Partner of daughter receiving NDIS support advocates for equitable access (Family or carer experience)

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NDIS Amendment (Securing the NDIS for Future Generations) Bill 2026 – Senate Submission

Submission on the NDIS Amendment Bill by”

Franklin Bruinstroop

I am the partner of a person whose daughter has a disability and is currently receiving NDIS support, and have a strong belief in justice and equitability for all.

In my submission, I wish to acknowledge that a significant number of people have examined the bill more deeply than I, and that what I say has been helped through their work.

Access and Eligibility

Proposed change    What this could mean in real   My experience / what I want the Senate to

(Bill section)             life                       know

Functional capacity   A standardised assessment may   Having seen and experienced reports written by

becomes a key        not accurately capture fluctuating   allied health professionals, I know that using an

eligibility test (s9B). A   disability, masking, trauma,       assessment tool one day for a few hours either

functional capacity     autism, fatigue, behaviour          with a person that the child doesn’t know or even

tool will be used to     support needs or the cumulative   worse AI, shows no understanding of disability.

determine who can    impact of multiple disabilities. A   We shouldn’t base somebody’s needs on a “one

become a participant   child may appear capable during   off"assessment if we truly want to respect and

of the scheme.       a short assessment but require     support people with disabilities and their families.

The assessment tool   significant support to function       In depth reports prepared over time through

has not yet been       safely every day.                 experience in a variety of contexts are essential

released and it is       Instead of clinical information        for understanding the whole child and the whole

unclear who will       from qualified allied health           picture.

administer it. professionals who know the participant, access decisions may rely more heavily on a standardised assessment which may involve automation.

Evidence will be       Families may need to                       I am concerned that a participant may be required

required around the    demonstrate that all reasonable     to trial certain medications before accessing

‘Permanence’ of a     treatment options have been        certain supports? Could a family be expected to

person’s disability.     attempted before accessing       pursue surgery, intensive therapy or another

There will be a         supports. This may disadvantage   intervention they believe is unsuitable, ineffective

requirement to        people where treatments are       or carries unacceptable risks?

exhaust ’all unavailable, unaffordable, unsafe,

appropriate ineffective, culturally In my experience of disability, where people have

treatment' before       inappropriate or create significant  a rare condition or diagnosis, many experts don’t

NDIS eligibility is       side effects. To gain access,      know what treatment will be beneficial or

confirmed.              participants may have to undergo   effective.

‘treatment’ including surgeries, medication and therapies that Because the NDIA can no longer take into may be harmful. account a person’s environment (i.e. financial It also raises difficult questions status) this may mean that if they cannot afford a about where the line sits between specific treatment (to prove that it is not effective), an “appropriate” treatment and a they cannot access the NDIS. treatment a person does not wish to undertake.

New eligibility         People already receiving the            I am concerned for my partner’s daughter as well

framework from 2028  NDIS may need to demonstrate    as children and young people who currently

(s9B and related       they continue to meet the new      receive support that they could lose access

provisions)                 eligibility criteria. Existing and      despite no improvement in their disability or

All current              future participants face              functional capacity.

participants will need uncertainty about whether they

to be reassessed         will qualify under the new access     I don’t know what assessment tools will be used

under the new         model, particularly where support   for this eligibility process, what evidence

functional capacity    needs are developmental,          participants will be required to provide and if there

eligibility framework    psychosocial, fluctuating or        are any appeal rights.

from January 2028. difficult to measure using

Some may lose their   standardised tools.              There doesn’t appear to be any other

access in this Foundational Supports in place for those who are process. exited from the NDIS.

Functional capacity   Two children with the same         In my reading around this bill, it appears to seek

will be assessed with   diagnosis can have vastly           to assess a persons functional capacity without

reduced                 different support needs             taking into account environmental factors such as

consideration of depending on poverty, housing, their financial circumstances, their home

environmental and      transport, family supports, family   environment or the assistive technology they use.

personal               violence, culture, geography and   Ignoring context risks underestimating need.

circumstances (s9B) access to services.

Governance and Ministerial Powers

Proposed change (Bill  What this could mean in    My experience / what I want the Senate to

section)                  real life                 know

Minister may temporarily  The Bill allows the Minister to   While I have respect for the work that Ministers

modify how parts of the    temporarily change how       and their offices do, I believe that, particularly in

Act operate (Schedule 5   certain parts of the NDIS Act    relation to people with disability, important

transitional powers)       operate without having to      changes should always be debated and approved

pass a new Act of Parliament by Parliament. first or uses the usual parliamentary process. From what I have seen of the legislation and interpretation of it, the Minister has significant opportunities to decide and act without Parliamentary consideration.

Minister has greater      While the NDIS Review       See the previous comment.

influence over pricing recommended an arrangements independent organisation should set pricing (such as IHACPA) this bill transfers pricing power directly to the NDIS Minister with advice from the Agency. Self-Managers would still be able to pay above the Pricing Caps.

Different pricing caps can also be set for different providers (i.e. registered and unregistered). What conflict of interest exists when the Minister responsible for controlling (and right now reducing) NDIS expenditure is also given the power to set the prices the Scheme will pay?