Chronically ill mother reliant on NDIS for family's basic needs (Family or carer experience)

National Disability Insurance Scheme Amendment (Securing the NDIS for Future Generations) Bill 2026

Submission 559

From: Sent: Sunday, 24 May 2026 2:45 PM

To: Community Affairs, Committee (SEN)

Subject: NDIS Bill submission for

Hi,

I want this submiƩed for the NaƟonal Disability Insurance Scheme Amendment Bill 2026.

I’m a Alinta. A chronically ill and disabled mum of a 1 and 3 year old. I rely on the NDIS to meet my basic needs so that my children aren’t significantly negaƟvely impacted by my health problems. Without the NDIS I wouldn’t leave the house, and neither would my children. I have CVID so my kids cannot go to childcare as the illnesses they would bring home would lead to me being hospitalised and my kids without a mum, either temporarily or permanently (if the worst worst were to happen).

Right now the NDIS allows us to go to the community garden once a fortnight and us to go to parks or the library. Without the NDIS, or with a decease in my NDIS funds, all of our lives became much smaller and very isolated.

The stress from thinking about plan reviews already takes a huge toll on me as I know how dire the consequences are if my funding is cut. People on the NDIS have already proven our level of disability and what we need, so we shouldn’t have to conƟnue to go through plan reassessments. When assessments are done they should be done by a person and there needs to be an easy way to appeal the decision that is not done by a computer. My health condiƟons are complex and varied and so a computer cannot understand the true impact of them.

In a press conference Mark Butler said he is cracking down on fraud and deceit and yet 150,000 people will be taken off the NDIS. Cracking down on fraud and deceit should not affect the parƟcipants, you should be targeƟng the providers. I personally had more than $10,000 stolen from my NDIS funds at the start of last year. Between me, my plan manager and my support coordinator, we have submiƩed 4 fraud claims but the NDIA won’t do anything about it. The news that people will be removed from the NDIS is extremely distressing to me but it’s made even worse by the explanaƟon that it’s to combat fraud and deceit when I know personally that nothing is done about provider fraud to begin with.

AutomaƟon needs to be stopped, and people need to be given enough money in their plan for them to actually live, and not just barely survive.

I don’t want my kids to be without a mother and suffer the lifelong impacts of that because my NDIS funds were reduced. Stop the reassessments and stop taking funds from people’s plans. People will die.

Kind Regards,

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