National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3480
Hi everyone , My name is . I am writing as my husband D ’s guardian . I would like this email to be submitted to the parliament committee that is voting on passing the legislation of the NDIS bill that I oppose . has been on the NDIS since February 2021 after being diagnosed with Young Onset Alzheimer’s in 2019 . YOD Alzheimer’s is a disease that there is no cure and leads to death . ’ NDIS has been cut after a change of circumstance application in December 2025 , then again in March 2026 . This has impacted his care greatly . is in a SIL home and has lived in this environment since February 2024 when I could no longer care for him at home due to his aggressive behaviours related to his disease. With further reductions in his funding he will be left with no 24/7 supervision which will be unsafe for him . requires 24/7 2:1 care , he needs full assistance with daily living . is incontinent and needs frequent changes of clothing through the day and bedding throughout the night . His plan only allows a sleepover and not an active support worker to change him throughout the night . He should not be expected to lay in soiled clothing and bedding for 8 hours because of funding shortfalls .He is like a helpless child . We rely on his social and community access to attend physical activities such as swimming 3 times a week to ensure that he keeps his mobility for as long as possible . His Special needs Dentist , GP and Geriatrician appointments can take up to 3 hours of 2 support workers to attend appointments in a wheelchair accessible vehicle. Simple appointments that we take for granted take a lot longer to attend . Regular visits home to see family in a familiar environment is beneficial to his overall mental and physical wellbeing . This will be detrimental if he has further cuts to his funding . It is inhumane to expect my husband to live the remainder of his life restricted to living indoors and having no access to the community like all Australian citizens . is not a dog to be left to die in the backyard . The stress that is placed on myself is overwhelming at best . I advocate for my husband as best I can . was placed in a SIL house initially in February 2024 till May 2024 . I had made a formal complaint to the NDIS Quality and Safeguard Commission in relation to fraud in this matter . This was forwarded to the Fraud division and I don’t know the outcome of this complaint moving forward . It has been over 2 years since my complaint . is now with a very caring SIL provider after the initial horror of being placed with the first company . I understand that changes need to be done to the system but not at the expense of the care of participants like my husband .
National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026
Submission 3480
If investigations to complaints were handled promptly maybe participant’s wouldn’t be the easy scapegoat’s for an easy fix with budget constraints. Please place humanity before dollars .
Kindly,
8-7-2026 Sent from my iPad