Australian society
3 Just like Covid lockdown but just for disabled 5/26/2026 11:44 AM
4 I haven’t been able to utilise supports for social engagements because I haven’t felt ready 5/24/2026 11:04 PMto go out into the world since my last surgeries but this is a bad thing. It has affected me a lot and my only interaction with anyone outside my living arrangements is through my support worker. If I didn’t have her to help the odd chore and insist on me walking to the park every now and then, I’d never see anyone, That is a really bad thing.
5 Its not fair, if you have a disability you should have access to go shopping, to social events 5/24/2026 5:48 AMand to work! Some people really need that support
6 This limits any form of capacity building and essentially leaves the disabled person 5/23/2026 4:35 PMvulnerable and reliant on their informal supports (if they have any at all). It also results in limiting the person’s ability and access to creating and maintaining meaningful relationships.
7 This will devastate and keep disabled people from participating in society, worsening their 5/22/2026 5:48 PMchronic health conditions, physical health, mental health and place more people in the public health system, overloading an already struggling & under resourced system.
8 Social and community participation is extremely important. When able bodied friends gave 5/22/2026 4:46 PMup on me. My new disabled friends have filled my life and presented opportunities to grow Page 439 14 / 29
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9 How are we supposed to feel like human beings if we are locked away in our houses? 5/22/2026 2:54 PM
10 I only recieve 3 hours a week woth my current plan so I will potentially go weeks without 5/22/2026 11:19 AMsupports. This would also mean people who require supports to attend employment could lose their jobs and this could result in an uptick of centrelink reliance.
11 This is cutting the legs out from under people who already have issues accessing the 5/22/2026 10:37 AMcommunity.
12 Half as often? Are you just scare mongering? 5/22/2026 6:19 AM
13 The government can afford the NDIS. They can also afford to provide better supports 5/22/2026 4:39 AMoutside the NDIS for people with disability… they are choosing not to. Fix the fraud, fix the systems and savings will happen. Then people with disability can then still receive the support they need to live and thrive.
14 People with disabilities have a right to go out aswell and feeling safe and supported 5/21/2026 8:05 PM
15 I live alone, im 100% wheelchair reliant, I cannot drive, I do not own a WAV, I have no 5/21/2026 8:02 PMinformal supports, if my plan changes to reduce my community participation i will not be able to access therapies, I won’t be able to do the only exercise possible - hydrotherapy, I cant shop alone, i cant get out to family events and occasions alone, it will leave me housebound and without essential community contact and therapies, ive already lost my life as an sble-bodied person, if I lose my CP funding i will have a life barely worth living
16 People will go backwards not getting out causes agoraphobia 5/21/2026 3:54 PM
17 Isolation has lead me down the road of severe mental health issues because i can’t get out 5/21/2026 5:48 AMand be independent so i rely on others to get me outside . This is what helps people not more drugs .
18 I don’t need the supports, but others do and taking them away or putting them onto the 5/20/2026 8:42 PMcommunity that does not have those supports available Will ostracized these people.
19 I would add that I am *already* largely unable to use this budget item because they forbid 5/20/2026 8:03 PMme from using transport, even though I can often barely walk at all. They are not required to tell me the reason for this decision, but since I live below the poverty line, it means the provision of a budget is useless because I can’t afford to travel to the hypothetical ‘community participation’
20 Community is important for people with disability especially community and social groups, 5/20/2026 7:45 PMobtaining new skills and assistance with shopping.
21 This is an area that allows for participation for all. Without this then people will become more 5/20/2026 6:21 PMisolated and less included in society thereby affecting self esteem and potentially greater mental health concerns.
22 Disabled don't just have a right to not die, they have a human right to actually live their lives 5/20/2026 5:13 PMand find joy and meaning. If we as a country/society believe disabled people are only deserving of the bare minimum - existence - that is a terrible reflection and one that we should all be ashamed of. It is discriminatory, in some cases a true violation of human rights, and in some cases committing disabled people to poorer health outcomes to deny connection (NB loneliness is one of the biggest risk factors for our physical and mental health - many people [perhaps our gov also, though I’m cynical] are unaware of this), learning/novelty, social participation, prevent employment etc.
23 Without social and community group funding my children now young people, would not have 5/20/2026 3:48 PMbuilt the skills to catch public transport independently to go to work or outings with friends. Families no longer help one another and even within families both parents need to work to pay for the basic living needs of the family. If we solely relied on parental responsibility, disabled young people would not be able to build their skills to live and work independently, which will cause further drain on social security systems as they will need to be paid disability payment and live in communal housing or at home for the rest of their lives to keep a roof over their heads. Most people with a disability want to contribute in a meaningful way to society,
24 We are already isolated. We already barely leave the house. This will mean the little we do 5/20/2026 1:51 PMengage in community will be negatively impacted.
25 Isolation is one of the most terrible of troubles I see in my clients. One of the best ways to 5/20/2026 7:23 AMimprove symptoms is to improve access and freedom, agency and the ability to go out and do things any other person can do. This change will destroy that and make people’s lives much worse.
