National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3398
My children
Daughter
Diagnosis of autism, adhd, ocd, generalised hypermobility, sensory processing disorder and anxiety. Largely non verbal.
Son
Diagnosis of autism, sensory processing disorder, auditory processing disorder, developmental coordination disorder, anxiety and PTSD.
Both children have delayed language progression with delays in expressive and receptive language.
Me Diabetic since early childhood and after NDIS/WANDIS experience PTSD.
Been at AAT twice.
Been asked to provide on every review in detail why my children need their supports, explaining why they are not like other children their age. Been asked during initial plan review to provide a letter from her speech pathologist stating she will not get better just to get her speech device funded. Had to provide victim impact statement on every review even though it seemingly never worked. Second AAT took 20 months which stated when we relocated to Queensland and finishing in WA after having to relocate back when not being about to find an advocate to support us during our journey (which involved a change in NDIS lawyers 3-4 times). Once back in WA finding out NDIS lawyers were moving to have the case dropped saying “ I had passed a deadline from a case conference” even though they continually missed case conference deadlines because we were relocating to find adequate advocate support.
No confidence in NDIS/APM from continued promised support to be let down especially during review process. Rely heavily now thanks to developed PTSD on our support coordinator to correspond with NDIS.
I’m current able to work in part time capacity, if support is removed I will no longer be able to work, taking my wage out of the picture in an otherwise already high pressure cost of living situation as we must foot the bill on sensory supports (very expensive thanks to special needs items) and other items that were removed in the previous amendment to the NDIS.
We’ve been able to do a lot possibly not possible had we not had these supports. My children deserve to be the best versions of themselves possible, like the statement that goes with being
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3398
autistic “different, not less”, my daughter has never been to a birthday party, when playing in a local playground alongside another family, that family moving away from her because she was “different”. They were only able to attend daycare for three hours supported as that’s all the government allowed for support in the daycare setting, without it they would have been at risk of danger as they were and still are very unaware of their own safety (son going out into open carpark unattended as an example) which is why I can only work part time. My children can’t attend after school or vacation care for this reason also. It would be making an otherwise already hard slog even harder for everyone involved.
When you paid countless lawyer to fight participants, letting providers charge the highest pricing every time a new pricing guideline has been released, not properly investigating fraud, instead you choose to make it harder for those already doing it hard.
For someone who feels like they will absolutely break if this support is removed please I ask you reconsider. Stop making it beyond hard to just be.
Regards
Sent from my iPhone