Daughter's disability services and NSW State Government’s relinquishing of role

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Inquiry into Implementation of the National Disability Insurance Scheme and the Provision of Disability Services in New South Wales

Name: Name suppressed Date Received: 20 July 2018

Partially Confidential

My daughter was placed in care in 1982 at redacted , redacted then into community home under the Richmond Report . Policies have changed considerably since 1982 . It is a huge task to legislate for Disabilities as the range of disabilities is so vast from mobility issues to grave illnesses requiring high levels of supervision and medical treatments . I feel that the overall focus of the NDIS can allow for this diversity of assistance required however in the case of NSW , the relinquishing of an active role in Disability Services by the State Government has caused a great deal of anxiety by Parents and clients . Government Services have been taken over by Private Organisations such as “The Benevolent Society” ,“ Life Without Barriers“ and “Housing Choices” . The main concern is obtaining sufficient funding to cover all the requirements required by our Children as time progresses. As they age their requirements change and at times change quickly. Issues such as support at Hospitals , if they need Hospital Services are still being negotiated . Staffing stability has always been an issue and with the change from Community Services to redacted , has seen staff movements which has interrupted stability and cause behaviour issues to surface again . The NDIA is attempting to administer a new system in NSW which has been compounded by the State Government opting out of Service provision . Even though most services are “not for Profit” they still have to cover costs and this is a real concern as costs are always the issue with NDIS funding . Parents now are in a situation that closer examination of services , costs and timing are more crucial and again adds to anxiety for them and the people in care. The fact that the majority of staff , the houses , and to a degree the ancillary services of OT, Physio etc are being provided by previous Departmental Staff , we fear that the system becomes more costly rather than cost efficient . It is still relatively early days however concerns raised previously when the Privatisation consultations commenced still have not been finalised . If the system becomes too costly there is a real fear that services will be withdrawn or reduced considerably . It is the not knowing of what is actually happening that adds to our anxiety .