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26 Our support workers help kiddo get to school. They are wonderful. No more going to school 5/20/2026 12:42 AMfor kiddo. I wonder what the cost of that will be in 10 years time.
27 Im scared that all im allowed to do is to be stuck at home waiting to die. This is not life 5/19/2026 9:33 PM
28 This doesn't affect my child immediately as she's still young. I assume this will impact more 5/19/2026 8:07 PMin the future.
29 How can people with a disability expect to do shopping banking and leave a normal life if 5/19/2026 7:49 PMthey can’t have a support worker to help them.
30 It risks isolating people, preventing people from being able to get basic necessities. 5/19/2026 7:20 PM
31 Learning new skills means over time we are more independent and less reliant on supports. 5/19/2026 7:18 PMCutting funding for this is counter productive and will ultimately place more stress on health and education and have reduced outcomes for not just individuals but the whole economy.
32 How ridiculous. Having a disability should not mean being confined to the home. Support 5/19/2026 7:11 PMshould help with economic and social participation, not limit it.
33 It means too many people will stay home on devices 5/19/2026 5:19 PM
34 These are things my daughter will need support with as she gets older 5/19/2026 5:06 PM
35 I will be very angry and frustrated if I can't get out when I want to. I like going out. I 5/19/2026 5:02 PMvolunteer. I go to shops. I use public transport. I need help.
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Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 442
Q8 63 responses
Are you worried about missing letters or phone calls?
Is there anything else you’d like to tell us about this?
Yes
No I
Not sure
0% 10% 20% 30% 40% 50% 60% 70%
# IS THERE ANYTHING ELSE YOU'D LIKE TO TELL US ABOUT THIS? DATE
1 What if the participant is non speaking or minimally speaking? Afraid to answer the phone to 5/24/2026 1:50 PMan ynknown number. The government are thinking in such an ableist way
2 As a neurodivergant person I am unable to answer phonecalls, I always have to wait for 5/22/2026 5:48 PMthem to leave a message then I respond via email. Disabled people are not always able to answer the phone, this really just highlights that the government doesn’t care to understand disabled peoples needs.
3 I have telephobia. 5/22/2026 2:54 PM
4 As a person with multiple mental health conditons + nuerodivergent I do not answer my 5/22/2026 11:19 AMphone and I also due to my autism have a very difficult time verbalising and conversing this could put me and others at serious risk.
5 How can you constantly miss both? 5/22/2026 6:19 AM
6 But yet they can’t respond to emails or return phone call from there own provider 5/21/2026 8:46 PM
7 No all people have skills to answer a phone or letters without support 5/21/2026 8:05 PM
8 No computers they will bundle everyone into one box everyone is individual 5/21/2026 3:54 PM
9 If we are disabled how are we suppose to maintain this , your just creating more stress 5/21/2026 5:48 AM
10 I already have trouble with phone calls. 5/20/2026 8:03 PM
11 We are human. 5/20/2026 6:21 PM
12 I do not pick up calls DUE to my cognitive disability. Emails don't always get read in a 5/20/2026 5:13 PMtimely manner DUE to my cog disability. Letters can go missing and that is not my fault.
13 Many people don't answer private numbers as there are so many scammers and sales 5/20/2026 3:48 PMpeople calling. Additionally, people with psychosocial disabilities may have anxiety speaking on the phone or not have the communication skills to communicate their needs effectively and need a support person or advocate to assist them answer the questions appropriately.
14 I didn’t hear about this. Is this a prank! Feels like a prank. 5/20/2026 12:42 AM
15 They don’t tell you or consider you when calling it is just now or tough luck. It feels like 5/19/2026 9:59 PMcoercion and control
16 I dont answer private numbers 5/19/2026 9:33 PM
17 The ndis is impossible to contact. They call from private numbers, people leave and they 5/19/2026 8:55 PMdon’t provide alternative contacts for plans and the lazy workers make mistakes with plans and lose information all the time.
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18 I get severe anxiety in verbal conversations, what happens to people who can't cope with 5/19/2026 7:20 PMverbal communication
19 This further discriminates against the disabled. 5/19/2026 7:18 PM
20 Has the government learnt nothing from robo debt? Also....some disabilities mean 5/19/2026 7:11 PManswering the phone is difficult or impossible sometimes or all of the time.
21 In regional areas we miss calls and messages all the time 5/19/2026 5:19 PM
22 I don’t have access to my phone at work and their message saying a call is coming 5/19/2026 5:06 PMnormally comes through after the call
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Q9 63 responses
Do you think computers can make mistakes?
Yes
No I
I’m not sure I
0% 10% 20% 30% 40% 50% 60% 70% 80% 90% 100%
# IS THERE ANYTHING ELSE YOU'D LIKE TO TELL US ABOUT THIS? DATE
1 Computers don’t understand each and every individual and disabled people are swept under 5/26/2026 11:44 AMthe carpet
2 AI is human made & evolves by responding to mistakes. So it will make alot of mistakes as 5/22/2026 5:48 PMit improves.
3 Cognitivley this is impossible living in a regional area with limited mobile access would be 5/22/2026 4:46 PMvulnerable to claims that I don’t answer the phone and like centrelink cancel claims without human to human conversations
4 Computers can always make mistakes. It depends on who writes the work. Also, they are 5/22/2026 2:54 PMtalking about using AI. AI does not work at all if people bother to check what it has been doing.
5 Data input can be wrong. 5/22/2026 6:19 AM
6 computers show no emotion and understand 5/21/2026 8:05 PM
7 No machine can be 100% relied on to be accurate 100% of the time 5/21/2026 8:02 PM
8 Please no computers 5/21/2026 3:54 PM
9 What you’re doing is criminal , give people what they need . Do real life assessments . Sit 5/21/2026 5:48 AMwith the families here there stored and suffering and give them what they need . People don’t want to be disabled !!!! I’ve worked so hard my whole life and done everything to keep myself healthy i didn’t deserve this and neither does my family . You have even broken my kids mentally watching her mother suffer like this , crying and screaming everyday in severe pain. Suicidal . No my kids are suicidal . Well done !!!!
10 We know that AI makes mistakes all the time. Human oversight is essential. 5/20/2026 8:42 PM
11 People who design these systems are responsible. Robodebt lessons are still not learned. 5/20/2026 8:03 PM
12 It seems the government intends on automating the process however, a computer can make 5/20/2026 7:45 PMmistakes, phone calls can be missed.
13 Computers cannot understand the whole person. 5/20/2026 6:21 PM
14 Please keep humans in jobs 5/20/2026 5:42 PM
15 The use of AI in NDIS processes is extremely concerning to me as a medical practitioner. 5/20/2026 5:13 PMAI makes mistakes, has hallucinations, makes its own (often incorrect) extrapolations etc etc. Humans entering data into a computer also make entry errors which can have huge consequences for a person’s whole life (inc their family’s also). Computer programs glitch and have problems all the time too.
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16 I think that this will be a big mistake as there is no room for any grey. For example: Can 5/20/2026 3:48 PMyour child dress themselves? Yes, but they put clothes on that aren’t suitable for the weather, that may be dirty or put on the wrong way round or not have the fly or buttons done up properly.
17 I am appalled that the government would even consider automating a service with such a 5/20/2026 1:51 PMvulnerable group of people. No system designed to help people should be automated. The risk of harm far outweighs any possible benefit.
18 I’ve seen computer assessments make so many mistakes. This is especially true for 5/20/2026 7:23 AMComplex cases.
19 Robodebt. 5/20/2026 12:42 AM
20 Mistakes happen all the time more mistakes will happen if no one looks at what is 5/19/2026 9:33 PMhappening. More people will die
21 There are many reasons I may miss a call about my daughter's disability. I assume that the 5/19/2026 8:07 PMpolicy makers also miss calls at times. This doesn’t feel very human affirming or aware at all. I also definitely think computers and AI can and will make errors.
22 Remember Robodebt?! 5/19/2026 8:04 PM
23 A computer doesn’t see the whole picture it goes on what is put init 5/19/2026 7:49 PM
24 I think this is already happening and making unjustified cuts already that are starting to hurt 5/19/2026 7:20 PMpeople.
25 Algorithms a taking out the human element don’t simply things- it means that human 5/19/2026 7:18 PMelements are missed and people suffer.
26 People with clinical knowledge should be making decisions, not computers who can't apply 5/19/2026 7:11 PMcontext.
27 Computers cannot assess a clients ability to function, engage and participate in the world 5/19/2026 6:17 PMaround them
28 Robodebt told us how bad this is 5/19/2026 5:19 PM
29 Computers aren’t capable of rational thought and understanding human complexity 5/19/2026 5:06 PM
30 I don't trust AI. I want a person to make decisions about me. 5/19/2026 5:02 PMPage 445 20 / 29
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Q10 63 responses
Are you worried about these changes in looking after money?
Yes
No
I’m not sure
0% 10% 20% 30% 40% 50% 60% 70% 80%
# IS THERE ANYTHING ELSE YOU'D LIKE TO TELL US ABOUT THIS? DATE
1 How the hell is someone who is eligible for NDIS be expected to do this? What about the 5/26/2026 1:43 PMproviders? Surely that is the obvious choice!
2 Often participants are needing help with this exact skill, yet you are expecting them to be 5/24/2026 1:50 PMorganised and know how to do all this.
3 This is beyond the capabilities of alot of disabled people. 5/22/2026 5:48 PM
4 Disability does not mean ability to handling accounting 5/22/2026 4:46 PM
5 What happens when the NDIS want the receipts, the originals? Not everyone has a printer, 5/22/2026 2:54 PMscanner and computer to be able to copy them if they want copies. Your house burns down. Oh, sorry, now you need to pay us 1000’s of $ because your receipts got burnt.
6 If you have nothing to hide there is no issue. 5/22/2026 6:19 AM
7 I’m not but this will add load to families at their capacity. It should be a centralized payment 5/22/2026 4:39 AMsystem. Everyone accessing NDIS should be registered in some form, and use the same system to take the burden off families and risk off providers.
8 Have them all plan managed and or in a section you can log into like an accountant app 5/21/2026 8:46 PM
9 I have a wonderful, honest, diligent plan manager and mostly use a registered, very 5/21/2026 8:02 PMreputable, honest company for my supports
10 Executive dysfunction makes it difficult to organise and remember to complete tasks, 5/21/2026 7:16 PMsystems can be confusing
11 I am not good with money 5/21/2026 3:54 PM
12 I have a neurological injury can hardly look after myself 5/21/2026 5:48 AM
13 Everything is in soft copy now, so very easy to keep on the cloud should it be required. We 5/20/2026 8:42 PMalso have to upload or receipts with claims so therefore the NDIS have copies of all receipts.
14 Illness can prevent a person making claims within 90 days etc 5/20/2026 7:45 PM
15 People like me with cognitive disability may not be able to get to all their admin tasks in 5/20/2026 5:13 PMtime, things can get missed and then if 90 days has passed I’m financially affected. That is discriminatory. Ironic when relating to disability insurance scheme operations. Keeping 3yrs of receipts is also a huge burden and unreasonable in my opinion. We are on tbe NDIS because we are sig disabled, so the NDIS shouldn’t be creating work for us! 1yr is reasonable.
16 This is a huge responsibility for people and families who are already under a significant 5/20/2026 3:48 PMPage 446 21 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 447 amount of stress and pressure. Why can’t the providers deal with the NDIS direct for reimbursement.
17 Life is already super complex and difficult when you are a person with a disability looking 5/20/2026 1:51 PMafter another person with a disability. They should be trying to alleviate distress, not cause more.
18 These don’t allow for executive dysfunction, memory issues and the overwhelm of disability 5/20/2026 7:23 AMand how that impacts administrative duties. It’s a terrible misunderstanding of people.
19 Should be able to claim anytime within 12month period 5/20/2026 6:38 AM
20 If I've uploaded, do I need to keep a paper copy? 5/20/2026 5:11 AM
21 I am because collecting invoices for two children seems like an extra job when I’m already 5/20/2026 4:32 AMrushed off my feet juggling 3 kids in my household. Surely there is a better system for example when putting a claim in the NDIS app or plan manager app they can store the invoice for 3 years to save the double handling
22 I have ADHD myself. It takes me 90 days to find mu shoes in the morning. I’m starting to 5/20/2026 12:42 AMfeel you are just being cruel now. Also would the ACCC stand for this if JB Hifi tried this kind of shenanigans?
23 Sometimes innocent mistakes happen like a lost receipt. Government can make mistakes 5/19/2026 9:33 PMwhy cant i?
24 If I upload my receipts to the portal to claim every invoice anyway, isn't the data already 5/19/2026 8:07 PMthere? Why would I need to keep another copy for 3 years. The government NDIS system must be sophisticated enough for this level of data storage.
25 I understand this but it's not very disability friendly. There should at least be a less punitive 5/19/2026 7:11 PMapproach.
26 I need a plan manager 5/19/2026 5:19 PM
27 I am plan managed (small registered australian business) and I want to keep that in place. 5/19/2026 5:13 PMSupporting small Australian businesses is always a good thing. Large companies have 1300 numbers. Don’t return calls, and don’t help with any questions. If they do eventually answer your calls, it is by random call centre people who never seem to know what you are asking or who you are. You have to call several times before you get any answers.
28 I’m a burnt out carer. Receipt keeping is not one of my top priorities 5/19/2026 5:06 PM
29 Maybe I'll forget about an bill. I'm not a criminal. 5/19/2026 5:02 PMPage 447 22 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 448
Q11 63 responses
Does this worry you?
Yes
No
I’m not sure
0% 10% 20% 30% 40% 50% 60% 70% 80% 90%
# WOULD YOU LIKE TO TELL US MORE ABOUT THIS? DATE
1 You could write: Yes, this worries me. Consistent and trusted support workers are critical for 5/27/2026 8:43 AMmany people with disability. The relationship between a participant and their support worker is often built over months or years and cannot simply be replaced by assigning a new worker from a provider. For my son with Autism Spectrum Disorder, familiarity, trust and predictability are extremely important. He can become highly distressed when routines change and may refuse support from unfamiliar workers. Being forced to change workers could result in increased anxiety, reduced participation and difficulty accessing supports that are intended to help him. For my mother with young-onset Alzheimer’s disease, familiar faces and consistent routines are equally important. She experiences confusion and anxiety and responds best to people she knows and trusts. Frequent changes of staff can increase distress, reduce cooperation with care and negatively impact her wellbeing. Limiting participants to registered providers may reduce choice and control, particularly in areas where there are already workforce shortages. People should be able to continue using trusted workers who understand their individual needs, communication styles and support requirements. For many participants, the relationship with the support worker is a key factor in whether support is successful at all.
2 Maybe it’s a space that needs further structures or different structures? I’ve heard 5/26/2026 1:43 PMregistration is too much work for no real value. Maybe they need something similar to the private health system …. That is also audited…
3 I am very suspicious and cautious of people and my support worker is the only person I 5/24/2026 11:04 PMtrust to come to my house and take me around. It is making me incredibly anxious thinking about this stuff and it seems like the government has been focusing on the NDIS continually for quite a while now. It’s just awful.
4 I think it is important for services providing vulnerable supports to require registration 5/24/2026 1:50 PM
5 Some of the best providers cant afford to jump through all the loop holes to become ndis 5/24/2026 5:48 AMregistered!
6 This opens up disabled people to more abuse than what they already recieve. Disabled 5/22/2026 5:48 PMpeople still have autonomy and this should extend to their care team.
7 Freedom and control not dictation 5/22/2026 4:46 PM
8 What happens when there are not enough registered people or companies, especially in out- 5/22/2026 2:54 PMof-city areas? Then you get no help.
9 This is a must to clean up the industry. 5/22/2026 6:19 AM
10 I believe all people should be registered, but make registration easy and free (and scales 5/22/2026 4:39 AMdepending on their role/supports they provide). Then people can still have choice!
11 I think all providers should be registered and checked regularly and loose. Registration if 5/21/2026 8:46 PMPage 448 23 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 449 they do the eying thing
12 Just because you are a registered provider doesn't mean you know how to care for people. 5/21/2026 8:05 PMSometimes it comes down to just having money to get registered and most small businesses just cant with business costs already stretching money thin
13 The registered company i currently use always gives me full control over who I have as my 5/21/2026 8:02 PMSW, they send people to meet me, I have buddy shifts anf decide if the SW is a good fit, they never employ anyone without ALL relevant checks, they have constant training available, RN on staff and pay according to schadds award
14 Unable to select best fit for the role, no choice between male or female 5/21/2026 7:16 PM
15 It takes a long time to find good trustworthy carers i can trust 5/21/2026 3:54 PM
16 We were not all born exactly the same with exactly the same genetic make up . Hence the 5/21/2026 5:48 AMvaccine damage ! Some people need different therapy’s if they can’t take medications due to severe side effects .
17 I have domestic assistance because I cannot do all meal prep or clean my house however I 5/20/2026 8:42 PMdon’t yet require self-care support. If I did, I would be very concerned as it is a human right to be clean and dressed in fresh clothes every day.
18 We use a specific provider who relates to my son, someone he has rapport with and 5/20/2026 7:45 PMunderstands his needs. He needs a specialised provider for this. To be told who you can use is extremely concerning.
19 Compatibility and relationships are key to success. 5/20/2026 6:21 PM
20 What happened to choice and control. 5/20/2026 5:47 PM
21 In my experience, those working for registered companies have a POORER standard of 5/20/2026 5:13 PMperformance and professionalism and ethics etc than those I personally select from platforms such as Mable and Hire Up. They are also often less flexible which is ironically not disability friendly or realistic given we’re all unique individuals. In my opinion, choosing individual workers who answer to you as the employer (not a company) will always err towards better service than choosing companies/organisations, because once one step removed the accountability and communications etc can falter + capitalism means cos/orgs are driven by profit which inherently means getting the most money for the least amount of delivery. Some people’s disability needs don’t align with co/org policies either. So what do we do? E.g. many cos/orgs don’t require up to date vaccinations, don’t allow their workers to do certain tasks, the list goes on. This is another way in which Labor’s new plans will negatively impact disabled people. We deserve autonomy and choice and control over our own lives, inc who enters our house and helps us with personal tasks.
22 All of my providers are sole traders, they are qualified in their professional areas and meet 5/20/2026 3:48 PMNDIS requirements. I don’t believe that being a registered provider makes a better therapist or carer. My experience with larger, registered providers is that they have treated my children like a number, lack personalised care and are more likely to over charge as they have higher overheads.
23 It has taken me YEARS to finally find appropriate, trustworthy support workers. They are all 5/20/2026 1:51 PMindependent. We are the only client of two Sws. The third support worker has two other clients. The current registration process is prohibitive and does not guarantee compliance. We would be devastated to lose the support workers we currently have. It took a full year to stop my husband cancelling his support workers. Having someone come in to our home on a regular basis is already a difficult thing. I want to be able to decide who helps us. We deserve choice and dignity.
24 It’s stupid. There are people that have been severely traumatised and abused by registered 5/20/2026 7:23 AMproviders and are only safe because they can currently choose their support workers. This change will cause untold harm to people. The government has clearly demonstrates it cannot oversee people like this - we currently have extensive financial and abuse problems because of this. The government didn’t manage any of this well and it’s part of the reason for the reforms. If we look at other regulated industries such as child care and aged care look at the extensive abuses in those industries in the media this last 12 months. Horrible stories and they are supposedly regulated by the government. The government cannot create good regulation and cannot make things like this work.
25 Chosen providers easier to access & better match for participant 5/20/2026 6:38 AM
26 I've lived in a rural area and there are barely any registered providers 5/20/2026 5:11 AM
27 94% of providers are non registered, they are subject to the same laws as registered 5/20/2026 12:42 AMPage 449 24 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 450 providers, albeit with less compliance. Many of them are small and can’t afford the process. Most of them follow the law. The ones I have dealt with provide good quality care. Because they are smaller and have less red tape they are able to be responsive and flexible in their care delivery. So why do you want to send them under again?
28 I want to choose who supports me 5/19/2026 9:33 PM
29 Rural and regional areas simply do not have the registered providers you speak of. This 5/19/2026 8:07 PMmeans choice and control in diminished and country people are disadvantaged.
30 Not every body gets along with others. Some people hit it off and others don’t. Why should 5/19/2026 7:49 PMpeople put up with others that they don’t feel respect from
31 You should be able to choose the person who is going to provide you. With the most 5/19/2026 7:20 PMappropriate care and whom you are comfortable with.
32 Registered provider does not guarantee quality. Often those no registered have provided 5/19/2026 7:18 PMbetter, safer and more cost effective supports.
33 What happened to choice and control. Also...isn't the government worries about costs? This 5/19/2026 7:11 PMsort of thing increases costs. I agree there needs to be some sort of safeguarding but I don’t think being a registered guv provider provides this….or…ppl should be allowed to sign a waiver.
34 Participants are meant to have choice in their providers and where they access services. 5/19/2026 6:17 PMAllied Health services are registered with their professional bodies, why is that not enough? Other providers do need some governance
35 There are few registered providers in our regional area 5/19/2026 5:19 PM
36 Big providers are very money orientated, not individual care and mostly very impersonal. 5/19/2026 5:13 PMSend random barely trained support workers, do not fulfill shifts, do NOT stick to your preferences on days or times, give very short notice of unavailability of worker sometimes only giving 1 - 2 hours of cancellation of shift. I have to give THEM 48hrs notice. Registered does not = honest, individual, reliable good service.
37 I only want my daughter to be supported by known, chosen and trusted people 5/19/2026 5:06 PM
38 I like to choose who helps me. I use a few unregistered providers. I want flexibility. 5/19/2026 5:02 PMPage 450 25 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 451
Q12 Is there anything else you would like to tell us?
Answered: 40 Skipped: 23
# RESPONSES DATE
1 Here’s a stronger version that remains respectful and suitable for a government 5/27/2026 8:43 AMconsultation: These changes will hurt many of the people they are supposed to help. The overwhelming message throughout these proposals is that people with disability, their families, carers, treating professionals and support teams are not trusted. Participants are being asked to repeatedly prove disabilities that are permanent. Families are being expected to fill gaps that already exist despite many carers being exhausted, overwhelmed and providing extraordinary amounts of unpaid care every day. I am the primary carer for my mother with young-onset Alzheimer’s disease and my son with significant disability support needs. My days are consumed by caregiving, advocacy, appointments, paperwork, behavioural support, emotional regulation, medication management and ensuring basic daily needs are met. Like many carers, I am already operating beyond capacity. The assumption that families can simply do more when supports are reduced demonstrates a fundamental misunderstanding of the reality many households are living. What concerns me most is that these changes appear focused on reducing access and reducing costs rather than improving outcomes for people with disability. Supports such as community participation, skill development, support workers and plan flexibility are often described as discretionary expenses, yet these are the very supports that prevent isolation, crisis, family breakdown, hospital admissions and more costly interventions later. People with disability are not line items in a budget. They are children, adults, parents, siblings, friends and community members who deserve the opportunity to live meaningful lives with dignity and inclusion. The NDIS was created because society recognised that disability support should not depend on how much a family can sacrifice or how loudly a person can fight for help. The government should not proceed with these changes until it has genuinely listened to participants, carers, disability advocates and the professionals who work alongside them every day. Those living with disability and providing care understand the consequences of these decisions far better than any assessment tool ever could. If the goal is a fair and sustainable NDIS, the answer is not to create more barriers, more reassessments and more reasons to say no. The answer is to build a system that listens, responds to evidence, values carers and provides people with disability the supports they genuinely need to participate in society.
2 Hurt. No it should not pass. They should stop and do a proper job. They haven’t listened to 5/26/2026 1:43 PManyone so far. It reeks of USA style. They need to be stopped and forced to do the job they are paid to do. What is right for every person and Australian society!
3 Talk to disabled people and the carers about the hurdles they already face . Day in day out 5/26/2026 11:44 AM
4 These changes are appalling and I feel duped by this political party. Having voted Labour all 5/24/2026 11:04 PMmy life, I will never forget this. It is abusive.
5 They need to speak and listen to the disability community and members from multiple types 5/24/2026 1:50 PM
6 What they are doing is disgusting. They need to hear from people with disabilities and take 5/24/2026 5:48 AMon board what is being said. So many are going to be badly affected by their decision
7 These changes are scary for both the vulnerable people who are reliant on accessing NDIS 5/23/2026 4:35 PMas well as those who have dedicated years of training, upskilling, relationships, and living through the experiences of ND individuals.
8 Hurt. Why can't the government focus on Medicare fraud, Centrelink Fraud, NDIS fraud, not 5/22/2026 5:48 PMtaxing big businesses enough. They are literally looking for a platform to look good. Fucking ridiculous & totally pathetic, the whole government pushing this should be ashamed of themselves.
9 Stop immediately and understand the pressure on participants. 5/22/2026 4:46 PM
10 They don't stop to talk to people first. They will do what is in their best interests. Trying to 5/22/2026 2:54 PMshow the public that not as much money is being spent. Then, more money has to be spent on fixing the major deficits that this causes in the health of the people.
11 I am very afraid. I am worried I will end my life. 5/22/2026 11:19 AM
12 This is a very weighted survey, you obviously have an agenda, stop being so biased. 5/22/2026 6:19 AMPage 451 26 / 29
Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 452
13 It has alot of people stressed and unsure. They definitely dont feel supported by our 5/21/2026 8:05 PMgovernment which is going to hurt alot of people and put more strain on our hospitals and facilities that already cant manage.
14 Some of these changes will severely impact certain people for various reasons, my 5/21/2026 8:02 PMparticular concerns are around the cuts to CP funding as this is essential for me to be able live my life as a functioning member of my community, maintain contact with family and friends and to travel to essential therapies
15 Stop picking on people with disability, punish the rorters 5/21/2026 7:08 PM
16 These changrd will Hurt people a lot i would not cope and would go backwards as a lot 5/21/2026 3:54 PMwould we just want dignity humanity and choices
17 Do your job get out there and actually see what’s happening . Stop sitting behind a 5/21/2026 5:48 AMcomputer , save yourself money buy getting more accurate assessments and reviews in person . What you’re doing is criminal ! I’m ashamed to be an Australian .
18 It would be nice if the government stopped the fraud which we know is impossible, but then 5/20/2026 8:42 PMthere would be more money available to support the people who need it rather than the people who clearly don’t need it and have a lot of fraud and a happy for that fraud to occur. The level of fraud is extremely disappointing, not only as a participant, but also as someone who works in the industry.
19 The NDIS was badly designed from the beginning. Now we are being punished for that, and 5/20/2026 8:03 PMscapegoated for that. The promises made have been shamefully broken and it is unforgivable the way they have rushed this through. They want to prioritise their participation in global mass murder sprees and big handouts to the rich and super-ruch.
20 As a carer of a child who has undergone cancer and has a hearing disability as a result, I 5/20/2026 7:45 PMam extremely concerned about how these changes will negatively impact people with disabilities and their families. The government needs to speak to the people and their carers to fully understand the impact these changes will have and the detriment to peoples livelihoods.
21 Yes! Yes! Yes!!! 5/20/2026 6:21 PM
22 Pass the laws asap. NDIS is a rort. 5/20/2026 6:20 PM
23 No 5/20/2026 5:47 PM
24 Their new plan will hurt hundreds of thousands of already vulnerable people and families. It 5/20/2026 5:13 PMwill not help a single person in my opinion. The only thing it helps is their budget, but there are so many other ways they could make some money (stop fossil fuel subsidies which are growing FASTER than the NDIS, charge for our gas, gas export tax, change tax laws so large corporations all oay tax unlike the 1 in 3 who currently pay ZERO). They should not enact their current plan. They should consult more with disability experts, disabled people, and drastically improve it first.
25 Automatically removing level 1 and 2 autistic children from the NDIS is a massive mistake 5/20/2026 3:48 PMand will cost the government more in education, health and social welfare in the short and long term future. It is harmful to these families who already cannot afford to work at capacity due to the higher than usual caring needs their children require, so they definitely will not be able to afford the therapies their children need and the individualized support they need to parent their differently abled children to ensure they meet their potential and become active members of our society. What has been posited in terms of foundational supports through Thriving Kids is wildly inadequate to meet the needs of many of these children and young families.
26 The government rhetoric around disabled people is disgusting. They have shifted the blame 5/20/2026 1:51 PMfor designing a scheme that was not fit for purpose, onto people with a disability and providers who are supporting them. By blaming “rorts” they have created the perfect scapegoat. They talk about making the scheme “sustainable”. Yet NONE of the changes they are proposing , will address the bureaucratic waste inherent in the NDIS. There is plenty of waste because of the way the scheme was set up. You cannot decide that there are too many disabled people needing help. It is inhumane to prevent people with a disability from accessing the support they need. The 160000+ people the government is going to evict from the scheme will not magically cease requiring assistance. These people were forced, often repeatedly, to prove their permanent and significant disability. The government is not going to save money with their proposed cuts. They will just cause a decline in quality of life, death or force people to seek help in other already stretched/under resourced services. It will impact already burnt out carers. The government should be ashamed.
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Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 453
27 NDIS should help the disabled by considering their needs as a whole person, instead of just 5/20/2026 8:55 AMtheir main disablity.
28 People will be harmed. People will become suicidal. People will give up and die. People will 5/20/2026 7:23 AMbe further abused by a system that doesn’t care. The government should absolutely not pass this new law. The government should absolutely stop. And it should absolutely talk to people. And it should listen and change what it is saying and doing. It should reform the medical industry and the mental health industry. It should focus its efforts there. And it should reform the educational industries. People will be hurt. People will become more ill and their disabilities will be worse off. The government has not addressed this issue using any decent evidence based literature that talks about the human in context and this will destroy people’s lives.
29 I agree too many people with mental health issues on NDIS. Govt should improve and 5/20/2026 6:38 AMprovide alternative mental health care support available to all Australians. NDIS should be the reserve of people with permanent lifelong disabilities and holistic support should be provided to these people under the scheme.
30 They will hurt at least 160,000 people. Multiply that by the families and carers around them. 5/20/2026 12:42 AMThese are people with disabilities. Diagnosed. By doctors not a computer. These disabilities are permanent, and no amount of slippery language you sneak into legislation is going to change that. Yes you need to talk to people about why these changes are putting their lives at risk before you become liable for the consequences. And you will be liable. Mark my words if my daughter becomes another statistic due to losing her supports I know who I will be seeing in court. Maybe it’s better to talk to us now to avoid the future legal bills.
31 These changes will hurt people, lots of people. People that need the help the most. 5/19/2026 9:33 PM
32 Each person with a disability has unique and individual needs that require personalised 5/19/2026 9:26 PMsupport. These proposed changes fail to recognise those differences and instead take a broad, generalised approach that assumes people with disabilities require the same services and level of support. This does not adequately account for the complexity and individuality of each person’s circumstances.
33 There needs to be detail about what is available beyond NDIS and functioning services 5/19/2026 8:07 PMoutside the NDIS before removing anyone from their supports. There needs to be significant consultation with parents and carers and participants. If this is not possible, at the very least, the government needs to be listening to allied health providers who were in the system before NDIS and pivoted to NDIS. Many knew the issues that would arise last time, but not listening again seems like a significant oversight. Pushing pressure to hospitals and schools, whilst dealing with teacher and nursing shortages and burn out seems very short sighted.
34 The government needs to talk to a cross section of people who have a disability. They need 5/19/2026 7:49 PMto look at the top of the chain and get rid of the dead wood there first
35 I think there is going to be great harm to people, and it seems it won't be until their is 5/19/2026 7:20 PMserious harm that the government will listen. They would do better to stamp out fraud instead of punishing people with a disability.
36 These changes are cost cutting measures that are false economy. We now early 5/19/2026 7:18 PMintervention is key and that the benefits of the ndis have not yet been fully felt- cost cutting now cuts away at the the amazing ground work- it won’t preserve the NDIS for the future it will bring it to its knees and leave people without supports.
37 Stop and talk and listen. Cost blowouts from dodgy providers, the government spending silly 5/19/2026 7:11 PMamounts on lawyers and scrapping lowered level support services outside the NDIS are all contributing to cost blowouts. Stop blaming ppl with a disability for trying to have equity of access to quality of life and control over their lives.
38 Kids and families are going to suffer. People will die. 5/19/2026 5:19 PM
39 These changes will hurt people the government should NOT pass these new laws. They 5/19/2026 5:13 PMshould not only stop and talk to people they should listen.
40 Changes do need to be made to support ndis in the long run. But these are admin changes. 5/19/2026 5:06 PMNot killing people changes. If they’re so worried about money they should actually support smartly. My daughter frequently uses speech, physio, play and equine therapy. Generally these can take an hour travel for us each way. As a ‘normal’ parent I pay for a dance/movement class that is local to us and I can take her to without losing hours of paid employment. This was also recommended by her physio as an ideal activity for her specifically. I can’t afford these classes anymore and they’re not something I would have chosen to do for a ‘normal’ child. I asked if the ndis could cover at least some of these
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Submission 318 - Attachment 4 Have Your Say: Changes to the NDIS - Easy English version 454 class fees. Not the costumes, not the concerts, only the actual class fee. They refused because a ‘normal’ parent would do it. This would have cost at most $40 a week over 40 weeks of the year. Their solution was to instead fund a support worker to take her out of kinder/school, drive 2-3 hours and sit through a gym class operated by her physio with children not at her level. Plus the cost of said class. Twice a week. This would cost well over $500 each week. This is not only a massive financial cost but also exclusion from school, reduction of ‘family time’ to participate in an activity not even recommended by her physio. My friend was refused a thermomix to help with her goal of independent living, instead they offered a support worker to come and write shopping lists and cook for her daily. The ndis won’t allow you to purchase second hand items which would save a lot of money, or try to combine orders for people to save hundreds in postage. They throw money at so many things without looking at cheaper longer term solutions that could maybe reduce that participants reliance on the scheme in the future. Not to mention all the money wasted on FCA’s that won’t be used to prove that ndis is needed, all the hours of report writing from every therapist, reassessments needing to be done just to try and get enough funding to cover essential therapy
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